Anyone had a UTI that is antibiotic resistant?

@lulukc Hello gosh I almost forgot about my original post years ago. Things are worse but wont go into detail. At the risk of sounding "gross" .... for last few years after ibs-d and c.diff 2018 .. have had fecal incontinence and it is horrible... so its almost impossible to keep clean re utis and i had a portable bidet but to be honest the water could get contaminated and then affect bladder... risky. My adult daugher has one in her new luxyry seat-heated toilet 🙂 but again this would cause quite a mess ... so i find stepping into shower even if 3 times a day some days is best, water front to back... Anyway, to update. 12 antibiotics in 12 months 2024 and visible blood in urine, cystoscopy etc etc and they decided no more antibitics! So for 2025 no antibiotics, and apparently have systomatic? an unsystomatic? utis.. i have symptoms .. pain, frequency, more pain.. tiny amounts... AND it shows Leu and little bit of blood on urine test strips. Because I am older and because of the past this is wher I am at.... plus couple other health issues its the pits!!! I know others are suffering more than this but this daily and nightly issue is time consuming and dont often leave the house. Odd they can put somoene3 on the moon, or go around it but cannot FIX some medical issues 🙂 Thanks for the suggetions though.. and I will give it thought as what would I have to lose and MAY help ... appreciate it

I’ll add something here regarding a recurrent issue without a UTI. I am 76 and have had recurrent UTIs. The last one cleared with Mobid but left me with that “burning” before urine flows that can be part of a UTI. It won’t go away.
Urologist and gynecologist both suggested pelvic floor physical therapy. I have an appt in May for evaluation so I don’t know if it will be effective, but if anyone else has experience with pelvic floor PT please post.

...i had negative problems with pelvic floor squeezing ... as my issues started many many years ago, radiaton damage to bladder and bowel... got worse over the years. I have been shown while having cystoscopy he sprayed liquid onto inside of bladder and it bled... but its been on and off until 2024 12 antibiotics in 12 months and had urine tested at lab... but visible blood and the story is long... so October 2024 the urologist dismissed me from practice no more anticiotics so now i urinate often, small amounts, painful, night and day... and i have my own urine test strips which show a bit of infection: but to answer your question: during 2024 a physiotherapist sold me how to do the bladder thing, and the urologist suggested them: but for me, when I did them sometimes would start the bleeding. So this doesnt really help you, except to say that recently i read several articles that said these pelvic floor/bladder areas are not always the best.. and in fact suggested "relaxing " the bladder area with knees bent and legs a bit apart lying down. Seems we can fly around the moon but not fix this issue easily.... but if I were you I would at least try the exercises as it would be great if it helped...

My husband has the exact same issues as you. It’s been 18 months with severe pelvic pain without solutions. My oncologist has no answers, urologist has no clue.
Idea came from my physician to get an painblock, waiting for the appointment. Im in hospital with severe dehydration and loss of weight. If a solution comes my way im happy to inform anyone that suffers the same as myself. RMJ

@susanna82 I have CKD stage 3B, as far as your diet, what foods do you eat now? I want and need increase my GFR, it’s 31 🙁 and I want to go back to stage 2 and hopefully 1

Please do not ever take Cipro!!! It can cause extremely serious connective and nerve tissue issues. Look up "Cipro is poison". I took Cipro a few times without issue, and then it was given past the patient age limits. When you are doubled over with a UTI, reading the insert doesn't happen. The last time it didn't clear the infection, and two weeks after the last dose, all hell broke loose. I was a lucky one, because at least I can walk again, it wiped most of a year's worth of my memory. (One good thing about that is I can watch movies again like they're new!)
Recently, I'd been taking Macrobid, but decided to get off antibiotics altogether. My ears ring constantly, my skin looks awful, UTIs keep coming back, etc.
I just got an Rx for Uromune, which is an oral vaccine that you can get in Mexico (not the US or Canada) through telehealth. My kid got it for me on her trip there. It is taken for 90 days, a squirt under your tongue once a day. I am 60 days in, with no issues. Look into it. It is about $400 - $500, but add up all the Dr. appointments and drugs and you'll see that's not too bad. I hope to be UTI free in the future. UTIs kill up to 33% of the elderly, my parents in particular.

@beautyj welcome to Mayo Clinic Connect. You have found your way to the Bladder Conditions Group. You might also find useful information in the Chronic Kidney Disease (CKD) group. There are members of all stages of CKD and there’s lots of information about kidney friendly diets. What kind of providers do you have now to help you with your eGFR?

@cehunt57 thank you and I will join that group as well. I have a nephrologist and an endocrinologist to help with my GFR.

@fincagirl welcome to Mayo Clinic Connect. I’m sorry you have experienced UTI issues. I would recommend keeping looking for a provider who will pay attention to your symptoms, suggest treatments and answer questions about the proposed treatments. We members here aren’t meant to take the place of professional providers so we don’t diagnose or prescribe treatments & medications.
It may help to make a list of your symptoms, past treatments and any questions / concerns you have. It could help you help your provider to stay focused and find a solution in your best interests.

@cehunt57 What you said is true, but I have seen a lot of doctors and two specialists. They all had something to say from "it's common", "try this", "colonized E. coli", and "normal parts". Here, take some more drugs. After my last round with Cipro and the devastating effects of it, I just kept up with the literature myself. I'm 2/3 through my Uromune Rx and have high hopes for it. For one thing, it has already been over two whole months without a UTI, and the studies on it have been great. Not that providers need to have firsthand infections themselves to be a good doctor, but I asked all of them, and NONE had ever had one themselves. Where I live now, I can get antibiotics without an Rx, and I was using Macrobid, one of the ones that is specific and doesn't ruin your ears, etc. Too late for that! Cipro caused tinnitus (along with other horrible things), so now I'm vaccinating with Uromune. I sure don't want to die from UTIs like my parents and MIL did. How pointless.