Hep C

@davebarnes, I can understand your, "hmmmm". It can get confusing for us patients. and also confusing, it seems, for our family doctors. I remember that I had some hepatitis shots and other shots somewhere during the time that I was diagnosed with my liver disease. I do not know what all they were. I learned that they are given for our protection as a prevention for when we get that transplant. Some of the injections cannot be given after a transplant and they have to happen ahead of time.
With liver disease and transplant, the transplant doctors look much more carefully into things that family doctors do not have training and expertise in - a higher degree of specialty and level of care is needed now. It is possible that they saw a need, or it might be routine protocol for pre transplant. Only your team knows this answer.
Also, it is not unusual for the Mayo to call you between visits to request another test or procedure or labs.
I am happy to hear that you are being taken care of 🙂
How are you feeling these days?
Rosemary

Hi Rosemary,
Thank you for your information. I have been blessed with three good days. Saturday and Sunday is a different story as I was in much pain, very weak and was bleeding internally. Better now.
Thanks again.
Dave

@davebarnes, . I am happy for you to have had 3 good days! And glad to hear that you are feeling better. I am here anytime that you want to visit or just to chat, or even gripe.
I remember clearly that there are both good days and bad days, and even good moments and bad moments throughout the journey to transplant. And even though our diseases can be different, we all have this roller-coaster experience. Try to take some comfort in knowing that you are not alone.
One of my sweetest memories when I was very ill, was to perch myself on our couch which is in a sunny window. I was always freezing cold, and the warmth of the sun was a blessing that I looked forward to every sunny day. Just like a kitty cat, I enjoyed those naps.
Wishing you good days,
Rosemary

Good Morning Rosemarry, It turns out the Hep shots are only precautionary sand I don't have it. 🙂

I had to go back in to ER as I was very dizzy and thought I was bleeding internally again. Turns out, while my BM was red, it wasn't blood. They said it was most likely from the many fruit pop cycles I have.

@davebarnes, Hi Dave, thanks for checking in. That solves your puzzle of why your family doctor was not concerned!

Dave, are you familiar with the Transplant Pages? I would like to this valuable resource with you. I think you will see some helpful information.
https://connect.mayoclinic.org/page/transplant/

Rosemary

@davebarnes, You did the right thing by getting checked. That must have been really frightening for you - and a relief when it was diagnosed.
Prior to being sent to Mayo, I was a regular at local ER. It was not long until I was on first name 'friendship' with the staff.
Keep on keeping on! And stay in touch.
Rosemary

Good Morning all.
I am happy to report that as of yesterday I am officially on the transplant list ! Now it is hurry up and wait.
Have to say, this is the only good news I have right now. I feel my condition has worsen this past few weeks.

Good Morning, Dave. Thank you for sharing this. You are another step in the right direction. I will be thinking of you.

Your words 'hurry up and wait' are perfect! I am sorry that you are feeling worse, but unfortunately that is the way it works. Keep on with the positive thoughts. And take it one day at a time.
Dave, if your wife ever wants support or information as caregiver, tell her she is more than welcome here.

I am happy for you.
Rosemary

Thanks Rosemary, I sent my Wife your response to see if she would like to jump in. She has been a true blessing!