Earliest signs of decline?

Posted by Gratia @gratia, 2 days ago

Just curious whether your loved one exhibited signs you dismissed that could have been early symptoms of cognitive decline… We have our elderly mother with dementia, but she has been going downhill for almost 20 years-likely more. When I look back, I recall certain things that I attributed to her personality, but now I’m left wondering….
It doesn’t matter much because we are here now, but I just think of her past behaviors which I found frustrating and now I wonder if it was early onset…

Wishing all of you strength and joy. You’re all doing the best you can. You are doing heroic things…with no reward. I understand. ❤️

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Hi:
My husband's diagnosis came a few years after we retired, but when we retired I started noticing that things started to be more and more about him, and his ego became front and center. I thought this was just his new retirement personality, then others started to notice that he wanted all of our attention and pushed till he got it.
I later read in a dementia book that the egotistical behavior is because they are so focused on keeping it together and maintaining that semblance of 'normal'. Now I know why it's all about him.

REPLY
Profile picture for judimahoney @judimahoney

Hi:
My husband's diagnosis came a few years after we retired, but when we retired I started noticing that things started to be more and more about him, and his ego became front and center. I thought this was just his new retirement personality, then others started to notice that he wanted all of our attention and pushed till he got it.
I later read in a dementia book that the egotistical behavior is because they are so focused on keeping it together and maintaining that semblance of 'normal'. Now I know why it's all about him.

Jump to this post

@judimahoney
Hello Judi,
Thank you for sharing this. I also noticed and continue to observe very “self-involved” behaviors. I do understand that it comes from a place of needing to control “what’s left”. Of course it must be very frightening to feel so lost, so focusing on what they can (themselves) probably is a way of self-soothing. I do have a lot of compassion, but I just wish she had let us know early on. A family friend told me she knew about a diagnosis years ago.

It might’ve helped us navigate this better. Or maybe not.

Gotta take the small wins. For example, I found a dry shampoo that works wonders on her hair (she’s bathing resistant).

Sending you lots of supportive energy and hugs. 🤗

REPLY
Profile picture for Gratia @gratia

@judimahoney
Hello Judi,
Thank you for sharing this. I also noticed and continue to observe very “self-involved” behaviors. I do understand that it comes from a place of needing to control “what’s left”. Of course it must be very frightening to feel so lost, so focusing on what they can (themselves) probably is a way of self-soothing. I do have a lot of compassion, but I just wish she had let us know early on. A family friend told me she knew about a diagnosis years ago.

It might’ve helped us navigate this better. Or maybe not.

Gotta take the small wins. For example, I found a dry shampoo that works wonders on her hair (she’s bathing resistant).

Sending you lots of supportive energy and hugs. 🤗

Jump to this post

@gratia
And my husband also has anosognosia, so he doesn't know what he's lost (no self awareness). I guess this is a blessing? 🤔

REPLY
Profile picture for Gratia @gratia

@judimahoney
Hello Judi,
Thank you for sharing this. I also noticed and continue to observe very “self-involved” behaviors. I do understand that it comes from a place of needing to control “what’s left”. Of course it must be very frightening to feel so lost, so focusing on what they can (themselves) probably is a way of self-soothing. I do have a lot of compassion, but I just wish she had let us know early on. A family friend told me she knew about a diagnosis years ago.

It might’ve helped us navigate this better. Or maybe not.

Gotta take the small wins. For example, I found a dry shampoo that works wonders on her hair (she’s bathing resistant).

Sending you lots of supportive energy and hugs. 🤗

Jump to this post

@gratia Yes, finding joy in the little things......and finding dry shampoo that works wonders. You hit a home run for you and Mom.
Best, Karla (your nature shots are just beautiful)

REPLY
Profile picture for Gratia @gratia

@judimahoney
Hello Judi,
Thank you for sharing this. I also noticed and continue to observe very “self-involved” behaviors. I do understand that it comes from a place of needing to control “what’s left”. Of course it must be very frightening to feel so lost, so focusing on what they can (themselves) probably is a way of self-soothing. I do have a lot of compassion, but I just wish she had let us know early on. A family friend told me she knew about a diagnosis years ago.

It might’ve helped us navigate this better. Or maybe not.

Gotta take the small wins. For example, I found a dry shampoo that works wonders on her hair (she’s bathing resistant).

Sending you lots of supportive energy and hugs. 🤗

Jump to this post

@gratia Great idea about using dry shampoo. What brand is it?

REPLY

Good morning ☀️
I’m happy to share- the dry shampoo I found is Kitch volumizing rice protein dry shampoo for men & women. I ordered the ‘invisible’ version. It’s travel size, it worked for us. Some reviews say that it has a scent, but the one I got is unscented. Which was really important to us.

Like I said … it’s the small wins. Today I’m trying new undergarment for my mom. Hope this works! The current incontinent undies have a strong elastic which can dig into sensitive skin. (I wonder if these things are biodegradable or are there mountains of disposable briefs everywhere? 😲)

As frustrating as all of this is, we want our loved ones to feel safe, comfortable and dignified.

Sending strength and hope🤗❤️✨

REPLY
Profile picture for kjc48 @kjc48

@gratia Yes, finding joy in the little things......and finding dry shampoo that works wonders. You hit a home run for you and Mom.
Best, Karla (your nature shots are just beautiful)

Jump to this post

@kjc48 Good Morning Karla 🌞I’m glad you enjoy the photos. Seeing natural beauty can lift our spirits. Wishing you a calm day and moments of joy🤗❤️

REPLY
Profile picture for Gratia @gratia

@kjc48 Good Morning Karla 🌞I’m glad you enjoy the photos. Seeing natural beauty can lift our spirits. Wishing you a calm day and moments of joy🤗❤️

Jump to this post

@gratia Thank you, I think you should do freelance photography on the side - although with your MOM I'm sure there's very little time left. It's just that you're so good with these shots, and you might find solace in freelancing. Plus others get to benefit from your work! Best, Karla (yes, natural beauty does help uplift our spirits, obviously a natural gift you have in taking these shots!)

REPLY

It's a fine line. There is "normal" decline with age (evaporating dendrites) and there are clinical beginnings and signs. If we get scared, and start bringing to attention little slips as mci, we'll end up fighting, which probably speeds decline.
Reserve conclusions until it starts to become clear that this is a prodromal clinical situation and not him being frustrating as he's always been, if not a little more frustrating. Ask my wife.

REPLY
Profile picture for Gratia @gratia

Good morning ☀️
I’m happy to share- the dry shampoo I found is Kitch volumizing rice protein dry shampoo for men & women. I ordered the ‘invisible’ version. It’s travel size, it worked for us. Some reviews say that it has a scent, but the one I got is unscented. Which was really important to us.

Like I said … it’s the small wins. Today I’m trying new undergarment for my mom. Hope this works! The current incontinent undies have a strong elastic which can dig into sensitive skin. (I wonder if these things are biodegradable or are there mountains of disposable briefs everywhere? 😲)

As frustrating as all of this is, we want our loved ones to feel safe, comfortable and dignified.

Sending strength and hope🤗❤️✨

Jump to this post

@gratia I remember on a previous post from Bill, about "The Calvary is Not Coming" - in fact he had a few posts I read, he mentions, the best incontinent undergarments he used for his wife, in his fight against her dementia journey. I just quickly looked in my ream of printed off Mayo Connect paper (that I save) to see if I could find it. It was a very helpful list. I couldn't find it and I'm not sure how to pull Bill's posts back up on this site. Maybe the mentors know if you need another under garment solution for her sensitive skin.
If I find it in my printed stack, I'll reach back out.
Best, Karla

REPLY
Please sign in or register to post a reply.