Aortic Aneurysms – Introduce yourself & meet others

Welcome to the Aortic Aneurysms group on Mayo Clinic Connect.

An aortic aneurysm is a bulge in the wall of the aorta. The aorta begins deep in the heart as it emerges from the powerful left ventricle, gently arching over the heart, descending into the chest, and finally into the abdomen. Some aortic aneurysms can be harmless; others can lead to catastrophic problems. I invite you to follow this group and connect with others, share experiences, exchange useful information, and learn about aortic aneurysms. You can get started right away by clicking the +FOLLOW icon on the group landing page.

I’m Kanaaz (@kanaazpereira), and I’m the moderator of this group. When you join, you’ll also likely be welcomed by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

We’ve got some great conversations going on right now that I think you’ll like. Grab a cup of tea, or beverage of your choice, and lets chat. Why not start by introducing yourself?

Thank you for the invite to join. I had open surgery for an abdominal aortic aneurysm that was discovered at 5.7cm in Nov. 26, 2018. I had surgery Dec.18, 2018 and have been recovering for the past 3 months. Just got cardiac clearance to return to work on 3/18/19. I would like to hear about exercise and from any one else who received a diagnosis without any previous cardiac distress.

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Though I had an ascending aortic aneurysm, my story is much like yours. I too had open heart the aneurysm was discovered accidentally as I had no symptoms. It was about 6 cm. Had the surgery May 10, 2016. I did the cardiac rehab program at Mayos suggestion in my home town. After that, I have tried to walk at least a couple of miles each day. I have had no problems with any exercise and know I should do more. Really have had no aftereffects from the surgery. If I were you, I would ease into excercise, perhaps talking to your doctor about it, and then try to increase your time spent exercising. As I am now 75, I find I need to do some kind of fitness program to keep from being stiff. Hope this helps a bit and the very best to you.

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@crhp194

Though I had an ascending aortic aneurysm, my story is much like yours. I too had open heart the aneurysm was discovered accidentally as I had no symptoms. It was about 6 cm. Had the surgery May 10, 2016. I did the cardiac rehab program at Mayos suggestion in my home town. After that, I have tried to walk at least a couple of miles each day. I have had no problems with any exercise and know I should do more. Really have had no aftereffects from the surgery. If I were you, I would ease into excercise, perhaps talking to your doctor about it, and then try to increase your time spent exercising. As I am now 75, I find I need to do some kind of fitness program to keep from being stiff. Hope this helps a bit and the very best to you.

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I had hoped that I would be eligible for cardiac rehab–checked with my insurance and various hospitals in the area about self pay rehab–the answer was still a no go. I have been walking but need to build up my lung strength. I feel that being monitored would be a good thing–since this is still so new and my blood pressure has not yet stabilized to under 130 systolic. I appreciate your insights and wish you well!

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Hi, I am told that I have an arterial infundibulum; But no one has bothered to tell me much, except not to worry. In the meantime, I think about my Mom who died when she bled out from an aneurysm, "in her back." That's really all I know. For the most part I am healthy, but have had a lot of headaches, lasting for more than a month now. After seeing the dentist, they had me do a MRI, & MRA test. Now I'm scheduled to see the physical therapist. I am wondering if I should be doing more? Any thoughts? LLouiseT

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Llouise T,
I hope you are seeing a Cardiologist. Ask the Cardiologist if you should be pre-medicating before going to the dentist. This is usually a large dose of antibotics before they work in your teeth to abate any bacteria from your mouth that may get into your blood stream and causing an infection. I have to do it every time before I go in for a cleaning or any dental work.

All the best.

Bruce
Texas

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My diastolic pressure goes from 50-120 at rest. My O2 rate drops to the 80s when I walk. EKG and sonogram and stress test are normal. Could this be an AA?

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I too have a 4.4 aneuysm. I am scheduled for my yearly checkup in May. I do not have chest pain but experience shortness of breath and tiredness. Should I be concerned?

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Hi everyone,

I'd like to invite you to join us today, Monday, April 29th at 12 p.m. CT for a video Q&A with Dr. Hector Michelena, cardiologist, Dr. Gabor Bagameri, cardiovascular surgeon, and Dr. Alberto Pochettino, cardiovascular surgeon, about watchful waiting for thoracic aortic aneurysms.

Simply click on the link below, for details and to take part in the video Q&A live.
https://connect.mayoclinic.org/webinar/video-qa-about-thoracic-aortic-aneurysms/

Drs. Michelena, Bagameri, and Pochettino will answer questions live. Post your questions before and during the broadcast.

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hi, jesse55 here with aortic aneurism. md's want to do something up thru groin pretty quick here.. next couple of weeks anyway… me sceeered

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@llouiset

Hi, I am told that I have an arterial infundibulum; But no one has bothered to tell me much, except not to worry. In the meantime, I think about my Mom who died when she bled out from an aneurysm, "in her back." That's really all I know. For the most part I am healthy, but have had a lot of headaches, lasting for more than a month now. After seeing the dentist, they had me do a MRI, & MRA test. Now I'm scheduled to see the physical therapist. I am wondering if I should be doing more? Any thoughts? LLouiseT

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same thing happened to my dad… but he did not know it was there as far as I know

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@kdh1

I have a question about after the AAA surgery, I had my first and only check one month after my surgery the Dr. Said. See you in 5 years . is this the normal amount of time between visits . in the repair he had to remove the aneurysm and sew up the open part of the aorta. Could the thread or material used break over time? Anyone that has had a AAA please let me know how. Often you saw the Dr. after surgery. Thank you kdh1

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ditto for me with this answer. mine is 5.4 now… found by accident in CT for UC.

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Hello. Here is my dx – a dr at mayo said watch and wait. So freaked out that depression, anxiety and insomnia has set in. Hopefully med will work soon as I cannot sleep or eat much and in a constant sweat. I’m on a cpap since2014and wondering if I have pulmonary hypertension as as I get breathless when I talk a lot and if interfering w sleep. Can’t walk far or fast.

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@beekb

Hello. Here is my dx – a dr at mayo said watch and wait. So freaked out that depression, anxiety and insomnia has set in. Hopefully med will work soon as I cannot sleep or eat much and in a constant sweat. I’m on a cpap since2014and wondering if I have pulmonary hypertension as as I get breathless when I talk a lot and if interfering w sleep. Can’t walk far or fast.

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Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now I am up to 4.5 cm. Cardiologist says cannot do anything until it reaches 5.0 -5.5. I also have mild to moderate regurgitation. Every time I go to the doctor I continue to worry every day but there’s nothing we could do. I have a lot of anxiety and I get palpitations all the time and I try not to think about it. But I know what you’re going through. I go every six months for a chest scan and echo cardio gram. I am on medication for anxiety but sometimes it doesn’t help when you keep thinking about it and getting the palpitations. Don’t worry we’re all in the same boat. Love to hear back from you

Liked by beekb

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@rory

Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now I am up to 4.5 cm. Cardiologist says cannot do anything until it reaches 5.0 -5.5. I also have mild to moderate regurgitation. Every time I go to the doctor I continue to worry every day but there’s nothing we could do. I have a lot of anxiety and I get palpitations all the time and I try not to think about it. But I know what you’re going through. I go every six months for a chest scan and echo cardio gram. I am on medication for anxiety but sometimes it doesn’t help when you keep thinking about it and getting the palpitations. Don’t worry we’re all in the same boat. Love to hear back from you

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Hi Rory thank u for yr reply. I’m not sure how to use these boards quite yet. I feel like mayo just dx and sent me away. My local providers are good so I will follow up. Maybe sooner . If I could get sleep I would feel better. I’m taking an antidepressant now (couple weeks) that worked in the past for anxiety and postpartum depression. I posted other info on a mental health board today as well -the reason I went to mayo in first place was a study for Nash nonalcoholic fatty liver disease where I got a Mre and a biopsy which answered some questions but left more if u want to read that. I just try to keep as busy as my fatigue allows. Thank you for your kindness. I see there’s a messages section maybe u could pm me and we can converse more. ❤️

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@rory

Hi. I was diagnosed seven years ago with ascending aorta dilation. I started at 4.1 now I am up to 4.5 cm. Cardiologist says cannot do anything until it reaches 5.0 -5.5. I also have mild to moderate regurgitation. Every time I go to the doctor I continue to worry every day but there’s nothing we could do. I have a lot of anxiety and I get palpitations all the time and I try not to think about it. But I know what you’re going through. I go every six months for a chest scan and echo cardio gram. I am on medication for anxiety but sometimes it doesn’t help when you keep thinking about it and getting the palpitations. Don’t worry we’re all in the same boat. Love to hear back from you

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Hi again. Anytime you want to talk or converse you can contact me. I used to teach high school Spanish that’s why I have Señora as my email. Just to give you some info about myself I am 67 my first name is Denise. Rory is my grandson and that’s why I use that for my name on this link. Email me anytime with any of your concerns. I try to keep busy babysitting I have four grandchildren. I think keeping active helps us forget and not to worry too much. But feel free to email me anytime. Would love to keep in touch with you

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