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New here, 1.5 weeks post op Lobectomy….

Lung Cancer | Last Active: Aug 21 8:50pm | Replies (40)

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@hch559 hi Helen, I'm sorry you're having recurring nodules. I can certainly empathize. have you heard of the Aliya pulsed electric field treatment? it's fairly new and can be a good option for nodules that can't be surgically removed. worth asking your dr about it. a few folks here have had it done with good results.
https://galvanizetx.com/aliya-system/
have you had a liquid biopsy by any chance? I'm wondering if you might have a genetic risk factor for lung cancer like I do. I have the T790M EGFR mutation. this led to me have 3 different lung cancers (each with its own activating mutation) at the same time. there's a team at Dana Farber in Boston that specializes in genetic lung cancer. They have an ongoing study called the INHERIT study that I imagine you would be eligible to join.
https://inheritstudy.org/participation/

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Replies to "@hch559 hi Helen, I'm sorry you're having recurring nodules. I can certainly empathize. have you heard..."

@mamajite
Just like yours, my 3 removed nodules were also 3 different lung cancers, each with its own activating mutation. I have a CT scan on 8/6 to look at a new 2mm nodule.
Thank you for the links; I'll check them out.
Helen