It seems like everytime I see a medical practitioner...

Posted by pataystyl @pataystyl, May 17 4:20pm

It seems like everytime I visit medical practitioner......they get overwhelmed. ... Has anyone experienced this? Recently, I ask for a physicians statement for disability and they scattered like cats... LOL..

No one wants to deal with it... .. So over the medical community at this point.

In addition, I struggle getting to dr appoints due to my CFS and poor sleep.. I find that the medical establishment, businesses etc.. have no grace for people with chronic illness or disabilities... They get easily annoyed. Whats crazy is I rarely miss Dr appointments if any. But the one time I do they are so upset. You would think they would understand....Anyone else experience this?

But I am doing better after 6 years... Seeing a chronic pain therapist and a somatic therapist has helped a great deal.. Thanks for reading.. Sending support and good energy to all of you.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for nanacarol @nanacarol

Medications often cause an opposite reaction with me. The pharmacist mentioned a gene mutation. How did you discover what your gene mutation was and how to manage your medications? Is there a test for it?

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@nanacarol

I had GeneSight testing.

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I've had LC for 8 months. My doctor doesn't believe in LC. She treats my symptoms that she understands. I Spend a few hours day studying LC and looking for helpful ideas. I am thankful for others who have these awful symptoms and share helpful discoveries and compassion.

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Profile picture for djg3012 @djg3012

I went to one of my DR.appts on my worse day, 5 days after overexerting at a summer festival.He took a look at me and said-" are you sick?" Where is my mask?" And told me I must have a virus.

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@djg3012 I completely understand... Summer music festivals.. I wish I had the energy for those.... sigh..

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I was given excellent advice - do not attempt applying for Disabilty without an attorney. With an attorney I applied and was approved, without appeals, within 5 months.

I hope you are successful this round!

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Profile picture for robbie81 @robbie81

I've had LC for 8 months. My doctor doesn't believe in LC. She treats my symptoms that she understands. I Spend a few hours day studying LC and looking for helpful ideas. I am thankful for others who have these awful symptoms and share helpful discoveries and compassion.

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@robbie81 Agreed.. Grateful for the LC facebook communities. How did you get LC? I didn't think people were still getting it this far out from the pandemic. I am so sorry.

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Profile picture for drbf @drbf

@nanacarol

I had GeneSight testing.

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@drbf ooohhh it was on my list of things... Dr approved it but then I lost my good insurance. I need to try again... Did it help?

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Profile picture for jrg200911 @jrg200911

I was given excellent advice - do not attempt applying for Disabilty without an attorney. With an attorney I applied and was approved, without appeals, within 5 months.

I hope you are successful this round!

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@jrg200911 I had a free consultation with an attorney and was able to get approved. Turns out the nurse on the case said that I needed a neuropsychological test to prove LC. $2500 later I got the test and got approved.

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Profile picture for pataystyl @pataystyl

@jrg200911 I had a free consultation with an attorney and was able to get approved. Turns out the nurse on the case said that I needed a neuropsychological test to prove LC. $2500 later I got the test and got approved.

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@pataystyl
I'm so glad to hear it! I'll be 6 years LC in September, but wasn't diagnosed until I was 3 years in. SSDI at 4+ years. It's been such a long process of self-advocacy, but I'm glad for the aid now that I have it.

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Profile picture for pataystyl @pataystyl

@drbf ooohhh it was on my list of things... Dr approved it but then I lost my good insurance. I need to try again... Did it help?

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@pataystyl

It is genetic testing.

It can show if you have mutations that are affect medication such as psychopharma, antibiotics, and anesthesia.

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Profile picture for pataystyl @pataystyl

@djg3012 I completely understand... Summer music festivals.. I wish I had the energy for those.... sigh..

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@pataystyl Not only that !--Calendar is filled with family reunions, Class reunions, and summer festivals. Then people wanting you to do things and go places all the time, I really want to--just too tired and fatigued,

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