New here, 1.5 weeks post op Lobectomy….

Glad you are experiencing less pain now from the surgery. Walking is so helpful. My first weeks post-op were difficult ... my breathing was shallow and rapid... but that reduced as time went on and I was able to walk farther distances. Started Tagrisso a month after surgery and it's been 18 months now. Like you, my tumor was Stage 1B with no lymph node involvement and they identified the EGFR+ marker. My oncologist says the usual course of treatment is 3 years with continued PET scan monitoring after that. So good to have this online community where we can share our questions, our worries and our successes as we travel this road together.

@lisawolub You've got this. My spouse has a slightly different mutation and different drug, but same type. It has definitely extended his life, no doubt about it, as the PET scans showed metastatic disease in multiple locations prior to the drug. The past four have shown no evidence of disease. Yes, the drug has some side effects, but it has been incredible. Best of luck to you!

Hello @sierranevadagal395
I’m sorry to hear your first weeks in recovery were so tough. Must have felt just awful and so uncomfortable just to breathe… I’m glad that improved for you.
Great, 18 months, I’m about 3 1/2 months.
After my surgery my stage 1b became a stage 1a… and no lymph node involvement as you.
I wish you continued success with your treatment, and nothing but clear scans ahead ! I just had my first scan and no evidence of recurrence, yay !
Yes, I so agree, so glad we found mayo connect ! Yes, nicely put, “as we travel this road together” I like that 😊😊😊

@tinambor Thank you for the positive encouragement! So kind of you 🙂 I’m glad to have found this forum to connect with others who understand. ❤️ Take care and my best to you and your husband.

@mamajite
I am 76 years female, I have never smoked in my life.
I was diagnosed multifocal adenocarcinoma lung cancer in December, 2024.
I had two VATS procedures within a year: one on March 4, 2025, and another on January 13, 2026. Pathology showed:
EGFR L858R Exon 21
EGFR A767_V769dup Exon 20 & MED12 (Y1893*)
EGFR E746_T751 delinsl Exon 19.

My doctors said no further treatment is needed. However, a 2mm nodule was found in December, and the surgeon cannot remove it.
I have an upcoming CT scan on August 6. I feel overwhelmed by these recurring nodules and don't know when they will stop, or how to make them stop.

Helen

@hch559 hi Helen, I'm sorry you're having recurring nodules. I can certainly empathize. have you heard of the Aliya pulsed electric field treatment? it's fairly new and can be a good option for nodules that can't be surgically removed. worth asking your dr about it. a few folks here have had it done with good results.
https://galvanizetx.com/aliya-system/
have you had a liquid biopsy by any chance? I'm wondering if you might have a genetic risk factor for lung cancer like I do. I have the T790M EGFR mutation. this led to me have 3 different lung cancers (each with its own activating mutation) at the same time. there's a team at Dana Farber in Boston that specializes in genetic lung cancer. They have an ongoing study called the INHERIT study that I imagine you would be eligible to join.
https://inheritstudy.org/participation/

@mamajite
Just like yours, my 3 removed nodules were also 3 different lung cancers, each with its own activating mutation. I have a CT scan on 8/6 to look at a new 2mm nodule.
Thank you for the links; I'll check them out.
Helen

@hch559 if you want to do more reading on the topic:
https://www.lungcancerresearchfoundation.org/germline-egfr-mutations/
https://pmc.ncbi.nlm.nih.gov/articles/PMC9488670/

@mamajite
Thank you for the links. I will read them.
Helen

So happy for you keep smiling and walking.