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It seems like everytime I see a medical practitioner...

Posted by pataystyl @pataystyl, May 17 4:20pm

It seems like everytime I visit medical practitioner......they get overwhelmed. ... Has anyone experienced this? Recently, I ask for a physicians statement for disability and they scattered like cats... LOL..

No one wants to deal with it... .. So over the medical community at this point.

In addition, I struggle getting to dr appoints due to my CFS and poor sleep.. I find that the medical establishment, businesses etc.. have no grace for people with chronic illness or disabilities... They get easily annoyed. Whats crazy is I rarely miss Dr appointments if any. But the one time I do they are so upset. You would think they would understand....Anyone else experience this?

But I am doing better after 6 years... Seeing a chronic pain therapist and a somatic therapist has helped a great deal.. Thanks for reading.. Sending support and good energy to all of you.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

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law59 | @law59 | May 25 9:46am
In reply to @diverdown1 "I experienced this several times. I just went back to my PCP to get blood work...." + (show)
Profile picture for diverdown1 @diverdown1

I experienced this several times. I just went back to my PCP to get blood work. They are dumbfounded however, the difference is that they realize that LC is real. It is terribly frustrating. I also applied for disability two years ago and was turned down. I have applied again. We will see. This is a very strange, frustrating, and maddening virus. This support group is the only place I have found where people understand, offer ideas, hope and encouragement.

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Hi@diverdown1. Came back this morning after busier life required away for less reading typing voice possible crash know you are very aware. Just wanted to share how much you are appreciated now for your efforts for all here and no doubt you will help so many more in so many different ways upon graduating! Continued quickest healing journey to you🌈

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robbie81 | @robbie81 | May 27 2:27pm
In reply to @pataystyl "@robbie81 Agreed.. Grateful for the LC facebook communities. How did you get LC? I didn't think..." + (show)
Profile picture for pataystyl @pataystyl

@robbie81 Agreed.. Grateful for the LC facebook communities. How did you get LC? I didn't think people were still getting it this far out from the pandemic. I am so sorry.

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@pataystyl
I got Covid last summer. I was fine for 6 weeks after Covid was gone. Then the fatigue hit me hard. Then the Covid symptoms started displaying their miserable leftovers and I knew what I was dealing with without knowing how to address it. I'm almost 82, living alone, and I'm having a real struggle taking care of myself. Sleep is the worst problem. When I get a rare 7 hours of sleep, I feel so much better. Currently, I'm only getting 3-5 hours a night.

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mountainmarge | @mountainmarge | Jul 4 11:42pm

I was told that we don't qualify for disability because it's not a "permanent" condition. And getting sick doesn't qualify you for unemployment either. Everyone I spoke to told me to call the Salvation Army.

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diverdown1 | @diverdown1 | 15 hours ago
In reply to @law59 "Hi@diverdown1. Came back this morning after busier life required away for less reading typing voice possible..." + (show)
Profile picture for law59 @law59

Hi@diverdown1. Came back this morning after busier life required away for less reading typing voice possible crash know you are very aware. Just wanted to share how much you are appreciated now for your efforts for all here and no doubt you will help so many more in so many different ways upon graduating! Continued quickest healing journey to you🌈

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@law59 I just saw this. I graduated 8/15/2026. I am now on the hunt for a job, remote if possible as I have no idea how I will function daily. It is frightening. I am running out of money. I did apply for SS disability but I am not expecting it. Thank you for the reply!

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truwomandi | @truwomandi | 4 hours ago
In reply to @truwomandi "I am giving up running from one specialist to another who orders tests, says nothing found..." + (show)
Profile picture for truwomandi @truwomandi

I am giving up running from one specialist to another who orders tests, says nothing found in the tests. I can't do anything but sit in my living room chair. All other activities are out. I get groceries delivered. I am tired of copays that do nothing, I have had my hopes up that I will be better next week, but that never happens.
I am ready to call it all quits.
I can't understand why there is nothing to fix the symptoms of LC

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@truwomandi MORE I had a video chat with the doctor today, It looks like he was talking with someone else grr I am going to write soon, He did say that long covid is very rare

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pataystyl | @pataystyl | 3 hours ago

Dont listen to him there are millions of us... Idk what he is smoking.... There are so many people that have it and dont know they have it!!! I cant tell you how many people and friends I have talked to that think they have it after hearing my symptoms. The government doesnt want to acknowledge it. Just shove it under rug

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