Anyone had a UTI that is antibiotic resistant?

Posted by sealover101 @sealover101, Mar 26, 2022

Would like to know the latest findings and treatment for IUD that does not respond to antibiotics.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

@sealover101, when you say IUD are you referring to an intrauterine contraceptive device? Antibiotics do not affect IUDs.

REPLY

@sealover101 Do you have an infection that you think might have been caused by the IUD? What are your symptoms? Have you seen your doctor and if so what do they say? I'm trying to get a better understanding of your question so that I can give you support.

REPLY

Whoops, SORRY... I intended to ask a question about UTI. Let me try again!! Does anybody have experience with a UTI infection that is not completely cured after 3 rounds of antibiotics ? Symptoms are improved and culture tests also show better results, but mild discomfort and mild urgency are still there. I'm 80 years old and never had a UTI before. Also throughout my ilfe, I have taken very, very few antibiotics. Other than controlled AFIB my health is good.

REPLY

I had recurring UTIs for years. My OB-GYN never commented on it, just kept prescribing anti-biotics each time (all the times) my UTI roared back. Finally, a urologist put me on Bactrim, which I stayed on for years. No one warned me about the dangers of being on an anti-biotic for extended amounts of time.

Finally, the UTI went away, as I learned I had CKD. Since I have no other factors that would cause me to have CKD Stage 3 (Heredity, alcoholism, etc.) one can conclude it was the anti-biotic. No one warned me, but on the other hand, I did finally get rid of the UTI infection. That said, by being obsessive about diet and my GFRs, I have lowered my CKD to Stage 2.

REPLY
@sealover101

Whoops, SORRY... I intended to ask a question about UTI. Let me try again!! Does anybody have experience with a UTI infection that is not completely cured after 3 rounds of antibiotics ? Symptoms are improved and culture tests also show better results, but mild discomfort and mild urgency are still there. I'm 80 years old and never had a UTI before. Also throughout my ilfe, I have taken very, very few antibiotics. Other than controlled AFIB my health is good.

Jump to this post

@sealover101 Yes, I have had a UTI that did not clear up after rounds of antibiotics. This was 25 years ago. It turned out it was a kidney infection due to a large kidney stone lodged in the upper part of my left kidney. That was discovered when I developed a fever and lower back pain and was referred for an ultrasound. Once the kidney stone was removed through surgery I've had nothing like that again. I have had a few UTIs since then but these clear up with one round of antibiotics.

After that kidney stone episode I had regular urine cultures for a few years. What does your doctor say about your symptoms?

REPLY
@susanna82

I had recurring UTIs for years. My OB-GYN never commented on it, just kept prescribing anti-biotics each time (all the times) my UTI roared back. Finally, a urologist put me on Bactrim, which I stayed on for years. No one warned me about the dangers of being on an anti-biotic for extended amounts of time.

Finally, the UTI went away, as I learned I had CKD. Since I have no other factors that would cause me to have CKD Stage 3 (Heredity, alcoholism, etc.) one can conclude it was the anti-biotic. No one warned me, but on the other hand, I did finally get rid of the UTI infection. That said, by being obsessive about diet and my GFRs, I have lowered my CKD to Stage 2.

Jump to this post

Susanna82 thank you for sharing. You answered my question about lowering my GFR. My eGFR was 60 and 62. After the eGFR AA was changed my GFR lowered to 59 stage 3a. What diet change’s have you made?

REPLY
@codered032

Susanna82 thank you for sharing. You answered my question about lowering my GFR. My eGFR was 60 and 62. After the eGFR AA was changed my GFR lowered to 59 stage 3a. What diet change’s have you made?

Jump to this post

You want your GFR numbers to go up, not down. They indicate kidney function.

When I got my diagnosis - by accident - I began to read everything I could find on CKD. I still read, and try to stay informed about anything new. The first thing the doctors told me, and others report the same thing - was that in Stage 3 a or b CKD, you do not have to do anything. I see this all the time on blogs. That is terrible advice and should be ignored as you look for a different nephrologist. I raised my GFR over a period of several months from 50+ to between 64-and 69. This meant I have improved my kidney function and have gone from State 3 a or b, to Stage 2. As The Kidney Doc says, (see his cookbook and any other advice you can investigate) diet is more important than any medicine the doctor gives you. The insanity of telling patients that in Stage 3 they do not have to change anything is mind-numbing. While slow-moving, with CKD Stage 3 a or b you are tracking toward Stage 4, and then after that, dialysis. You need to change your diet immediately, starting with giving up meat, sugar, salt, and dairy. I have been a vegetarian for 20 years so the meat thing was not an issue for me. The trauma was over giving up chocolate. You will find lots of diets and food advice online. Your doctor should be able to refer you to a nutritionist, but what you specifically need is a kidney nutritionist. If the kidney physician you see tells you to do nothing in Stage 3, change doctors.

People do not die of Kidney Disease or for instance, diabetes. They die of cardiovascular disease, especially cardiac arrest. This means you have to begin an exercise regime of at least 30 minutes of exercise a day.

The big thing to me of all of it is slowing down, stopping, or reversing kidney disease. It is all about diet.

REPLY

This may sound silly, so please take it for what it's worth. A male friend had recurring simple (but one sent him to the hospital) UTIs over two years, continually trying a different antibiotic with some, but not great, success. I told him that female friends with similar complaint swear by cranberry juice. He finally saw a top-notch urologist who ruled out anything serious and put him on D-mannose, the primary source for which is, well, cranberries. The D-mannose helps the biofilm lining of the urethra be less hospitable to the bacteria as UTI bacteria are notoriously 'sticky' and attach easily to the tissue. Another win for simple phytochemicals.

REPLY
@sealover101

Whoops, SORRY... I intended to ask a question about UTI. Let me try again!! Does anybody have experience with a UTI infection that is not completely cured after 3 rounds of antibiotics ? Symptoms are improved and culture tests also show better results, but mild discomfort and mild urgency are still there. I'm 80 years old and never had a UTI before. Also throughout my ilfe, I have taken very, very few antibiotics. Other than controlled AFIB my health is good.

Jump to this post

I had a years-long battle with UTIs, The gynecologist would prescribe antibiotics, and it would clear up for a week or so and come back. Finally, a urologist put me on Bactrim. I stayed on it for 6 years. It cured my UTIs, over time, but is believed to be the cause of my CKD Stage 3a.

REPLY

@susan82, @naturegirl5, and all...Hello, fellow UTI'ers...I just got home from the hospital a couple of days ago after calling rescue to take me to the ED. Rescue thought I was having a heart attack at the time. In the ED they said it was a false positive, I was very dehydrated, etc. I'd had diarrhea and vomiting for a couple of hours before calling for help.

I hadn't felt well for about a month or so, didn't have any idea why and was getting worse. Last Tuesday, at about 4 o'clock I felt much worse and had bloating, pain in my left back, nauseous, and crawled into bed not understanding the problem. After the intestinal stuff began, I realized I needed help.

The ED put me on 2 IV antibiotics plus lots of fluids, of course. Funny thing, I drank the same amount of water and fluids that day I always do. I have heart failure and edema is always around, so I must balance the fluid intake with outgo. Nothing was different. The ED doctor said I was dehydrated and had some kind of abdominal infection. To this moment, the stool cultures are all normal.

When I was admitted to the hospital 24 hours later, I requested a urine test as they didn't do one in ED. Last year, I had 4-5 UTI episodes, one with sepsis and all with extremely high numbers-protein, bacteria, red blood cells, etc all out of sight. With several of those UTIs, there were no symptoms. None other than feeling lousy. I didn't think that was possible. I hadn't had a UTI for several years until last year, so all this was from nowhere. I have autoimmune diseases and other health issues but had stopped having UTIs. Then, one right after another.

I was on different antibiotics at different times. With sepsis, I had 2 IV antibiotics and a 10-day oral antibiotic. It cleared. But, another one a couple of months later. This really got my attention and now I'm hypersensitive about getting this infection and the problems it can cause. The urine test results were again out-of-sight numbers. I had a raging UTI~undetected. And, for the first time ever I had high calcium crystals. I don't take calcium and eat only yogurt as my calcium source.

The follow-up urine test later that afternoon was normal except for the high calcium crystals. The abdominal CT didn't show any issues other than fluid. So, was discharged the following day.

I called nephrology for insight into the urine results, no symptoms, how do I keep this from happening again...I think the entire episode was due to the UTI, it caused diarrhea and vomiting and other discomforts that led to dehydration and hospital. With no usual symptoms, what do I do?

I just got an email that the nephrologist wants to see me. This really concerns me regarding my kidneys, possible stones, etc. Does any of this make sense?
Thanks for any suggestions or insight you may have.
Blessings to all...Elizabeth

REPLY
Please sign in or register to post a reply.