Can symptoms reoccur after pacemaker implant?

Posted by acapsych @acapsych, Aug 6 6:54am

Hello, I had an episode of scary weakness similar to ones I had frequently before pacemaker implant 4 months ago. I became very weak and felt like I could pass out. It was disturbing because I was watching my grandchildren in the beach. I recovered in about an hour but did not feel like myself for several hours. I have felt fine since. Has this happened to anyone?

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I am sorry that happened at all, especially when you were watching your grandchildren. May I suggest you contact your doctor/electrophysiologist ASAP about that? Please find out! You want to avoid that from happening again and living with that fear/anxiety is stressful. My ICD needed to be reset after implantation, and it may be possible your pacemaker does for some reason. It was done noninvasively and the outcome was perfect. Please do not wait!

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I had several periods of weakness after getting my pacemaker implanted. I remember once I was on a zoom call at my home. I excused myself and wasn't sure if I would be able to make it to the bedroom without passing out. I attributed it to my body adjusting to this foreign object! I was once in a garden store and quickly found a big planter to sit on before I landed on the floor! As Linda suggested to you, I contacted my electrophysiologist and had my pacemaker settings adjusted. Many of us do not have default bodies and need the default settings "tweaked". It made a HUGE difference! Good luck!

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Profile picture for bettycll @bettycll

I had several periods of weakness after getting my pacemaker implanted. I remember once I was on a zoom call at my home. I excused myself and wasn't sure if I would be able to make it to the bedroom without passing out. I attributed it to my body adjusting to this foreign object! I was once in a garden store and quickly found a big planter to sit on before I landed on the floor! As Linda suggested to you, I contacted my electrophysiologist and had my pacemaker settings adjusted. Many of us do not have default bodies and need the default settings "tweaked". It made a HUGE difference! Good luck!

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@bettycll Thank you for posting that! I absolutely love the wording of your statement "Many of us do not have default bodies and need the default settings "tweaked". It made a HUGE difference!" My ICD was recording a huge amount of water retention - and I was retaining none. May I borrow/use your default statement in future postings?

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I also had to have some programming changes 3 days after I had a dual chamber PM implanted. I was dizzy and also had a strong sensation of flapping over the area of my heart. I sent in a strip to the device clinic. It was RNVAS- repetitive nonreentrant ventriculoatrial synchrony

"It is a rare heart rhythm issue that happens with dual-chamber pacemakers. It occurs when heart signals travel backward from the ventricles to the atria, causing the pacemaker to misfire into a refractory period and lose atrial capture. "

Do you have the ability to send in a strip if something like that happens again?

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Profile picture for Linda, Volunteer Mentor @walkinggirl

@bettycll Thank you for posting that! I absolutely love the wording of your statement "Many of us do not have default bodies and need the default settings "tweaked". It made a HUGE difference!" My ICD was recording a huge amount of water retention - and I was retaining none. May I borrow/use your default statement in future postings?

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@walkinggirl
Of course, Linda! I would be honored to have you use that phrase. When I said it to my cardiologist, he laughed! My pacemaker actually needed a lot of "tweaking"! I obviously do not have a default body!

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Profile picture for missy245  Per @missy245

I also had to have some programming changes 3 days after I had a dual chamber PM implanted. I was dizzy and also had a strong sensation of flapping over the area of my heart. I sent in a strip to the device clinic. It was RNVAS- repetitive nonreentrant ventriculoatrial synchrony

"It is a rare heart rhythm issue that happens with dual-chamber pacemakers. It occurs when heart signals travel backward from the ventricles to the atria, causing the pacemaker to misfire into a refractory period and lose atrial capture. "

Do you have the ability to send in a strip if something like that happens again?

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@missy245 I have a device that sit on a shelf in my bedroom. Reports are sent from my ICD to the doctor's office and to Medtronic when they are requested. I'll bet in an emergency they get sent automatically Please explain about the strip you mention. Is it a printout similar to an EKG - a physical paper?

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@walkinggirl
I probably shouldn't have called it a strip. There is no paper involved.
Medtronic says this "When you send data from your pacemaker through the Medtronic app, it is officially called a remote monitoring transmission (or simply a device transmission / data download)"

I have the app on my phone and I can submit a transmission to the device clinic if I feel something unusual.
Normally they schedule a transmission every 3 months and I will get a report of what that transmission showed.

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Profile picture for missy245  Per @missy245

@walkinggirl
I probably shouldn't have called it a strip. There is no paper involved.
Medtronic says this "When you send data from your pacemaker through the Medtronic app, it is officially called a remote monitoring transmission (or simply a device transmission / data download)"

I have the app on my phone and I can submit a transmission to the device clinic if I feel something unusual.
Normally they schedule a transmission every 3 months and I will get a report of what that transmission showed.

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@missy245 How nice that it's a phone app! As I wrote earlier, mine is a transmitter on a base kept on a shelf. I can view the reports on My Chart. It's wonderful that adjustments can be made rather easily.

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Yes before I had a pacemaker put in. Its a terrible thing to go through i would just blackout

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Profile picture for Linda, Volunteer Mentor @walkinggirl

@missy245 I have a device that sit on a shelf in my bedroom. Reports are sent from my ICD to the doctor's office and to Medtronic when they are requested. I'll bet in an emergency they get sent automatically Please explain about the strip you mention. Is it a printout similar to an EKG - a physical paper?

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@walkinggirl Remote monitor reports aren't generally considered emergencies in the sense of needing to call 911 ( they'll tell the user that as well) , although the remote monitors are generally programmed to automatically send a report to the manufacturer's website where the data is collected and available to the health care providers when any abnormality is detected that falls outside the preset acceptable parameters. These parameters would include either patient cardiac issues or pacemaker, lead issues. From what I've read the providers are also notified when these issues are detected, they can choose the method by which they are notified. These days the notification is often made by text to a designated cell phone ( I've seen these used by on-call medical staff. The ways these are done may vary depending on the manufacturer. I asked the pacemaker tech who works for the cardiology practice I go to how their notification system works. She informed me that she receives the notifications from the manufacturer ( this would be Abbott in my case, I have a St. Jude pacemaker) for issues that fall outside acceptable parameters, and she contacts the cardiologist, or the PA, who will make the decision as to whether or not this issue is "actionable" ( needs something done about it ASAP) and they will notify the patient.
When these folks have been notified, they can look at the remote monitor data, or information, generally the out of parameter issues have been highlighted and will show up on that report, and they can go from there. It's not exactly an EKG, but the report will show what they call an EGM ( that'd be an intracardiac reading that looks like an EKG, and determine what is going on from there.

As you can probably tell, these are my "layman" descriptions of remote monitor reports, I'm not an expert by any stretch, but these are what I understand from what has been explained to me, or I've scratched from the manufacturer's website. Basically, it seems as though when there's a parameter in a remote report that's outside the range, the report is flagged, the particular parameter result is highlighted with a short description of the issue, and the patient's health care provider is notified to go check out the report.

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