Cerebral Small Vessel Disease

Posted by sue60 @sue60, Apr 11, 2016

I have vascular small vessel disease that so far just has caused a severe loss of balance. I walk with a cane, but it is getting harder. Likewise exercise is not easy. I still drive short distances. I feel perfectly normal lying down and ir is so much easier to do that. The sad part is I don’t really see anything that is going to end this as otherwise I am healthy. I know there are many worse things. Does anyone else have this and how are you coping?

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases group.

Welcome to Connect @bellisima. I moved your message to this discussion thread in the Brain & Nervous System group so that you could meet other members talking about Cavernous Malformation. Please meet @jeans and @jc2buds.

@bellisima, when were you diagnosed with Cavernous Malformation and how are you doing today?

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I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last Saturday due to severe headache.

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@bellisima

I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last Saturday due to severe headache.

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Is that the same thing as small vessel disease of the brain?

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@bellisima

I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last Saturday due to severe headache.

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Hello Bellisima,
I was recently diagnosed with a cerebral cavernous malformation in the right temporal lobe. I had what I thought were migraines for years. I’ve blacked out too but I imagine they were actually small seizures. I go into Mayo Monday to have it checked out better. I’m really anxious to see what they have to say.
Where are your cavernous malformations? Do you like your doctors. How are you feeling on a day to day basis?

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@bellisima

I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last Saturday due to severe headache.

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Im niot sure what the malfirmation are my husband has white matter disease his motor skills have been affected the most i guess most of the doctors we’ve seen are ok they dont offer us mush advice it seems like you have to figure things out for yourself

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@bellisima

I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last Saturday due to severe headache.

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On a day to day basis he doesnt spend to much time on his feet because his balance is bad and since he sits all the time he tires easy when hes on his feet he doesnt talk to me about how he feels other than to say when hes on his feet he feels like hes swaying even if he doesnt look like he is he gets agitated easily

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@bellisima

I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last Saturday due to severe headache.

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I wonder too…… So many of these things are similar…

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@bellisima

I was diagnosed seven month ago, with 6 cavernous malformation, I went to the ER last Saturday due to severe headache.

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that’s frustrating.

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I have the bigger on the left frontal lobe, but when I had the MRI done the doctor told me that I have in 6 in total so the bigger one is to deep into my brain, can’t do surgery.

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@bellisima

I have the bigger on the left frontal lobe, but when I had the MRI done the doctor told me that I have in 6 in total so the bigger one is to deep into my brain, can’t do surgery.

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Thats what we were told that it is down deep in the brain nothing can be down

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Thank you for your input so much of my husbands problems are listed as small vessel diease of the brain and poly neruophathy ill defined which i take that as meaning they dont have a clue whats wrong so frustrating

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@jc2buds

Thank you for your input so much of my husbands problems are listed as small vessel diease of the brain and poly neruophathy ill defined which i take that as meaning they dont have a clue whats wrong so frustrating

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Google Prevention and management of Cerebral Small Vessel Disease. It is the most current info I have found so far. Good luck

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