It seems like everytime I see a medical practitioner...

Posted by pataystyl @pataystyl, May 17 4:20pm

It seems like everytime I visit medical practitioner......they get overwhelmed. ... Has anyone experienced this? Recently, I ask for a physicians statement for disability and they scattered like cats... LOL..

No one wants to deal with it... .. So over the medical community at this point.

In addition, I struggle getting to dr appoints due to my CFS and poor sleep.. I find that the medical establishment, businesses etc.. have no grace for people with chronic illness or disabilities... They get easily annoyed. Whats crazy is I rarely miss Dr appointments if any. But the one time I do they are so upset. You would think they would understand....Anyone else experience this?

But I am doing better after 6 years... Seeing a chronic pain therapist and a somatic therapist has helped a great deal.. Thanks for reading.. Sending support and good energy to all of you.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for diverdown1 @diverdown1

I experienced this several times. I just went back to my PCP to get blood work. They are dumbfounded however, the difference is that they realize that LC is real. It is terribly frustrating. I also applied for disability two years ago and was turned down. I have applied again. We will see. This is a very strange, frustrating, and maddening virus. This support group is the only place I have found where people understand, offer ideas, hope and encouragement.

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Hi@diverdown1. Came back this morning after busier life required away for less reading typing voice possible crash know you are very aware. Just wanted to share how much you are appreciated now for your efforts for all here and no doubt you will help so many more in so many different ways upon graduating! Continued quickest healing journey to you🌈

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Profile picture for pataystyl @pataystyl

@robbie81 Agreed.. Grateful for the LC facebook communities. How did you get LC? I didn't think people were still getting it this far out from the pandemic. I am so sorry.

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@pataystyl
I got Covid last summer. I was fine for 6 weeks after Covid was gone. Then the fatigue hit me hard. Then the Covid symptoms started displaying their miserable leftovers and I knew what I was dealing with without knowing how to address it. I'm almost 82, living alone, and I'm having a real struggle taking care of myself. Sleep is the worst problem. When I get a rare 7 hours of sleep, I feel so much better. Currently, I'm only getting 3-5 hours a night.

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I was told that we don't qualify for disability because it's not a "permanent" condition. And getting sick doesn't qualify you for unemployment either. Everyone I spoke to told me to call the Salvation Army.

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Profile picture for law59 @law59

Hi@diverdown1. Came back this morning after busier life required away for less reading typing voice possible crash know you are very aware. Just wanted to share how much you are appreciated now for your efforts for all here and no doubt you will help so many more in so many different ways upon graduating! Continued quickest healing journey to you🌈

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@law59 I just saw this. I graduated 8/15/2026. I am now on the hunt for a job, remote if possible as I have no idea how I will function daily. It is frightening. I am running out of money. I did apply for SS disability but I am not expecting it. Thank you for the reply!

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Profile picture for truwomandi @truwomandi

I am giving up running from one specialist to another who orders tests, says nothing found in the tests. I can't do anything but sit in my living room chair. All other activities are out. I get groceries delivered. I am tired of copays that do nothing, I have had my hopes up that I will be better next week, but that never happens.
I am ready to call it all quits.
I can't understand why there is nothing to fix the symptoms of LC

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@truwomandi MORE I had a video chat with the doctor today, It looks like he was talking with someone else grr I am going to write soon, He did say that long covid is very rare

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Dont listen to him there are millions of us... Idk what he is smoking.... There are so many people that have it and dont know they have it!!! I cant tell you how many people and friends I have talked to that think they have it after hearing my symptoms. The government doesnt want to acknowledge it. Just shove it under rug

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Profile picture for diverdown1 @diverdown1

@law59 I just saw this. I graduated 8/15/2026. I am now on the hunt for a job, remote if possible as I have no idea how I will function daily. It is frightening. I am running out of money. I did apply for SS disability but I am not expecting it. Thank you for the reply!

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Hi @diverdown1. Hope ok I be a cheerleader for you. I have no idea where anyones life is or where its meant to go yet you have gotten thru by each minute, hour, day and accomplished what some healthy people cannot and graduated! I have no doubt you will find that job that allows you income to move on achieving more fulfilling goals. Quickest healing to you while youre doing that🌈

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Profile picture for mountainmarge @mountainmarge

I was told that we don't qualify for disability because it's not a "permanent" condition. And getting sick doesn't qualify you for unemployment either. Everyone I spoke to told me to call the Salvation Army.

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Here is what I found when I asked the google al about LC disability (bear in mind that ai can be wrong):

Yes, you can get disability for long COVID. It is recognized as a potential disability under the Americans with Disabilities Act (ADA) if your symptoms substantially limit a major life activity, and you can qualify for financial benefits if your condition prevents you from working for at least 12 months.

Legal and Financial ProtectionsCivil Rights (ADA): Federal guidance establishes that long COVID is a physical or mental impairment under the ADA, meaning you may qualify for reasonable workplace accommodations.

Social Security Benefits: You can apply for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) through the Social Security Administration (SSA).How Claims Are EvaluatedNo Specific Listing: Long COVID does not have its own dedicated category in the SSA’s official impairment listings.

Functional Evaluation: The SSA evaluates how your specific symptoms (such as severe fatigue, brain fog, shortness of breath, or heart issues) limit your residual functional capacity to perform basic work activities.

Matching Body Systems: Claims are often assessed under related body systems, such as respiratory, cardiovascular (like POTS), or neurological impairments. Requirements for Approval Duration: Your symptoms must have lasted—or be expected to last—at least 12 consecutive months. Work Impact: Your condition must prevent you from performing substantial gainful activity.

Medical Evidence: You need thorough, consistent documentation from your doctors detailing your diagnosis, treatment history, objective test results, and a clear description of how the symptoms restrict your daily life and ability to work.

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Profile picture for truwomandi @truwomandi

@truwomandi MORE I had a video chat with the doctor today, It looks like he was talking with someone else grr I am going to write soon, He did say that long covid is very rare

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@truwomandi LC is not rare; many millions in the US suffer from it. Don't let some doctor push the bs.

Recent studies estimate that roughly one in six adults (about 15 to 18 million people) infected with SARS-CoV-2 in the U.S. develop long COVID. General population surveys by public health agencies show that roughly 5% to 7.6% of U.S. adults live with long COVID at any given time.

Key Estimates and Findings

Infection Rate: A large-scale multi-hospital study published in JAMA Network Open found that 16.3% of COVID-19 patients developed long COVID symptoms, with nearly 90% going on to experience new chronic health problems.

Population Prevalence: Public health tracking indicates that about 5% to 8% of all U.S. adults report currently experiencing or having experienced long COVID.

Underdiagnosis: Researchers note that standard diagnostic medical billing codes drastically undercount actual cases. Many patients receive treatment for specific chronic conditions (like metabolic, cardiovascular, or neurological issues) without being formally labeled with long COVID.

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Profile picture for juniper10 @juniper10

Here is what I found when I asked the google al about LC disability (bear in mind that ai can be wrong):

Yes, you can get disability for long COVID. It is recognized as a potential disability under the Americans with Disabilities Act (ADA) if your symptoms substantially limit a major life activity, and you can qualify for financial benefits if your condition prevents you from working for at least 12 months.

Legal and Financial ProtectionsCivil Rights (ADA): Federal guidance establishes that long COVID is a physical or mental impairment under the ADA, meaning you may qualify for reasonable workplace accommodations.

Social Security Benefits: You can apply for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) through the Social Security Administration (SSA).How Claims Are EvaluatedNo Specific Listing: Long COVID does not have its own dedicated category in the SSA’s official impairment listings.

Functional Evaluation: The SSA evaluates how your specific symptoms (such as severe fatigue, brain fog, shortness of breath, or heart issues) limit your residual functional capacity to perform basic work activities.

Matching Body Systems: Claims are often assessed under related body systems, such as respiratory, cardiovascular (like POTS), or neurological impairments. Requirements for Approval Duration: Your symptoms must have lasted—or be expected to last—at least 12 consecutive months. Work Impact: Your condition must prevent you from performing substantial gainful activity.

Medical Evidence: You need thorough, consistent documentation from your doctors detailing your diagnosis, treatment history, objective test results, and a clear description of how the symptoms restrict your daily life and ability to work.

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@juniper10
Well thank you. But I've been lied to by various people on the phone. That's who told me you don't qualify with COVID. And when you're stuck in a brain fog, you can't figure that out. And if you're suffering with severe tremors, you can't fill out online forms. You hit the wrong button all the time and lose the form. I'm finally well now after 10 months, but I owe everyone money at this point, because half the time I couldn't work. I was trying to keep working, but maybe I shouldn't have tried so hard.

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