Recently diagnosed. Considering DMX. If I do it what monitoring needs to be done? Do I still need hormone therapy?
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Nipple sparing DMX or not?
I’m going to be scheduling prophylactic DMX with Diep due to Adh and family risk. Need a lift prior to DMX if I go nipple sparing route. This adds a procedure and recovery and also a delay. Is it worth it?
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Hi Ellie, I'm tagging a few members who also considered nipple sparing or not with their reconstruction like @trixie1313 @nataliehope @ahurlbert30 @sandyjr @angepatri @ladylawdawg @melomelbee @zeerj
You may also appreciate this video with Dr. Amy Degnim, Mayo Clinic about skin-sparing and nipple-sparing mastectomy
Have you made your decision? What helped you make your decision?
What is a radial scar? Mine was found during screening mammo then ultrasound then core needle biopsy then excisional biopsy to confirm. Microcalcifications were the clue I believe
Hi @elliejk ,
Same story here.
Mammo didn’t show, US found a 5mm mass with soma calcification.
Fine needle found papilloma with atypias.
Waiting for my surgery next Tuesday😖
I hope there’s nothing else associated
Lumpectomy Tues? Prayers it’s all benign
Yes! I’m scared and anxious .
I really hope it will turn out benign.
I was scared too. Prayers for your clear results! The lumpectomy was easy so no fear there. Let me know once you know!!! 🥰
Looking for viewpoints and experiences with DMX due to ADH diagnosis. Also did you do reconstruction and what kind?
@elliejk, several people have offered helpful experiences to your original question about prophylactic mastectomy for ADH here:
– Anyone had a prophylactic mastectomy for ADH diagnosis? https://connect.mayoclinic.org/discussion/has-anyone-had-a-mastectomy-for-adh-diagnosis/
Evaluating treatment options
Also see this related discussion about reconstruction choices and experiences:
– Mastectomy and breast reconstruction pros and cons? https://connect.mayoclinic.org/discussion/mastectomy-1/
– Chose not to get breast reconstruction https://connect.mayoclinic.org/discussion/chose-not-to-get-breast-reproduction/
Use the Search bar to find many other useful disussions to help with your decision making.
I know you've been weighing your options for a while now, since you posted last November or possibly even earlier. This is not an easy decision. Did you perhaps decide not to have a mastectomy and now you're reconsidering? What are you finding most challenging about making a decision?
Most challenging is understanding my real risk and whether prophylactic DMX is warranted as that’s a very large surgery. I’m still very much on the fence so will do monitoring plan until I can decide
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