1. < Neuropathy

B-6 vitamin danger!

Posted by Lynsorensen @lynsorensen, Dec 11, 2017

With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don't need him anymore! And I don't. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | Oct 23, 2018
In reply to @rjb1682 "Is anyone still on this thread?" + (show)
@rjb1682

Is anyone still on this thread?

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Hello @rjb1682, welcome to Connect. There are some active members in this discussion including @airialsmith, @parus, @arnrob and @nydiver59 and myself.

@rjb1682 do you have a question you are trying to get answered?

John

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pfbacon | @pfbacon | Oct 23, 2018
In reply to @parus "@johnbishop Thank you John. I am not scheduled for any follow-ups until the 6 month check-up...." + (show)
@parus

@johnbishop Thank you John. I am not scheduled for any follow-ups until the 6 month check-up. I see the pain specialist in February. I can ask him for input if he has the time. Always the feeling of "get them in, get them out" or like patients are being herded like cattle. Pay no mind unless one hits the ground and cannot get up. I won't try that technique. Just very discouraged with a low quality of life. Thing is I am retired (not by choice) and they have other patients that there is hope for in some way. Sounds like the depression talking and it is. Thing is I do not have a history of pain until 2009. Seems since I have mental health issues I am not being listened to and any of the structural problems cannot be fixed, Fibromyalgia meds do nothing but mess with my psyche. If a doctor cannot prescribe a pill to help I feel like my seeing one is pointless. I am not drug seeking, attention seeking or any of the other things that I have had hurled at me. I am whining and not my thing either. Discouragement sums it up. Yup, the 2 "D" words.
I also get asked when I see the therapist again. In short, tell the therapist. What is a therapist supposed to do for physical problems. Even the therapist says, "what am I supposed to do?". Suck it up old person your life is over and you are a waste of my time and skin.

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My psychiatrist said that "pain is depressing". That rings true, doesn't it ...
Peggy

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cathy514 | @cathy514 | Oct 24, 2018

what kind of cbd oil and cbd lotion I tried one for 50!dollars and it didn't help

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suzzangel02 | @suzzangel02 | Nov 28, 2018
In reply to @nydiver59 "Hi all, I’m new to the group and hope to find some answers. I was diagnosed..." + (show)
@nydiver59

Hi all, I’m new to the group and hope to find some answers. I was diagnosed in January with high levels of vitamin B6, per the lab sheet normal is 5.3 – 46.7 ug/L and I was at 93. I had been having burning sensations/pain on my hands, feet, face and sporadically on other areas for quite a while. I visited several doctors and finally ended up at an allergist office (he’s the first one to think to test for B6). He felt the B6 was causing peripheral neuropathy. His advice was to stop taking all vitamin supplements and protein shakes and retest in 3 weeks. I spent the last month drinking 90 oz of water per day and really trying to limit my B6 intake. Fast-forward to last week and the blood work came back with normal B6 levels, 22 ug/L. I guess the questions at this point are; how long does it take for the symptoms to resolve and what follow up should I be doing?

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Hi I'm new to this today. But I'd like to let everyone know my experience recently. I had breast cancer in 2015 did chemo and radiation and all this time I've had neuropathy in my feet and can't walk. And I mean I can't walk they are so bad. I recently went to a neurologist and had some blood work done. He told me that my B6 level was 292.8! He told me that the normal should run around 1:25. He told me that B6 causes nerve peripheral neuropathy!! So I was pleased to find this group I hope that everyone will go get a blood test on your B6. All this time I thought it was from the chemotherapy but now I think it is from B6 overdose. The only problem is is I don't know where I'm getting all the B6. I don't do fruit protein shakes or vitamins. I'd like to hear some comment and feedback

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suzzangel02 | @suzzangel02 | Nov 28, 2018

I reply to this thread lower below it's my first time on here so I was confused on how to reply. But I'd like everyone who is experiencing peripheral neuropathy, to read the comments below that I wrote. In short I would like to tell everyone that is taking B6 my neurologist told me that B6 causes peripheral neuropathy!! I trust his advice and I don't know how to lower my B6 because I don't know what is giving me this excessive B6. But I can barely walk my feet hurt so bad I have stopped working and going anywhere that requires a lot of walking please get your B6 checked it's a simple blood test and reply to this I would appreciate all the comments

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suzzangel02 | @suzzangel02 | Nov 28, 2018
In reply to @linnythepoo "Yikes! My oncologist prescribed 100 mg of vit B6 for my neuropathy! Has anyone heard of..." + (show)
@linnythepoo

Yikes! My oncologist prescribed 100 mg of vit B6 for my neuropathy! Has anyone heard of it helping neuropathy?

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This is so crazy to hear about. Just last week my neurologist told me B6 causes neuropathy. So why are our oncologist feeding it to us like candy. It is crazy. Rb6 level should be 125 or less! I just had mine done they just do a blood test and mine was 292.8 no wonder my feet are falling off

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Parus | @parus | Nov 29, 2018

This B6 thing seems to be appearing more and more. I am curious if it is because the body is not metabolizing B6 properly in some cases. When it comes to supplements many physicians are not well educated. My primary had bloodwork done and my B12 levels were a little high. She freaked. I also had a cholesterol check and had eaten only lentils the day prior.
I think for the most part a healthy diet is the key barring health issues preventing thus.
Off topic but the correct vitamin group.

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Mentor
John, Volunteer Mentor | @johnbishop | Nov 29, 2018

Hello @suzzangel02, welcome to Mayo Clinic Connect. There is a lot of information available about vitamin B6 toxicity. Here's one of the sites I've found that provides a good explanation.

Vitamin B6 Toxicity
-- https://www.easy-immune-health.com/vitamin-b6-toxicity.html

John

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micha | @micha | Dec 1, 2018
In reply to @johnbishop "@lynsorensen that's great news. Lots of info on B6 toxicity out there. This is one of..." + (show)
@johnbishop

@lynsorensen that's great news. Lots of info on B6 toxicity out there. This is one of the better sites I've found that puts it all together in an easy to understand way.

Vitamin B6 Toxicity:
http://www.easy-immune-health.com/vitamin-b6-toxicity.html
John

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Hi John I'm new to this recently diagnosed with prepheral neuropathy, don't know how to start a discussion on here.

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