How do you rate your quality of life post prostatectomy (RALP)?

Posted by 71/502 @brucerichardson, Jul 8 4:45pm

How would you rate your quality of life 2 years post RALP surgery? Scale 1-10.

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Profile picture for Jeff Marchi @jeffmarc

@surftohealth88
The doctor turned it on around noon today. It was supposed to take a minute or so to hold the sides in order to activate it took about 10 seconds. Works great……so far.

I was worried there would be a problem because I felt a loop of tubes inside near the top of the thing but the doctor says there’s no kinks and it sure worked right away.

I just opened a new package of Tena pads, my last!!!

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@jeffmarc
Very good, happy all is well!

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Profile picture for oldgreenpaint @oldgreenpaint

@diverjer Sometimes you just gotta do what you gotta do. I would be right there with you with my chainsaw.

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@oldgreenpaint
Here is what I had to deal with

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Profile picture for Jeff Marchi @jeffmarc

@surftohealth88
The doctor turned it on around noon today. It was supposed to take a minute or so to hold the sides in order to activate it took about 10 seconds. Works great……so far.

I was worried there would be a problem because I felt a loop of tubes inside near the top of the thing but the doctor says there’s no kinks and it sure worked right away.

I just opened a new package of Tena pads, my last!!!

Jump to this post

@jeffmarc

OMG 🥰😃 !!!! I AM SOOOO HAPPY FOR YOU !!!!! YEAYYYYYYYYYYY !!!!! : )))))

Oh what a wonderful news ! : ))))

I can only imagine your excitement and relief !!!
Now you are free from constant worry about leaking and you can travel and be active without any annoying squirts or anything - that is just AWESOME !!! 🙌

Your surgeon must be happy too : ))) - I always criticize doctors but I know that they are genuinely happy and proud when surgery goes well. Is he also at Kiser ? : )))) You really found just the best MO and surgeon in the area - I am so happy for you : )))) !

Well what more can I say but - ENJOY !!!! *hugssssssssss : ))) And keep us posted !!!! : )))

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Profile picture for diverjer @diverjer

@oldgreenpaint
Here is what I had to deal with

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@diverjer
Understand why you had to do what you had to do. Very sorry for this added to everything that you are dealing with.

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Profile picture for diverjer @diverjer

@oldgreenpaint
Here is what I had to deal with

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@diverjer

Oh wow : ((((, such a beautiful home, its a shame : (((. Luckily it did not fall in the middle (God forbid) *sigh Just crazy weather indeed and the tree is so tall - honestly there was some luck in all of this , I know that it sounds ridiculous perhaps, but it could have been much worse : (((. I am saying this so perhaps you can find some comfort that only the edge of the one roof got effected.
I am also so sorry to hear about your poor granddaughter - I really hope that she is not going to the same surgeon over and over again since he does not know what he is doing : (((. I wish that I am Gates (but only money-wise of course) and can help you bring your granddaughter to the Bay Area to see the best sport medicine surgeons because they are always the best. *sigh I am soooo, sooo sorry : ((( I really hope that all will end up well with her leg 😢, such a sad circumstance for such a young mother , just not fair ... : (((((

Sending hugs and healing vibes to your whole family <3

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Profile picture for surftohealth88 @surftohealth88

@jeffmarc

OMG 🥰😃 !!!! I AM SOOOO HAPPY FOR YOU !!!!! YEAYYYYYYYYYYY !!!!! : )))))

Oh what a wonderful news ! : ))))

I can only imagine your excitement and relief !!!
Now you are free from constant worry about leaking and you can travel and be active without any annoying squirts or anything - that is just AWESOME !!! 🙌

Your surgeon must be happy too : ))) - I always criticize doctors but I know that they are genuinely happy and proud when surgery goes well. Is he also at Kiser ? : )))) You really found just the best MO and surgeon in the area - I am so happy for you : )))) !

Well what more can I say but - ENJOY !!!! *hugssssssssss : ))) And keep us posted !!!! : )))

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@surftohealth88
My oncologist had told me the urologist was really an artist, And I would be happy with the results.

I didn’t spend much time with her today, but when she was about to walk out of the room, she hugged me. I hugged her back. She was real pleased with how well it went, She did tell me I had it much easier than many people.

I did have one problem when the stitches in my perineum came loose (my fault sitting down wrong, somehow) And there was a significant hole. I went to a urologist that’s more local, to take a look at it, He told me to wash it twice a day, and hopefully it will heal up, If it didn’t, they would have to pull all of the AUS out. They couldn’t close the stitches because that could close in an infection. The Doctor who did the surgery then said use Betadine twice a day on it. Fortunately, it had completely closed up when I went to see her today.

It’s definitely a relief to have this over.

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Profile picture for diverjer @diverjer

@oldgreenpaint
Here is what I had to deal with

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@diverjer Been there, done that, more than once. When your own home or home of a close friend or relative is affected, it is a special kind of motivation. Glad the tree didn’t bust a truss or the end wall framing. Roof plywood and shingles are way easier to repair.

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Profile picture for Jeff Marchi @jeffmarc

@surftohealth88
The doctor turned it on around noon today. It was supposed to take a minute or so to hold the sides in order to activate it took about 10 seconds. Works great……so far.

I was worried there would be a problem because I felt a loop of tubes inside near the top of the thing but the doctor says there’s no kinks and it sure worked right away.

I just opened a new package of Tena pads, my last!!!

Jump to this post

@jeffmarc

So far, so good! Congratulations!

I may eventually decide to get an AUS, probably after my one-year anniversary following prostatectomy, but I'm not ready for another surgery yet. Before making that decision, I'd like to learn as much as I can from people like you who have been through it. Your experiences and insights will be invaluable.

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Profile picture for soli @soli

@jeffmarc

So far, so good! Congratulations!

I may eventually decide to get an AUS, probably after my one-year anniversary following prostatectomy, but I'm not ready for another surgery yet. Before making that decision, I'd like to learn as much as I can from people like you who have been through it. Your experiences and insights will be invaluable.

Jump to this post

@soli
I went in at 9 o’clock for the surgery and left a little after noon. They did have to put me under. I really didn’t have any pain right after the surgery. During recovery the next couple of days, I did take a 5 mg oxycodone two or three times because the stitches in my perennial were painful sitting down. After three days, I rolled up a real thick towel and shaped it into a U and was able to sit down on it without any problem. From then On all I needed was Tylenol.

They did open up my stomach, about a 2” opening, but that never really hurt. I could feel it, but it was not painful.

The stitches in my perineum took about a week and a half to heal. I did sit down on a stool about a week and a half after the surgery and it was extremely painful For a few minutes. I think I tore some stitches in my perineum, it healed anyway and closed up.

They told me it would probably be six weeks or more before they would be able to turn it on. For that interim period things worked almost as normal, but I think the swelling inside due to the surgery caused me to leak a little bit less. Five weeks and one day after surgery I was recovered enough that they were able to turn it on. That didn’t even take 10 second. There was no pain involved. It was a simple procedure and worked right away.

I know other people in here have said that they leak a little even though they had the AUS. I don’t seem to be leaking at all. Could be they improved the device or the cuff around my urethra is exactly the right size so it doesn’t leak. I guess I will find out more in time.

There is one drawback of the device. When I have a fairly full bladder and go to pee, it shuts down too quickly after pressing the bulb. This morning, I had to press it four times to completely relieve myself. Each time it would stop the flow and I would have to press it to start it again. The first couple of times this happen I peed on the floor once and on the toilet seat once. Have to use two hands one to hold it so it doesn’t slide around, the other to pinch the bulb. Makes it difficult to direct the tip. Something you have to get comfortable doing.

That’s about all there is to say. It is such a relief to not have a problem anymore. I can go anywhere now and not worry.

REPLY
Profile picture for Jeff Marchi @jeffmarc

@soli
I went in at 9 o’clock for the surgery and left a little after noon. They did have to put me under. I really didn’t have any pain right after the surgery. During recovery the next couple of days, I did take a 5 mg oxycodone two or three times because the stitches in my perennial were painful sitting down. After three days, I rolled up a real thick towel and shaped it into a U and was able to sit down on it without any problem. From then On all I needed was Tylenol.

They did open up my stomach, about a 2” opening, but that never really hurt. I could feel it, but it was not painful.

The stitches in my perineum took about a week and a half to heal. I did sit down on a stool about a week and a half after the surgery and it was extremely painful For a few minutes. I think I tore some stitches in my perineum, it healed anyway and closed up.

They told me it would probably be six weeks or more before they would be able to turn it on. For that interim period things worked almost as normal, but I think the swelling inside due to the surgery caused me to leak a little bit less. Five weeks and one day after surgery I was recovered enough that they were able to turn it on. That didn’t even take 10 second. There was no pain involved. It was a simple procedure and worked right away.

I know other people in here have said that they leak a little even though they had the AUS. I don’t seem to be leaking at all. Could be they improved the device or the cuff around my urethra is exactly the right size so it doesn’t leak. I guess I will find out more in time.

There is one drawback of the device. When I have a fairly full bladder and go to pee, it shuts down too quickly after pressing the bulb. This morning, I had to press it four times to completely relieve myself. Each time it would stop the flow and I would have to press it to start it again. The first couple of times this happen I peed on the floor once and on the toilet seat once. Have to use two hands one to hold it so it doesn’t slide around, the other to pinch the bulb. Makes it difficult to direct the tip. Something you have to get comfortable doing.

That’s about all there is to say. It is such a relief to not have a problem anymore. I can go anywhere now and not worry.

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@jeffmarc
Thanks Jeff for finding time to give us all details- I am sure that many here will find this informative and helpful 👍 !

Would you mind sharing the name of your wonderful surgeon lady 🥰 ? If not, could you please send me a PM so I have her name in my files if in the future my husband develops any problems.

Thanks so much in advance and thanks again for sharing your experience with AUS <3.

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