Anyone had a UTI that is antibiotic resistant?

My husband has the exact same issues as you. It’s been 18 months with severe pelvic pain without solutions. My oncologist has no answers, urologist has no clue.
Idea came from my physician to get an painblock, waiting for the appointment. Im in hospital with severe dehydration and loss of weight. If a solution comes my way im happy to inform anyone that suffers the same as myself. RMJ

@susanna82 I have CKD stage 3B, as far as your diet, what foods do you eat now? I want and need increase my GFR, it’s 31 🙁 and I want to go back to stage 2 and hopefully 1

Please do not ever take Cipro!!! It can cause extremely serious connective and nerve tissue issues. Look up "Cipro is poison". I took Cipro a few times without issue, and then it was given past the patient age limits. When you are doubled over with a UTI, reading the insert doesn't happen. The last time it didn't clear the infection, and two weeks after the last dose, all hell broke loose. I was a lucky one, because at least I can walk again, it wiped most of a year's worth of my memory. (One good thing about that is I can watch movies again like they're new!)
Recently, I'd been taking Macrobid, but decided to get off antibiotics altogether. My ears ring constantly, my skin looks awful, UTIs keep coming back, etc.
I just got an Rx for Uromune, which is an oral vaccine that you can get in Mexico (not the US or Canada) through telehealth. My kid got it for me on her trip there. It is taken for 90 days, a squirt under your tongue once a day. I am 60 days in, with no issues. Look into it. It is about $400 - $500, but add up all the Dr. appointments and drugs and you'll see that's not too bad. I hope to be UTI free in the future. UTIs kill up to 33% of the elderly, my parents in particular.

@beautyj welcome to Mayo Clinic Connect. You have found your way to the Bladder Conditions Group. You might also find useful information in the Chronic Kidney Disease (CKD) group. There are members of all stages of CKD and there’s lots of information about kidney friendly diets. What kind of providers do you have now to help you with your eGFR?

@cehunt57 thank you and I will join that group as well. I have a nephrologist and an endocrinologist to help with my GFR.

@fincagirl welcome to Mayo Clinic Connect. I’m sorry you have experienced UTI issues. I would recommend keeping looking for a provider who will pay attention to your symptoms, suggest treatments and answer questions about the proposed treatments. We members here aren’t meant to take the place of professional providers so we don’t diagnose or prescribe treatments & medications.
It may help to make a list of your symptoms, past treatments and any questions / concerns you have. It could help you help your provider to stay focused and find a solution in your best interests.

@cehunt57 What you said is true, but I have seen a lot of doctors and two specialists. They all had something to say from "it's common", "try this", "colonized E. coli", and "normal parts". Here, take some more drugs. After my last round with Cipro and the devastating effects of it, I just kept up with the literature myself. I'm 2/3 through my Uromune Rx and have high hopes for it. For one thing, it has already been over two whole months without a UTI, and the studies on it have been great. Not that providers need to have firsthand infections themselves to be a good doctor, but I asked all of them, and NONE had ever had one themselves. Where I live now, I can get antibiotics without an Rx, and I was using Macrobid, one of the ones that is specific and doesn't ruin your ears, etc. Too late for that! Cipro caused tinnitus (along with other horrible things), so now I'm vaccinating with Uromune. I sure don't want to die from UTIs like my parents and MIL did. How pointless.

@rosemary2612 I had mine for 4 years almost constantly. I finally found a Urologist that knows what he is doing.
He went up into the bladder with a camera and a hose (so to speak) and when he sprayed in there, thousands of little white blobs came floating by on the screen.
He said I looked like a snow globe in there and I did. He had to do it twice to get it all,
after which he put antibiotic liquid right into the bladder.
All of that white stuff was old bacteria he explained and the new was growing off of it.
Thats why no antibiotics worked. I go back in 4 weeks to do it again.
I am now on sulfa drugs for 90 days and he seems to think that will do it.
No pain since.

@armywac what was the procedure that you had done and described in your post on June 28? Was it cystoscopy? Have you had a repeat of the procedure as planned? How are you doing now? (Sorry for all the questions!)

@fincagirl -- It is me, Fincagirl with an update. Yesterday, I finished the "90" day course of Uromune, and used the rest of the little bottle, so it lasts more than 90 days. I have had zero side effects and zero UTIs.
Just to reiterate, NEVER take CIPRO, the common Rx given. Look up "how many deaths has Cipro caused".