Anyone here also have SSS

I don't, but there are several on this forum who have and have posted about it over the four or so years I have been on this forum. You are by no means alone, and I hope you'll feel welcome. I expect you'll get some responses before too long.

Hi there - you are definitely not alone. Other than the fact that my heart rate only dropped into the low 30’s, we sound like our SSS was very similar. My pacemaker was implanted last October (2026) and greatly improved my symptoms. Nice to not have constant lightheadedness.

@mbixler my hr dropped to 20 bpm and 5 second heart pause. Plus I just read the info from the doc that put my pacemaker in. He wrote complete heart block as my diagnosis with #2 sick sinus syndrome

@suzy0509
With a pacemaker set to correct number you should not have the drop of what you explained. My pacemaker is set for 79 bpm and thus I do not have any pulse rates below 70.

I started with a LBBB but progressed into cardiomyopathy with heart failure. I have both a Pacemaker and Defibrator device.

If your pulse is dropping like that is your pacemaker set right to prevent that? Talk to your PACE Clinic, EP, cardiologist if you are having the low pulse rates and asked about is your pacemaker set o a specific rate or just to kick in when gets low.

@jc76 since I had my pacemaker put in the cardiac nurse set it at 60 bpm as the lowest rate it can drop. I wish you the Best

@suzy0509 I am glad to read that your 2-lead Medtronic Pacemaker has helped eliminate blackouts. I had to look up SSS (acronym for sick sinus syndrome) and read about it. https://www.mayoclinic.org/diseases-conditions/sick-sinus-syndrome/symptoms-causes/syc-20377554 and https://www.hopkinsmedicine.org/health/conditions-and-diseases/sick-sinus-syndromeAfter I had a septal myectomy in 2022, I developed dizziness, giddiness and had a couple of syncope (blackouts). Electrical problem from the traumatic event my lucky heart experienced. No one gave it the SSS label, it was diagnosed as arrythmia after wearing a Halter. I do not know if there is an important difference between arrythmia and SSS. I acquired Buddy, my Medtronic 2-lead ICD, set at 60 resting, and like you, have not experienced further syncope. As you have read in the other comments, you are not alone and we are all members of the bionic club.

Great to hear you also got dual chamber pacemaker. yes my Sick Sinus syndrome its a abnormal rythmn and failed sinus signal; so is complete av block. The signals are not getting through the heart at times, so the rthymn is slow too slow for oxygen to the brain. I was NEVER told the diagnosis. I found out yesterday when I started to read MyChart from the day the pacemaker was put in on June 10th, 2026

@suzy0509 I am glad you read MyChart but am sorry (and upset) that your doctor did not take the time to explain your SSS when you were first diagnosed. We are much better patients when we are informed. We can research from reputable sources about our conditions. Knowledge is Power and learning about our conditions will help us generate questions. The fact that we are all our own best advocates is something we are all learning every day.

I hope that the elimination of blackouts has made your life return to normal!

@walkinggirl did I tell you I also have complete heart block. I read it on my chart.

@suzy0509 Have you considered looking for a different doctor? Yet, now that you read your chart, you can ask pointed questions and decide if they are answered to your satisfaction. Can you have a family member or close friend accompany you to appointments? Write down the list of questions ahead of time. You can also specify you want to ask the electrophyiologist or cardiologist the questions. You can learn about heart block - in your browser type in Mayo Clinic Heart Block and then you can type in Cleveland Clinic Heart Block. Learn as much as you can and remember that the the squeaky wheel gets the grease. Keep advocating for yourself.