@judimahoney
Hello Judi,
Thank you for sharing this. I also noticed and continue to observe very “self-involved” behaviors. I do understand that it comes from a place of needing to control “what’s left”. Of course it must be very frightening to feel so lost, so focusing on what they can (themselves) probably is a way of self-soothing. I do have a lot of compassion, but I just wish she had let us know early on. A family friend told me she knew about a diagnosis years ago.

It might’ve helped us navigate this better. Or maybe not.

Gotta take the small wins. For example, I found a dry shampoo that works wonders on her hair (she’s bathing resistant).

Sending you lots of supportive energy and hugs. 🤗