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Aortic Ascending Aneurism - Share Growth Rate

Posted by Fighter @niravani, Jan 10, 2024

Hello Everyone, I look for any thread that talk about Aortic Ascending Aneurism with Bicuspid valve and its growth rate. I got diagnose by accident for Aortic Ascending Aneurism of 4.5CM at the age of 50 and have bicuspid valve as well. My next CT scan is in June 2024.

If anyone in the same boat or diagnosis, can you please share your experience with growth rate of this Aorta over time with bicuspid valve?

I will appreciate your input and help. Thank you.

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

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organizedchaos04 | @organizedchaos04 | 1 day ago
In reply to @suzannedee "@organizedchaos04 Hi Nice to hear from you as we both have a few things in common...." + (show)
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@organizedchaos04
Hi
Nice to hear from you as we both have a few things in common. How are you doing after your clipping ? I have found after three craniotomies I was looking for people with any brain issues. I have had headaches that are getting a bit less as it’s been two years. However I do still have them. Also I have had to play a lot of games to get the files back in the brain. Of course no one asks if we ever have these issues after the fact.
I actually had an aortic aneurysm that faded away. Strange as that may sound. They can’t find it. Anyway, how are you feeling ? Even after one craniotomy with a large aneurysm can have symptoms after the fact.
Did you have any symptoms with your aneurysm before it was clipped? How did you know you had it ?
I heard a pop. But it didn’t blow. Dangerous.
Glad it’s gone.
I’m sure they will watch your aortic aneurysm.
nice to meet you.
Suz

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@suzannedee Hi Suz. I cannot imagine three craniotomies. You are so strong. One craniotomy took a lot out of me and now the thought of any heart related surgery is a bit overwhelming. The only symptom I had was a headache and a pain behind my left eye. I was about to get on a plane and leave the country but at the last moment, went to the ER. It all happened so quickly. May I ask what is causing your multiple aneurysms? My blood pressure has always been normal to low but I have a lifetime of high cholesterol and a genetic history of heart disease in the family. No history of brain aneurysms. Thank you for sharing.

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suzannedee | @suzannedee | 16 hours ago
In reply to @organizedchaos04 "@suzannedee Hi Suz. I cannot imagine three craniotomies. You are so strong. One craniotomy took a..." + (show)
Profile picture for organizedchaos04 @organizedchaos04

@suzannedee Hi Suz. I cannot imagine three craniotomies. You are so strong. One craniotomy took a lot out of me and now the thought of any heart related surgery is a bit overwhelming. The only symptom I had was a headache and a pain behind my left eye. I was about to get on a plane and leave the country but at the last moment, went to the ER. It all happened so quickly. May I ask what is causing your multiple aneurysms? My blood pressure has always been normal to low but I have a lifetime of high cholesterol and a genetic history of heart disease in the family. No history of brain aneurysms. Thank you for sharing.

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@organizedchaos04
Well it was not easy. And not having JH follow up with me was more tormenting then I can explain. I too have a family history of high cholesterol. Had three stents put in already. The aortic Ascending aneurysm was brought up to me out of nowhere on an ER visit. But since then it has dissolved. I have no idea how. Nor do my drs. But they can’t find it. I’m like did I really ever have it ? I’m on rapatha for cholesterol and it seriously cut my cholesterol to normal. I have never had normal. Amazing.
Anyway, watch that aneurysm as I do t care what drs say, they are a problem and need to be watched. Everyone is different.
Feel better ❤️‍🩹. Stay on top as you are.

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hsminc | @hsminc | 47 minutes ago

My husband’s ascending aortic aneurysm was first seen on a CT in 2006 but was judged okay for his height and weight. It measured 4 3.
In 2021 it showed on a routine e cho as 4.8-4.9. This was confirmed on an angiogram. Every year since he has had an echo and angiogram. In 2026, it is now 5.1.
This is very slow growth. We hope he never has to have surgery. He is 82.

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