Some Good News to Report

Posted by kartwk @kartwk, Jul 16 10:10am

No, I have not been able to get the diagnosis, BUT have gotten Husband to agree to have the long needed and painful hip surgery. Hopefully the constant grunting, moaning, etc. will slow down after he has it because IMHO that is truly cruel and unusual punishment to go thru day after day, night after night.

Last month he went to Doc for his asthma and lungs. Everything known to man does not seem to work for him but this time the Doc had something new; but H. didn't understand what he was saying and I had to step in and clarify it for H. This is the first time the Doc. looked at me questioningly, so maybe, just maybe he is getting the situation.

I inquired about H's ability to have surgery as he always claims it is his lungs, age and a whole host of reasons not to have but the real reason is that I had knee surgery that failed and had to be repeated and that scared him. I know how he thinks. PCP saw no problem.

We have seen the surgeon, who is associated with Cleveland Clinic and fellowship trained as well. I am finding that seems to really make a difference as the fellowships only accept best people. Back, hip, knees where to start....the Surgeon and I both explained to him that the hip would give him some back relief. H is in severe pain, does not want to walk, hurts when he sits, something has to be done. I have mobility problems of my own.

Well, surgeon says he is a good candidate, the heart Doc. has given the okay so today we schedule.
We have a wonderful neighbor who's father fractured his hip and went through all this. He suggested that H. go into the local nursing home after the surgery because they have one of the BEST therapists in the area.
So, today we are making the surgery apt. We have decided to do outpatient surgery rather than at the amblical (sp) center because of his heart problems and to go to the nursing home after.

Wish me luck in getting the apt done without him backing out.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for judimahoney @judimahoney

@kartwk
Setting boundaries is so hard but necessary.
I find it helpful to write a bulleted list of points I want to make, because in the heat of things we get emotional and may forget the important things we want to share.
Good luck! 🫂

Jump to this post

@judimahoney

I so agree. H knows my stance on this. but it is HIS daughter. He wants her there, I do not and he knows the reasons. I would hate to have a her or me showdown, but that is what it will come to. I know, I should be the bigger person because he is having surgery, but there is something about her that gives me the creeps. No, it is not because she is a step...H has 2 others and I have no problems with them.

REPLY
Profile picture for ocdogmom @ocdogmom

@kartwk I am glad to hear that things are moving along and that the surgery will be done in hospital. I personally think that it is a better place for a patient that has a cardiac history.
I am especially glad to hear that you will have a break from caregiving so you can renew your spirit and restore your mental health. You can sleep late, eat whatever you want, go whenever you want, visit friends, get your hair done, mani/pedicure, massage, etc. All self care items in my book.
The other good thing about having your husband go to the nursing home is that they will be the ones dealing with his post-op pain and getting him up and moving around. You won't have to deal with that. I am thinking that with his hip pain taken care of your husband will be in better spirits and be easier to be around. I know I was a happy camper after the surgical pain resolved. God bless you and keep you strong.

Jump to this post

@ocdogmom

I so agree that he will be their problem for the ice packs, the getting up and down in the middle of the night, etc. I NEED a good night's sleep for starters.

REPLY
Profile picture for judimahoney @judimahoney

@kartwk
Setting boundaries is so hard but necessary.
I find it helpful to write a bulleted list of points I want to make, because in the heat of things we get emotional and may forget the important things we want to share.
Good luck! 🫂

Jump to this post

@judimahoney

Thanks. I think we now may have solved this problem. Today we did all his pre-op stuff so he is okay to go.

I nicely told him that I could handle things alone, I have done it before. I told him that I couldn't count on her for anything. Reminded him of how when he had his first heart surgery, she was suppose to drive me to the hospital BEFORE he went down for it. She never showed and when I FINALLY did get ahold of her the excuse was that she was busy cleaning her house!!
The fact that she did that to him and me before seems to have solved the problem for now.

REPLY
Profile picture for judimahoney @judimahoney

@kartwk
Setting boundaries is so hard but necessary.
I find it helpful to write a bulleted list of points I want to make, because in the heat of things we get emotional and may forget the important things we want to share.
Good luck! 🫂

Jump to this post

@judimahoney

So by that alone you can see what a piece of work she is.

REPLY
Profile picture for kartwk @kartwk

I have one BIG problem that has come up and I am dreading it. I say this because it is something that I will have to deal with and do not want to. That is his daughter. This is the one that showed up in his hospital room when he first had heart problems, with a will for him to sign.
He called her yesterday to tell her about his upcoming surgery, and she is starting up again and I just do not want to put up with it. I have enough on my plate.
NOW, he did not even hear from her on Father's Day! Nadda for any other holiday, but she did drop off a plate of cookies (store bought) on our front porch for Christmas. The only time we hear from her is when she wants something for free, our grill for her deadbeat son, H's golf clubs for the other son, etc., trying to get him to change his will etc. Then she is all over him with attention etc.

I just cannot deal with her on top of everything.

Jump to this post

@kartwk I know it is so frustrating to have to deal with someone who only wants stuff from you and your husband. The stolen jewelry is awful. Lock that and any other valuable stuff up. I agree with an another post that you have to set boundaries. You can control visits to your own home for starters. As to changing his will, I am wondering if he changes his will now if it would even be considered valid considering his dementia. My estate attorney told me when I saw her recently to change my will that we could not make any changes to our trust because of my husband's dementia. My husband is not capable of understanding what he would be asked to sign. I can only change things that require just my signature. So if your husband has been diagnosed with cognitive impairment then you could tell his daughter that any changes to his will now would be considered invalid. Maybe that will dissuade her from continuing to try to get him to change it. Keep posting here to vent and get some moral support. Good luck to you and your husband with the surgery.

REPLY

Here is an update. Well, we are 3 days before surgery and H had decided that the pre-op exercises hurt him too much, so he has stopped doing them. No sense in trying to convince him otherwise or to do the exercises that do not hurt, like foot paddles, etc. I am keeping on him about the breathing exercises.

His constant, and I mean constant moaning and groaning is far too much for me to continue to take, but I keep saying it is only for a few more days. I hope I don't sound terrible, but then if he moans and groans it will be in the nursing home and I will at least be able to get a good night's sleep.

So far his daughter is in control. I have stated NO, I do not need her. I have told you a few things she has pulled, but I left out that when I confronted her about the jewelry she stole, I got it back, but she broke it first! The darling was so upset that someone confronted her on her actions that she told H. she wanted nothing to do with me any more. Fine with me. She is untrustworthy, unreliable and a liar.

When he brought her up again yesterday, I reminded him that she, herself, has stated to him she wants nothing to do with me and I am respecting her wishes. End of issue.

I am nervous and scared because surgery is always a risk, but am trying to hold it together. I can tell H is too but he would never admit it.

Hanging in....

REPLY
Profile picture for kartwk @kartwk

Here is an update. Well, we are 3 days before surgery and H had decided that the pre-op exercises hurt him too much, so he has stopped doing them. No sense in trying to convince him otherwise or to do the exercises that do not hurt, like foot paddles, etc. I am keeping on him about the breathing exercises.

His constant, and I mean constant moaning and groaning is far too much for me to continue to take, but I keep saying it is only for a few more days. I hope I don't sound terrible, but then if he moans and groans it will be in the nursing home and I will at least be able to get a good night's sleep.

So far his daughter is in control. I have stated NO, I do not need her. I have told you a few things she has pulled, but I left out that when I confronted her about the jewelry she stole, I got it back, but she broke it first! The darling was so upset that someone confronted her on her actions that she told H. she wanted nothing to do with me any more. Fine with me. She is untrustworthy, unreliable and a liar.

When he brought her up again yesterday, I reminded him that she, herself, has stated to him she wants nothing to do with me and I am respecting her wishes. End of issue.

I am nervous and scared because surgery is always a risk, but am trying to hold it together. I can tell H is too but he would never admit it.

Hanging in....

Jump to this post

@kartwk
Here's hoping for the best possible outcome.
Kudos to you for keeping negativity from your life as much as possible (regarding his daughter).
Big hugs and hope you have some great reading material for the waiting room. Please keep updating us about the surgery.
All the best. 🌟

REPLY

Well, the surgery was successful BUT H refused to go for rehab even though he stayed overnight in the hospital and they were processing things. So, after telling the Doc et al that he felt fine, was doing good etc, and that he wanted t come home. I really tried to get him to change his mind, even though I made it clear to the case worker etc. that I with my own disability problems, could not help him he was persistent. That he was good enough to be able to "take care of himself". To an extent that is true as he can dress himself, could walk from the bed to the room door, etc. And course he was praised that he was doing so well. That is what therapists and helpers do, encourage you so you keep trying.

So he is back home and I am running ragged, fetching meds, helping him mauver, much less running out for bagged ice for the much-needed ice packs. Watching him as he tries to get out of the recliner and needs a boost (his knees are bad). Claims he feels no pain, but I doubt all the painkillers have cleared his system so that is irrational.

He was told to get up and walk around every hour. Is he doing that? NO!

The folk at the hospital were fine until after I left. Then it became necessary for him to call me every 30 minutes +- about something being wrong. I.e., no one came in to help him to bathroom. I asked him if he buzzed for someone, well, no, but no one is helping him he would be better off at home. I told him if it was that bad, I was coming back to see what was going on and straighten it out. H did not want that. Once thing H. said to me is that they were not giving him his correct pills for cholesterol etc.

I called nurses desk and he was giving them a hard time with the meds because they were not the same pills he normally takes BUT they were the same medication! He could not understand that!

So much for a much needed respite. Right now he is sitting in his recliner, telling me that I have to fix the ice bag with ice because he cannot get it out of the freezer!!!

REPLY
Profile picture for kartwk @kartwk

Well, the surgery was successful BUT H refused to go for rehab even though he stayed overnight in the hospital and they were processing things. So, after telling the Doc et al that he felt fine, was doing good etc, and that he wanted t come home. I really tried to get him to change his mind, even though I made it clear to the case worker etc. that I with my own disability problems, could not help him he was persistent. That he was good enough to be able to "take care of himself". To an extent that is true as he can dress himself, could walk from the bed to the room door, etc. And course he was praised that he was doing so well. That is what therapists and helpers do, encourage you so you keep trying.

So he is back home and I am running ragged, fetching meds, helping him mauver, much less running out for bagged ice for the much-needed ice packs. Watching him as he tries to get out of the recliner and needs a boost (his knees are bad). Claims he feels no pain, but I doubt all the painkillers have cleared his system so that is irrational.

He was told to get up and walk around every hour. Is he doing that? NO!

The folk at the hospital were fine until after I left. Then it became necessary for him to call me every 30 minutes +- about something being wrong. I.e., no one came in to help him to bathroom. I asked him if he buzzed for someone, well, no, but no one is helping him he would be better off at home. I told him if it was that bad, I was coming back to see what was going on and straighten it out. H did not want that. Once thing H. said to me is that they were not giving him his correct pills for cholesterol etc.

I called nurses desk and he was giving them a hard time with the meds because they were not the same pills he normally takes BUT they were the same medication! He could not understand that!

So much for a much needed respite. Right now he is sitting in his recliner, telling me that I have to fix the ice bag with ice because he cannot get it out of the freezer!!!

Jump to this post

@kartwk
Will insurance cover a palliative care or rehab person to come for a few hours a day? At least you'd get a wee break. 🫂

REPLY

@kartwk
I am glad that your husband's surgery went well. Sorry that you are not getting the break you so deserve. His refusal for rehab may reflect his fear of the unknown-strange people, strange bed, strange food and of not having you around as you likely represent safety and security to him.
My suggestion is to contact his surgeon and request IN HOME post-op physical therapy at least twice a week. Hopefully there are PT agencies that do in home in your area. Pull out the dementia card if needed saying that your husband needs in home PT because of his fear of new, strange places.
Having it in home will allow you to leave for that time and just get away from it all. Medicare and my supplemental insurance covered this for me. If approved, I would tell your husband that the surgeon has ordered this PT as part of what HE feels is necessary for a complete recovery and to minimize the length of time he will experience post surgical pain that he now has. That way he can be annoyed at the surgeon, not you, though he may still complain and say it is not necessary. I would just ignore that and schedule a session as he may go along with it once the therapist is at your house. My husband often says no to things that he will later do if put in front of him.
Be sure to give him his prescribed pain medication at least half an our before the PT session. The new hip should not cause any pain, but the surgery will have stretched the muscles over the hip joint, not to mention the surgical incision and that is what will hurt. Best of luck with that. Remember "you can lead a horse to water, but you can't make him drink" and as my husband used to say pre dementia "Is this a hill you want to die on" Probably not. Just try your best and don't have an expectation for a specific outcome. That's all we can do.
We only have control over ourselves not others.

REPLY
Please sign in or register to post a reply.