Has anyone had a mastectomy for ADH diagnosis?

Posted by elliejk @elliejk, Nov 11, 2022

Recently diagnosed. Considering DMX. If I do it what monitoring needs to be done? Do I still need hormone therapy?

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Diagnosed with ADH in February after a lumpectomy for a radial scar. I am on 6 month monitoring with mammos and then a MRI every other year. I wanted a DMX but was told that was considered an extreme measure in my situation and they would not do unless things changed. Positive thoughts your way!

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@leesal123

Diagnosed with ADH in February after a lumpectomy for a radial scar. I am on 6 month monitoring with mammos and then a MRI every other year. I wanted a DMX but was told that was considered an extreme measure in my situation and they would not do unless things changed. Positive thoughts your way!

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What is a radial scar? Mine was found during screening mammo then ultrasound then core needle biopsy then excisional biopsy to confirm. Microcalcifications were the clue I believe

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@elliejk, You may also be intersted in this related discussion:
– Anyone dealing with Atypical Ductal Hyperplasia (ADH)? https://connect.mayoclinic.org/discussion/anyone-dealing-with-atypical-ductal-hyperplasia-adh/

@margo19 asked a similar question about ADH and mastectomy.

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@colleenyoung

@elliejk, You may also be intersted in this related discussion:
– Anyone dealing with Atypical Ductal Hyperplasia (ADH)? https://connect.mayoclinic.org/discussion/anyone-dealing-with-atypical-ductal-hyperplasia-adh/

@margo19 asked a similar question about ADH and mastectomy.

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Just a lumpectomy after microcalcifications we’re seen and biopsy revealed ADH. They didn’t find anymore ADH so I’m on the 6 month monitor. Double mastectomy seems extreme but I was ready to do that when I initially got the ADH diagnosis. But my doctor laughed – not in a mean way. I went right to worse case scenario lol. I’ll be checked every 6 months for the rest of my life.

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