Doesn’t anyone else feel …… ?
Everyone seems so calm and reasonable on here. Am I the only one who gets fed up and irritable?
This evening two things are driving me nuts: one is the constant contrariness, increased from his normal contrariness. (My daughter once said he’s the most contrary person she’s ever met. That was three years ago. Before these unexplained symptoms began.) The other irritation (aaarrrghh!!!) is the nearly always saying “Oh, I know.” When clearly, until it was explained, he did NOT know. (This too is an increase from his normal level of knowing everything.)
It truly seems that all the incompatible characteristics are greatly exaggerated now.
As is my level of irritation, which certainly does not help.
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@sunnygardens No you are not failing, simply going through an extremely difficult situation, to say the least. I try to take one day at a time, meeting all of my husband’s needs, and at the end of the day, I feel I’ve done by best, loving him through this cruel disease. I know my prayers are heard, and I know where I draw my strength. I hope, too, that you will let go and know you are doing your best each day, and be proud of who you are and the good that you’re doing for your loved one. Lots of love…
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11 ReactionsYou are not alone. I often feel like I just can’t do it anymore. She is sweet an mostly loving but has become so ‘simple’ like a 3 yr old. But all the stuff necessary to keep her safe and healthy weighs me down like a couple Mac trucks.
Starting a therapist, more daycare and maybe a weekend away…..
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9 Reactions@sunnygardens : I feel like you are describing my husband, however he can swing from one mood to another in minutes, so I’m constantly on eggshells I find myself avoiding any room he’s in. I feel angry, sad and frustrated most days, which I think most of us do also. However we are all in this together so on here we try to help each other with either helpful advice or relating to a situation. For me it’s very helpful, I can come on here in tears and leave calmer. that’s why we’re here.
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14 Reactions@ocdogmom i’m really sorry you’re losing someone you dearly love.
For you it feels like your not doing enough because you hope what you do will save him. You’re loving him through it all.
May God bless you with peace and joy.
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3 Reactions@dlssell it’s hard to let go, isn’t it? I will try to take up your method of “at the end of the day”, tell myself something positive.
As another last said, it often feels like it’s not enough. Because we can’t fix it.
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5 Reactions@judimahoney oh my gosh……
My occasional reaction is “What a pain in the arse!”
Is your husband waiting for surgery? My friends is. Now he’s considering going to a semi-private clinic in another province. Which will still cost thousands. Because the wait time here is 7-18 months.
Meanwhile the hernia enlarges, he’s in extreme pain or drugged with Tylenol, bored, irritable. He’s always had a low tolerance for pain. It’s a terrible situation for him.
I want the surgery to end all this, before his cognitive ability slides downhill even more.
Now I worry about the effect of the anesthetic on his brain…….
I wish we were neighbors, Judi. We could moan to each other in real life. 😁
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3 Reactions@akela09 what a terrific forum this is!
The similarities between some of us create such an understanding and erase some of the isolation and loneliness.
It’s a godsend for me.
Sending peace your way……🐝
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7 Reactions@sunnygardens
Virtual moaning will have to do.
My husband's Doc said his hernia did not warrant surgery because it was small. That's a win in my book.
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4 Reactions@judimahoney definitely!
But if it’s small he is actually capable of still doing lots of things. If he wants to safely lift a free pounds, he can wear a belt. Hopefully he has no discomfort from this small hernia.
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3 Reactions@sunnygardens Thank you for your understanding and kind thoughts. They mean a lot
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3 Reactions