Infundibulum in my brain

Posted by kimbo @kimbo, Aug 31, 2017

Diagnosed with 2 mm Anterior Communicating Artery Infundibulum. Any advice is appreciated.

@kmaureenc21

I had a sudden onset of headaches and pressure around my left eye. I brought this up at an already scheduled annual exam. My doctor recommended I have an MRI/MRA. The findings were: Head MRA: 4 mm left internal carotid artery ophthalmic segment
saccular aneurysm. Brain MRI: Normal.

From this, I met with the neurology department and completed a CT with dye. Their findings were: Redundant left ophthalmic artery infundibular origin versus small aneurysm. Catheter angiography would be helpful for more definitive characterization.

I am planning on having my Angiogram on Friday to hopefully help determine whether this is an aneurysm or not. In the mean time, I also just found out that my sister had an MRA and her findings were that she has either a small aneurysm or infundibulum nearest the carotid artery.

My questions are: can an infundibulum lead to an aneurysm and are infundibula genetic or hereditary?

Thanks in advance!

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Hi, @kmaureenc21 – how did things go with your angiogram? How have your headaches been lately?

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@kmaureenc21

I had a sudden onset of headaches and pressure around my left eye. I brought this up at an already scheduled annual exam. My doctor recommended I have an MRI/MRA. The findings were: Head MRA: 4 mm left internal carotid artery ophthalmic segment
saccular aneurysm. Brain MRI: Normal.

From this, I met with the neurology department and completed a CT with dye. Their findings were: Redundant left ophthalmic artery infundibular origin versus small aneurysm. Catheter angiography would be helpful for more definitive characterization.

I am planning on having my Angiogram on Friday to hopefully help determine whether this is an aneurysm or not. In the mean time, I also just found out that my sister had an MRA and her findings were that she has either a small aneurysm or infundibulum nearest the carotid artery.

My questions are: can an infundibulum lead to an aneurysm and are infundibula genetic or hereditary?

Thanks in advance!

Jump to this post

Hello @kmaureenc21,

As it has been a while since you last posted about seeing a doctor regarding a possible aneurysm, I was thinking about you and wondering about the outcome of that appointment.
What type of treatment was suggested? I hope you are feeling better now.

Liked by Lisa Lucier

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@sam89

I had an episode of syncope on 01/29/2019 where I lost vision and blacked out for approximately 45 minutes. I had had a mild migraine that day and then a awful migraine that has lasted off and on since then (almost a month). I'm on a medication to manage the migraines and have gone about 4 days without migraine since the syncope episode. During the two weeks after the syncope episode, particularly about 1 week after, I started to notice issues with my memory since the episode on the 29th. I completed a brain MRI without contrast on 01/31/19 where a brain malformation was identified on 02/04 MRI with contrast, ended up being a capillary entanglesia (brain birth mark) in my right lateral pons. Contrast MRI also revealed what appeared to be a small 2mm ICA Right Subchoid aneurysm. My primary care physican told me it was nothing to worry about and contemplated referring me to neurology. Around 02/09 I began having more significant issues with memory, difficulty speaking and complete facial numbness. I was evaluated at the hospital and they noted weakness on both sides of my body, more predominantly on my left. They gave me an injection of medication for complex/hemipleagic migraine. This made the majority of symptoms greatly reduced after approximately 45 minutes. However, intense pressure (felt like a balloon) remained behind my right eye. Spoke with neurosurgeon on 02/19 (finally) and he is going to have me complete an angiogram because he is concerned that it could be an infundibulum, not an ICA aneurysm.

Additional information/family history: My 3.5 year old daughter has a brain malformation (unknown), they previously thought it was an AVM. However, they are thinking it could be a CVM. Within 24 hours of birth she presented with seizures. MRI revealed that she had a stroke. They have completed several MRI's since then and are now doing them annually (she will have another one in April when she is 4) but the area has shown up unclear on past MRIs for them to make an official determination of the type of malformation that she has that caused her to have a stroke.

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Hello @sam89,

Last year you posted about health concerns for both you and your daughter. How are you doing? Have you had any treatments that have helped the symptoms you were experiencing?

Liked by Lisa Lucier

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