Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

@lov

How do we tell where the new messages are?

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Your e-mail will include the area of topic pull your intrest are up and read members comment. I have learned so Much

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Hi, my book started out to be a book on a "Woman doing commercial fishing with my husband. My husband died May 4, 1918 after 57 years of marriage. A friend told me I needed closer in the book for Bob. Well if I have to a ending for him, better have a beginning. So I started when I was a little girl. I starter with the year I was born. Then everything else started with the year anything happened... Brother was born 1934....1942 another brother...1944 anothre brother and so on till I arrived at 2019. Each year started with the year: then the information and so on. I ended the book in 2019. It is being proof reading by my daughter and she will get it printed in the next month. Nancy (shodrtshhot).

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I really like the format you used in your book. I'd call it a Lifeboat like they are now doing for foster kids to help them attempt to be normal and learn about their own history.

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I was diagnosed with afib and high blood pressure. I was put on a blood thinner, medicine to keep my heart from racing and two blood pressure medicines. I was told that my afib is permanent and has no cure. Has anyone been told this and should I get a second opinion on whether or not an ablation will help me? I am a former dancer and life long exerciser. I also had surgery to repair a hole in my heart at age six. I am 66 years old and this is the first time I've had trouble with my heart. I was also told that years of physical exercise and prior heart surgery probably predisposed me to the problems with my heart. Any help will be greatly appreciated.

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Hi @kates1221. Glad to see you again on Mayo Connect. You and I share the problems of A-fib and high blood pressure. I have several years "enjoying" the challenges involved and dealing with them with the help of a very capable medical team -- Internist, Nephrologist, Cardiologist, and Anticoagulation Specialist. None of them has told me "there is no cure" for A-fib OR hypertension, but they have said I should expect to be on medication, at least, until we find a therapy to stabilize my symptoms and carry on my life. I have three medications for hypertension (Carvedilol, Lisinopril, and Amiloride diuretic). I also take Coumadin, a "blood thinner" (or more properly an anticoagulant drug) to prevent formation of blood clots within my heart when its rhythm is disturbed and fails to move blood through promptly. My arrhythmic medication to modulate my heart rate is Carvedilol, a beta blocker. In my case, my medical team and I have asked each other about cardioversion and ablation and have decided each time that my symptoms and the risks don't make either treatment necessary right now. Send along any questions that occur to you and might prompt me for more information of use to you.

Finally, though, this one recommendation: Get a second opinion from a well-known, recognized authority on arrhythmia and how to treat it -- your state university medical clinic is one possibility. Have you discussed with your heart doctor the possibility of referral for a second opinion? Martin

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@kates1221

I was diagnosed with afib and high blood pressure. I was put on a blood thinner, medicine to keep my heart from racing and two blood pressure medicines. I was told that my afib is permanent and has no cure. Has anyone been told this and should I get a second opinion on whether or not an ablation will help me? I am a former dancer and life long exerciser. I also had surgery to repair a hole in my heart at age six. I am 66 years old and this is the first time I've had trouble with my heart. I was also told that years of physical exercise and prior heart surgery probably predisposed me to the problems with my heart. Any help will be greatly appreciated.

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Years of physical exercise predisposed you to heart problems??? Wow! I'm not a doctor and I don't even play one on TV, but I find that incomprehensible. Exercise IMHO probably predisposed you to living well until age 66 and even beyond. Who knows why these heart problems occur? My doctor has never told me why. I don't expect him to know why. Maybe it's genetic. Maybe it's not. It doesn't sound good to me to blame your dancing and exercise for this problem. I had a heart attack a year and a half ago and my doctor wanted me in a cardiac exercise program as soon as I was able, which was only a few weeks. I have A-fib. Have had it for years. I think the reason I'm in good shape now is because I exercise regularly at a gym. Yes, do get a second opinion.

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@shortshot80

Hi, my book started out to be a book on a "Woman doing commercial fishing with my husband. My husband died May 4, 1918 after 57 years of marriage. A friend told me I needed closer in the book for Bob. Well if I have to a ending for him, better have a beginning. So I started when I was a little girl. I starter with the year I was born. Then everything else started with the year anything happened... Brother was born 1934....1942 another brother...1944 anothre brother and so on till I arrived at 2019. Each year started with the year: then the information and so on. I ended the book in 2019. It is being proof reading by my daughter and she will get it printed in the next month. Nancy (shodrtshhot).

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^Thank you for the synopsis.Daughters are great. I have four. Who is publisimg your book?

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@eileena

I really like the format you used in your book. I'd call it a Lifeboat like they are now doing for foster kids to help them attempt to be normal and learn about their own history.

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At 90 yrs. old, I have a good grasp on who I am. I just need to get off my butt and do it.

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@dyannne

Years of physical exercise predisposed you to heart problems??? Wow! I'm not a doctor and I don't even play one on TV, but I find that incomprehensible. Exercise IMHO probably predisposed you to living well until age 66 and even beyond. Who knows why these heart problems occur? My doctor has never told me why. I don't expect him to know why. Maybe it's genetic. Maybe it's not. It doesn't sound good to me to blame your dancing and exercise for this problem. I had a heart attack a year and a half ago and my doctor wanted me in a cardiac exercise program as soon as I was able, which was only a few weeks. I have A-fib. Have had it for years. I think the reason I'm in good shape now is because I exercise regularly at a gym. Yes, do get a second opinion.

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I'm with you. That is a ridiculous response
I have always been very active, fit never sick a day in my life, scheduled a spine I ejection for my sciatica, got really nervous and went into afib!!! I have had afib since then on and off.dont take any drugs for it
Second opinion is a great idea

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@kates1221

I was diagnosed with afib and high blood pressure. I was put on a blood thinner, medicine to keep my heart from racing and two blood pressure medicines. I was told that my afib is permanent and has no cure. Has anyone been told this and should I get a second opinion on whether or not an ablation will help me? I am a former dancer and life long exerciser. I also had surgery to repair a hole in my heart at age six. I am 66 years old and this is the first time I've had trouble with my heart. I was also told that years of physical exercise and prior heart surgery probably predisposed me to the problems with my heart. Any help will be greatly appreciated.

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Kates.Sorry to hear of you recent heart problems.I do not have the extensive problem you have. I have a life time A-iFb and did not think much of it. My family physician suggest a blood thinner. I got warferin and was tested for levels on a periodic basis. But as I aged, now 90 years old, the use of a pace maker was suggested, My energy really increased after 60 demand St. Jude implant. It was simple and I don,t know it is there. This was done as a preventative of throwing a clot for a stroke. I had to switch to Eliquist blood thinner when warferin did not keep me in the groove. It works well for me two times a day. My reason to encourage is in exercise. I am a retired Physical Therapist. I have lots of spinal problems and need a walker. But,the story is, do not blame any heart problem on exercise. I exercise daily, take my walker to the mall to walk in the winter and am now finishing the first of the year physical Therapy referral. I hang inverted 2 times a week at 45 degrees. I will continue at $35. a month at a new spa. In addition, part of the treatment is seeing other people and chatting.My daughter graduated from Akron U. with a BA in Choreography. I know how much control and grace you struggled for as a Dancer. Your heart is stronger with your problem now then if you had not laid the background to live longer. I am a health nut. Google berries, nuts, honey with garlic, Himalayan pink salt satuation for hydrartion, apple cider vineager in organs and and intestinal tract, flaxseed oil and cottge cheese, steaming normal food and vegetables,. etc. & family me,bers died of cancer. Make a decision that now is the time to lower your blood pressure with good eating habits,( not diets), exercise, social contact the freedom from stressors. Stressors can be bad food, bad people, bad thoughts. Job, Solomon lived to be 140.yrs old Why can't I? Why am I not dead like the rest of my family? Execising, old style eating habit, not smoking, minimal alcohol, getting away by your self and being positive are part of the answer. I am sure other good people will come forward with excellent advice. Now is the time to listen to them. Good Luck! bill54321

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