B-6 vitamin danger!

Posted by Lynsorensen @lynsorensen, Dec 11, 2017

With the assistance of a neurologist at Mayo Clinic, I have almost completely eliminated the uncontrolled muscle spasms now. First and foremost: beware of taking multi-vitamin capsules that have B6 listed. B-6 overdosage (which is contained in every multivitamin I found in stores and on the internet) can cause loss of muscle control and spasms in some people. So can gluten found in many foods so now I am also gluten free. I now work out with a personal trainer 3 days a week and do water aerobics another 2 days. Got off gabapentin and also clonazepam. Using CBD oil capsules each morning (no more opioids or chemicals) and using a CBD topical ointment to rub on my leg muscles each night. He says I don’t need him anymore! And I don’t. No more shaking or muscle cramps or pain. Still a little numbness but that is receding also.

@parus

@johnbishop Thank you for the site referral. I am easily within the safety zone unless there are underlying symptoms causing neuropathy. Because of Depression/anxiety along with fibromyalgia I no longer mention any new symptoms. I see a specialist and it seems the only thing they see in my chart is depression. Think maybe it is there in red?

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I get why they would give it some attention, but if you have had depression for a long period of time, without the new symptom, it would seem to me that it is unlikely that the new symptom is directly related to your depression. I know I feel worse generally when I am in a low cycle with my depression, but is typically things I already have a problem with physically being a bit worse, but not new symptoms.

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@parus, I am right there with you. My current psych does not want to discuss new meds, blames my anxiety and depression on my chronic illness and the opiates I take. I am attempting to see a new one, but all of the good ones in my area are scheduled 5-6 months out. The person I most trust with a referral gave me one and they are scheduled thru March with a waiting list of 162 now that I am on it. It is hard to not be discouraged when the thing you have some hope for will not happen for at least six months. I’m not getting any younger and the longer I stay uninspired to exercise or anything else, the longer the road back.

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@gmanoo7 So true. It took me 6 months to get into a qualified therapist and I can say it was worth the wait. I am not getting any younger either and the older we get the longer the road back. I did an 8 minute exercise with Don Fiore on youtube this morning. It is a start-again. A mess up with a new PCP and thyroid dosage was a set back and now I am endeavoring to try getting some muscle tone back as well as shedding the weight from the incorrect dosage. continuing to be angry because the PCP would not listen gets me nowhere and I am only harming myself by hanging onto something I had no control over. Setbacks caused by the ignorance of others doth keep me rankled. Working on it by painting and keeping busy. Plan to meet with Don Fiore again in the morning. I do Tai Chi and Qigong as it is low impact. Always was an active person and now I feel rather as a sloth.
So discouraging being on a waiting list. Maybe we both need to try and tap into that tiny bit of motivation and see if it can increase. Need to start some place.
Nothing to do with the topic again…Can recommend drinking cranberry juice-cold-pressed w/ no sugar added. I buy Lakewood brand and I definitely need to dilute it. A quart will last me 2 wks. Runs around $10/qt.

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@parus

@johnbishop Thank you John. I am not scheduled for any follow-ups until the 6 month check-up. I see the pain specialist in February. I can ask him for input if he has the time. Always the feeling of “get them in, get them out” or like patients are being herded like cattle. Pay no mind unless one hits the ground and cannot get up. I won’t try that technique. Just very discouraged with a low quality of life. Thing is I am retired (not by choice) and they have other patients that there is hope for in some way. Sounds like the depression talking and it is. Thing is I do not have a history of pain until 2009. Seems since I have mental health issues I am not being listened to and any of the structural problems cannot be fixed, Fibromyalgia meds do nothing but mess with my psyche. If a doctor cannot prescribe a pill to help I feel like my seeing one is pointless. I am not drug seeking, attention seeking or any of the other things that I have had hurled at me. I am whining and not my thing either. Discouragement sums it up. Yup, the 2 “D” words.
I also get asked when I see the therapist again. In short, tell the therapist. What is a therapist supposed to do for physical problems. Even the therapist says, “what am I supposed to do?”. Suck it up old person your life is over and you are a waste of my time and skin.

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OMG i so hear and feel your pain. It is exactly how I feel. I am holding on by a thread still working but off thank goodness due to the weather. I spent two hours this morning on the phone trying to get an appointment with a specialist in Boston only to be told first available is 2019 a year out…But from experience I can tell you the meds suck. I had spinal surgery last year didnt work I’m worse. The surgeon said “It’s a crap shoot” Well you werent saying that BEFORE you got paid. Todays’ Physicians should be ashamed of them selves. Depressed? You have good reason to be. Today’s Dr’s are nothing but drug pushers that’s all they know. Wanna kill yourself? “Call the hotline they will help..yeah bullshit

Liked by barbarn

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I keep OJ around to deal with hypoglycemic events, but don’t have them regularly so fortunate that my wife keeps it from spoiling. Fruit juice even with no sugar added are all very high in carbs and are not on a diabetics typical diet. I do eat quite a bit of fruit as I can handle the carbs in most fruits. I will have to check out the youtube videos you reference.

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Hi all, I’m new to the group and hope to find some answers. I was diagnosed in January with high levels of vitamin B6, per the lab sheet normal is 5.3 – 46.7 ug/L and I was at 93. I had been having burning sensations/pain on my hands, feet, face and sporadically on other areas for quite a while. I visited several doctors and finally ended up at an allergist office (he’s the first one to think to test for B6). He felt the B6 was causing peripheral neuropathy. His advice was to stop taking all vitamin supplements and protein shakes and retest in 3 weeks. I spent the last month drinking 90 oz of water per day and really trying to limit my B6 intake. Fast-forward to last week and the blood work came back with normal B6 levels, 22 ug/L. I guess the questions at this point are; how long does it take for the symptoms to resolve and what follow up should I be doing?

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@nydiver59

Hi all, I’m new to the group and hope to find some answers. I was diagnosed in January with high levels of vitamin B6, per the lab sheet normal is 5.3 – 46.7 ug/L and I was at 93. I had been having burning sensations/pain on my hands, feet, face and sporadically on other areas for quite a while. I visited several doctors and finally ended up at an allergist office (he’s the first one to think to test for B6). He felt the B6 was causing peripheral neuropathy. His advice was to stop taking all vitamin supplements and protein shakes and retest in 3 weeks. I spent the last month drinking 90 oz of water per day and really trying to limit my B6 intake. Fast-forward to last week and the blood work came back with normal B6 levels, 22 ug/L. I guess the questions at this point are; how long does it take for the symptoms to resolve and what follow up should I be doing?

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Hi @nydiver59, I merged your message with an existing discussion about Vitamin B6 toxicity. If you click VIEW & REPLY in the email notification, you can read back through the discussion to-date. In addition to the information @johnbishop shared with you, I'm tagging @lynsorensen @gman007 and @parus to see if they may have experience to share about how long it takes for symptoms to resolve after getting B6 levels back to normal and appropriate follow-up.

NYDiver, congrats on getting B6 levels back within range.

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@linnythepoo

Yikes! My oncologist prescribed 100 mg of vit B6 for my neuropathy! Has anyone heard of it helping neuropathy?

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I am also taking b6 as per my oncologist for neuropathy due to chemotherapy and I have noticed no change at all.

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@johnbishop @njcarolnjn in regards to your neuropathy, are you still experiencing symptoms? Do you know your calcium and/or iron levels? I have found that low dose calcium brings down B6 levels and improves neuropathy that is induced by elevated B6 levels.

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@melissaw

@johnbishop @njcarolnjn in regards to your neuropathy, are you still experiencing symptoms? Do you know your calcium and/or iron levels? I have found that low dose calcium brings down B6 levels and improves neuropathy that is induced by elevated B6 levels.

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Thanks @melissaw — I still have the numbness but it's not progressing since I've been taking supplements. I've had all the blood panels taken and all are within normal range.
John

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I am new to this community. Are there still members following this B6 discussion?

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@airialsmith

I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

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Hi @airialsmith, welcome to Connect. I know vitamin b6 toxicity can be hard to pin down. I found a website with a lot of good information that may be helpful to you.

Find Out the Real Reason For Vitamin B6 Toxicity
https://www.easy-immune-health.com/vitamin-b6-toxicity.html

@airialsmith have you ever been tested for the MTHFR gene? The MTHFR gene is extremely common and can lead to a problem processing the B Vitamins.

Mayo Clinic is very good at diagnosing health issues that are difficult to diagnose. If you would like to seek help from Mayo Clinic, you can contact one of their appointment offices. The contact information for Minnesota, Arizona and Florida can be found here:

Mayo Clinic Contact Information: http://mayocl.in/1mtmR63.

John

Liked by Lisa Lucier

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I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

Liked by Parus

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@airialsmith

I have been diagnosed with vitamin b6 toxicity with four very toxic levels drawn. Not coming from anything I take and I don't take supplements. We can't get the level down no matter what we try. I have electric shocks, numbness, pins and needles and much more. Any suggestions? Thinking about going to the Mayo Clinic and need to know if they can help? I have been to two neurologists / endocrinolgists / general dr.'s / ob-gyn's and had over 200 blood tests drawn. The idea was Hypophosphatasia – but I had a bone scan and completely normal and a detailed dental exam for bone less and completely normal. Any help is greatly appreciated. Thank you!

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Hi, @airialsmith – I would like to join @johnbishop in welcoming you to Mayo Clinic Connect. You may notice that I merged your discussion with an existing discussion titled, "B-6 vitamin danger." I moved it here so you could read through some of the other members' posts on Vitamin B6 toxicity and interact with some of them.

Hoping that members like @gman007 @parus @arnrob @nydiver59 who have talked about Vitamin B6 toxicity will join in to share their experiences and offer any thoughts on the difficulties getting the level down no matter what you try, and dealing with symptoms of electric shocks, numbness, and pins and needles.

I also would echo what @johnbishop said about considering contacting Mayo Clinic about the potential of being seen.

How are you managing your symptoms currently, @airialsmith?

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@airialsmith Please keep posting as to what you find out. This sounds like it would be rather frightening.

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