Infundibulum in my brain: What are treatment options?

Hello @kimbo

The additional information you provided was helpful to me in finding some other Members for you to talk with. Some other Members of Mayo Clinic Connect have also posted about small vessel disease, I hope that they will join the conversation and offer some of their experiences, @swenglert @lmg1128 @sue60. Here is the link to a discussion on Small Vessel Disease, perhaps you can relate to some of the posts here, https://connect.mayoclinic.org/discussion/i-have-vascular-small-vessel-disease-that-so-far-just-has-caused/?pg=3#comment-61152.

Here is a Mayo website that gives some more medical information that you might find useful, http://www.mayoclinic.org/departments-centers/neurology/overview/specialty-groups/cerebrovascular-diseases-critical-care-group/overview.

Were you diagnosed with small vessel disease at the same time as you were diagnosed with Anterior Communicating Artery Infundibulum?

Teresa

I had an episode of syncope on 01/29/2019 where I lost vision and blacked out for approximately 45 minutes. I had had a mild migraine that day and then a awful migraine that has lasted off and on since then (almost a month). I'm on a medication to manage the migraines and have gone about 4 days without migraine since the syncope episode. During the two weeks after the syncope episode, particularly about 1 week after, I started to notice issues with my memory since the episode on the 29th. I completed a brain MRI without contrast on 01/31/19 where a brain malformation was identified on 02/04 MRI with contrast, ended up being a capillary entanglesia (brain birth mark) in my right lateral pons. Contrast MRI also revealed what appeared to be a small 2mm ICA Right Subchoid aneurysm. My primary care physican told me it was nothing to worry about and contemplated referring me to neurology. Around 02/09 I began having more significant issues with memory, difficulty speaking and complete facial numbness. I was evaluated at the hospital and they noted weakness on both sides of my body, more predominantly on my left. They gave me an injection of medication for complex/hemipleagic migraine. This made the majority of symptoms greatly reduced after approximately 45 minutes. However, intense pressure (felt like a balloon) remained behind my right eye. Spoke with neurosurgeon on 02/19 (finally) and he is going to have me complete an angiogram because he is concerned that it could be an infundibulum, not an ICA aneurysm.

Additional information/family history: My 3.5 year old daughter has a brain malformation (unknown), they previously thought it was an AVM. However, they are thinking it could be a CVM. Within 24 hours of birth she presented with seizures. MRI revealed that she had a stroke. They have completed several MRI's since then and are now doing them annually (she will have another one in April when she is 4) but the area has shown up unclear on past MRIs for them to make an official determination of the type of malformation that she has that caused her to have a stroke.

I am completely lost. During the most abnormal migraine of my life 3 weeks ago, I was given an mri. An infibulum was found. My migraine continues on and off for 21 days now. I have strange neurological symptoms like numbness on one side and terrible cognitive issues like never before, yet my Neurologist insists I don't need to be seen again for 6 months and the symptoms are all due to a regular migraine - completely unrelated to the infibulum. I have family history of stroke and aneurysm. This is not a "normal" migraine for me. Am I being an alarmist or is a second opinion warranted here? I just feel so defeated after 2 er visits and 2 Neuro appts.. they just say its all normal. It will go away. In the meantime, ive lost 3 weeks of my life.

I had a sudden onset of headaches and pressure around my left eye. I brought this up at an already scheduled annual exam. My doctor recommended I have an MRI/MRA. The findings were: Head MRA: 4 mm left internal carotid artery ophthalmic segment
saccular aneurysm. Brain MRI: Normal.

From this, I met with the neurology department and completed a CT with dye. Their findings were: Redundant left ophthalmic artery infundibular origin versus small aneurysm. Catheter angiography would be helpful for more definitive characterization.

I am planning on having my Angiogram on Friday to hopefully help determine whether this is an aneurysm or not. In the mean time, I also just found out that my sister had an MRA and her findings were that she has either a small aneurysm or infundibulum nearest the carotid artery.

My questions are: can an infundibulum lead to an aneurysm and are infundibula genetic or hereditary?

Thanks in advance!

I had a sudden onset of headaches and pressure around my left eye. I brought this up at an already scheduled annual exam. My doctor recommended I have an MRI/MRA. The findings were: Head MRA: 4 mm left internal carotid artery ophthalmic segment
saccular aneurysm. Brain MRI: Normal.

From this, I met with the neurology department and completed a CT with dye. Their findings were: Redundant left ophthalmic artery infundibular origin versus small aneurysm. Catheter angiography would be helpful for more definitive characterization.

I am planning on having my Angiogram on Friday to hopefully help determine whether this is an aneurysm or not. In the mean time, I also just found out that my sister had an MRA and her findings were that she has either a small aneurysm or infundibulum nearest the carotid artery.

My questions are: can an infundibulum lead to an aneurysm and are infundibula genetic or hereditary?

Thanks in advance!

I had an episode of syncope on 01/29/2019 where I lost vision and blacked out for approximately 45 minutes. I had had a mild migraine that day and then a awful migraine that has lasted off and on since then (almost a month). I'm on a medication to manage the migraines and have gone about 4 days without migraine since the syncope episode. During the two weeks after the syncope episode, particularly about 1 week after, I started to notice issues with my memory since the episode on the 29th. I completed a brain MRI without contrast on 01/31/19 where a brain malformation was identified on 02/04 MRI with contrast, ended up being a capillary entanglesia (brain birth mark) in my right lateral pons. Contrast MRI also revealed what appeared to be a small 2mm ICA Right Subchoid aneurysm. My primary care physican told me it was nothing to worry about and contemplated referring me to neurology. Around 02/09 I began having more significant issues with memory, difficulty speaking and complete facial numbness. I was evaluated at the hospital and they noted weakness on both sides of my body, more predominantly on my left. They gave me an injection of medication for complex/hemipleagic migraine. This made the majority of symptoms greatly reduced after approximately 45 minutes. However, intense pressure (felt like a balloon) remained behind my right eye. Spoke with neurosurgeon on 02/19 (finally) and he is going to have me complete an angiogram because he is concerned that it could be an infundibulum, not an ICA aneurysm.

Additional information/family history: My 3.5 year old daughter has a brain malformation (unknown), they previously thought it was an AVM. However, they are thinking it could be a CVM. Within 24 hours of birth she presented with seizures. MRI revealed that she had a stroke. They have completed several MRI's since then and are now doing them annually (she will have another one in April when she is 4) but the area has shown up unclear on past MRIs for them to make an official determination of the type of malformation that she has that caused her to have a stroke.

Hello I'm new to this blog and was just diagnosed with a 8mm aneurysm left intracranial artery, I was referred by my vasuclar surgeon to see a neurologist but could not get an appointment due to the holiday so I have to call back tomorrow. It all started with a lump on my left carotid artery and my ppo sent me to a vascular surgeon who ordered a ct scan of my neck and a cta of my brain. The lump showed a 3.3 cm ectasia of the aortic root. I have no idea what any of this means. I did some research and because of my age, 72 and family history by brother also has an aneurysm. I seem to be a candidate for a procedure known as coiling. I also took a fall three years ago and hit my left temple on my night stand and passed out was taken to the ER. They did a CT scan but it did not show anything then. I'm so scared I feel like a walking time bomb!!