Infundibulum in my brain: What are treatment options?

Posted by kimbo @kimbo, Aug 31, 2017

Diagnosed with 2 mm Anterior Communicating Artery Infundibulum. Any advice is appreciated.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases Support Group.

I have been diagnosed with a 2mm. infundibulum, the Neurologist told me it's different than aneurysm. May the infundibulum be treated? I don't have headaches, but I'm very anxious person, I will have a new CTSC and MRI at the beginning of 2021 the Neurologist will check how it's going.

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@mirthy21

I have been diagnosed with a 2mm. infundibulum, the Neurologist told me it's different than aneurysm. May the infundibulum be treated? I don't have headaches, but I'm very anxious person, I will have a new CTSC and MRI at the beginning of 2021 the Neurologist will check how it's going.

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Hi @mirthy21, welcome to Mayo Clinic Connect. I can understand your concern.

The pituitary gland, located at the base of the brain, is connected to the hypothalamus by a small stem called the infundibulum (or pituitary stalk). Infundibular dilatations (IFDs) are conical, funnel-shaped pouches at the origin of cerebral arteries, and can be difficult to distinguish from an aneurysm. According to this journal article, "the dilatation should be considered as a possible aneurysm only when it measures more than 3 mm in diameter." https://pdfs.semanticscholar.org/6b3b/ce7eae2263f123756c1fd3b27cf087d64abe.pdf

I moved your question about whether an infundibulum can be treated to this existing discussion where members like @kimbo @angie4 @kariulrich @lilcountry @kmaureenc21 @hopeful33250 and talking about options.

It sounds like your neurologist is actively monitoring the infundibulum for the time being. Were any treatment approaches discussed?

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@bluerose72

Hello I'm new to this blog and was just diagnosed with a 8mm aneurysm left intracranial artery, I was referred by my vasuclar surgeon to see a neurologist but could not get an appointment due to the holiday so I have to call back tomorrow. It all started with a lump on my left carotid artery and my ppo sent me to a vascular surgeon who ordered a ct scan of my neck and a cta of my brain. The lump showed a 3.3 cm ectasia of the aortic root. I have no idea what any of this means. I did some research and because of my age, 72 and family history by brother also has an aneurysm. I seem to be a candidate for a procedure known as coiling. I also took a fall three years ago and hit my left temple on my night stand and passed out was taken to the ER. They did a CT scan but it did not show anything then. I'm so scared I feel like a walking time bomb!!

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Hello @bluerose72,

Several months ago you posted about seeing a vascular surgeon regarding a 3.3 cm ectasia of the aortic root. I was just wondering how you are doing now. Did you have the coiling procedure that you discussed in your post?

I look forward to hearing from you. Will you post an update when it is convenient?

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I had a brain aneurysm clipped 11 years ago and at that time I was also diagnosed with an infundibulum on another artery. Should I see a Neurosurgeon for follow ups or is there another Dr that handles the follow ups?

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@lynncarol

I had a brain aneurysm clipped 11 years ago and at that time I was also diagnosed with an infundibulum on another artery. Should I see a Neurosurgeon for follow ups or is there another Dr that handles the follow ups?

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@lynncarol I have a few questions for you.

Have you been following up with a neurosurgeon since the aneurysm was repaired 11 years ago? Have you had any imaging done (CT angiography, for instance) since the infundibulum was diagnosed 11 years ago? I'm asking this because I'm wondering if the neurosurgeon has noted any change during that time period. And are you having any symptoms now that leads you to ask this question?

We aren't medical professionals on Mayo Clinic Connect but we can provide support and help you to make your decisions with the information that you have. If this were me, and I had not seen a neurosurgeon over the past several years I would start with my primary care provider and ask this question. This is the physician who can help figure out the specialist that would be the best option for you. I'm thinking this would like be a neurosurgeon and your primary care provider can make a referral for you.

Do you have a primary care physician you can talk to about this?

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@lynncarol

I had a brain aneurysm clipped 11 years ago and at that time I was also diagnosed with an infundibulum on another artery. Should I see a Neurosurgeon for follow ups or is there another Dr that handles the follow ups?

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Hello @lynncarol and welcome to Mayo Clinic Connect. I see that @naturegirl5 has joined you to ask some follow up questions in support of question.

You will notice that I have moved your post into an existing discussion on a similar topic, which you can now find here:
- Infundibulum in my brain: What are treatment options?: https://connect.mayoclinic.org/discussion/infundibulum-in-my-brain/

I will let you respond to @naturegirl5 but would also add in that I wonder if you have shared this with your primary care doctor to see if a referral is something he/she may be able to assist you with?

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Hello, I was just diagnosed with an infudulibum of the PiCA right carotid via a cerebral angiography, I had a CT scan with contrast to review what was thought to a right carotid aneurysm of the PiCA right carotid after having the worst headache of my life back on June 27th 2018. For years I was told this was an aneurysm & when I turned 61 this past April my old neurologist in NY said we needed to another angiogram to see how things were going. I had since moved out of state & scheduled the cerebral angiogram at Prisma Health in Columbia SC about a 90 minute drive from where I now live. Everything went great from the initial visit to the staff to the procedure. I was overjoyed when the Neurosurgeon said the following day that it was not an aneurysm with almost no chance of rupture & that we need to just need to monitor for growth as it had grown a millimeter and half in just one year. But if he's not worried I will not be either. I am wondering though what if it does get larger? He said it is a benign growth to put it in layman's terms. I did have a benign growth ages ago back in 1985 bordering my inner & brain of which I has to have a radical mastoidectomy after my son was born as I was pregnant with him when it was discovered after a blood lot fell out of my left ear. I'm wondering if these benign growths are related,like are people prone to benign vessel growths

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@angie4

I am completely lost. During the most abnormal migraine of my life 3 weeks ago, I was given an mri. An infibulum was found. My migraine continues on and off for 21 days now. I have strange neurological symptoms like numbness on one side and terrible cognitive issues like never before, yet my Neurologist insists I don't need to be seen again for 6 months and the symptoms are all due to a regular migraine - completely unrelated to the infibulum. I have family history of stroke and aneurysm. This is not a "normal" migraine for me. Am I being an alarmist or is a second opinion warranted here? I just feel so defeated after 2 er visits and 2 Neuro appts.. they just say its all normal. It will go away. In the meantime, ive lost 3 weeks of my life.

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At first, I thought I had an ear problem coz i my left ear always muffled and had a ringing sound. they tested my ear and it was fine so the doctor just cleaned it. The. I keep having numbness on my left face and cognitive issues same as yours I thought I was having a heart attack. But I went to see a neurologist. He ordered an MRI and they saw a white matter on the left side of my brain so he ordered an MRI then that's time they saw a funnel-looking shape and I was diagnosed with pom infundibulum 2mm. The doctor didn't give me anything he said I'm good and don't need to be seen after 6 months and we will just keep monitoring. I just noticed that every time I eat healthy the left side of my brain feels ok but when I eat badly a headache and a funny feeling on the left side of my face and ear. Do you have any follow-up with your doctor? If yes. What's the prognosis?

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