Anyone had a prophylactic mastectomy for ADH diagnosis?

My diagnosis came in March . Had surgery . And was put on Tamoxifen. Had to stop because of extreme side effects. This was to remove estrogen . I’m 68 I’m on mammograms scheduled twice a year . I wish there was more information and someone to talk to me and clarify . I’ve had five biopsies on one side and a lumpectomy on the other . So full of anxiety over this. As mother and sister had breast cancer. Thinking of you and letting you know you are not alone ..

@maureenmckean I just recently found out I have ADH. I meet with a surgeon next week. What should I ask? At this point too, I want mastectomy. I feel that I will become very stressed every six months. Thank you for sharing!

@hamilton1945 I’m so sorry you have AHD. Did you find out from a biopsy? Or did you have a lumpectomy? My lumpectomy only found AHD - the fear was they’d find cancer - but they didn’t. I was still in a dark place because it seems so scary and I was officially higher risk. I think the overall risk is still pretty low. My breast surgeon left the practice. The every 6 months being checked helps. My new doctor is more aggressive and said I should consider taking tamoxifen- but I haven’t because I have heard terrible things about it from friends. I’m much less freaked out now - I’ve had 4 years of non findings I think now. Let me know if you had the lumpectomy already

Hello. Thanks for reaching out. That is great news about 4 years of non-findings. My ADH was found by needle, I am scheduled to see a surgeon on Wednesday. I am a mess and at this point I am ready for a mastectomy. I am so worried. Plus, I am on HRT so I need to figure out how to come off that. I have dense breast tissue and had extra imaging before, but never this. I wish I had never started HRT. I feel guilty and worried. My husband is trying to help me stay positive and wait to hear what the surgeon has to say. It is so hard!! Thank you!!

@hamilton1945 I was in your shoes - well I wasn’t on HRT. Try not to jump the gun. ADH is NOT cancer. I’m assuming you’ll have a lumpectomy and they will know more. I went down a deep dark tunnel and already felt like I had cancer - my life felt shifted from life before and life after. Of course all that worrying for not!! Easier said than done but try to be positive- the stress doesn’t help. I’m hoping when you meet with the surgeon you’ll feel better - make sure you bring someone because stress make it hard to think straight or remember anything - please keep me posted and I’ll send prayers abc healing vibes your way!

Thank you for your support and prayers!! Do you remember how long you had to wait for pathology after your procedure. I am reading anywhere from 2 weeks to a month 🙂

@hamilton1945 not right emoji.