Doesn’t anyone else feel …… ?

Posted by sunnygardens @sunnygardens, 3 days ago

Everyone seems so calm and reasonable on here. Am I the only one who gets fed up and irritable?
This evening two things are driving me nuts: one is the constant contrariness, increased from his normal contrariness. (My daughter once said he’s the most contrary person she’s ever met. That was three years ago. Before these unexplained symptoms began.) The other irritation (aaarrrghh!!!) is the nearly always saying “Oh, I know.” When clearly, until it was explained, he did NOT know. (This too is an increase from his normal level of knowing everything.)
It truly seems that all the incompatible characteristics are greatly exaggerated now.
As is my level of irritation, which certainly does not help.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

Profile picture for sunnygardens @sunnygardens

@kjc48 I’m trying. But it’s just such reasonable explanation that makes me think I’m failing if I’m not perfectly patient all of the time.
I’m grateful for those who tell their stores and admit their feelings on here, which helps me realize I’m not failing any more than anyone else, in my duty.

Jump to this post

@sunnygardens No you are not failing, simply going through an extremely difficult situation, to say the least. I try to take one day at a time, meeting all of my husband’s needs, and at the end of the day, I feel I’ve done by best, loving him through this cruel disease. I know my prayers are heard, and I know where I draw my strength. I hope, too, that you will let go and know you are doing your best each day, and be proud of who you are and the good that you’re doing for your loved one. Lots of love…

REPLY

You are not alone. I often feel like I just can’t do it anymore. She is sweet an mostly loving but has become so ‘simple’ like a 3 yr old. But all the stuff necessary to keep her safe and healthy weighs me down like a couple Mac trucks.
Starting a therapist, more daycare and maybe a weekend away…..

REPLY

@sunnygardens : I feel like you are describing my husband, however he can swing from one mood to another in minutes, so I’m constantly on eggshells I find myself avoiding any room he’s in. I feel angry, sad and frustrated most days, which I think most of us do also. However we are all in this together so on here we try to help each other with either helpful advice or relating to a situation. For me it’s very helpful, I can come on here in tears and leave calmer. that’s why we’re here.

REPLY
Profile picture for ocdogmom @ocdogmom

I wish my husband could still be contrary. In the past he would often challenge anything that I wanted to spend money on that he did not think was necessary. Now, he can barely get out more than 5-6 words in a day. He sleeps all day and is only out of bed when I get him up to feed him or take him outside for some sunshine. This contrariness will end someday because the dementia will eventually take away his ability to speak. I know it is difficult to live with someone that has a contrary personality. I know that with this dementia caregiving journey that I am on, I have become more emotionally fragile. I am not able to tolerate any opposition by anybody not just him. I am trying my best, as I am sure you are, but somehow it seems like it is just not enough. I am tired of this whole thing but realize that I just have to be patient and take it one day at a time. Posting here has been an enormous help knowing that I am not alone in this and that out there in the big wide world there are also people who get what this is like. May God bless you and give you the courage and patience you need.

Jump to this post

@ocdogmom i’m really sorry you’re losing someone you dearly love.
For you it feels like your not doing enough because you hope what you do will save him. You’re loving him through it all.
May God bless you with peace and joy.

REPLY
Profile picture for dlssell @dlssell

@sunnygardens No you are not failing, simply going through an extremely difficult situation, to say the least. I try to take one day at a time, meeting all of my husband’s needs, and at the end of the day, I feel I’ve done by best, loving him through this cruel disease. I know my prayers are heard, and I know where I draw my strength. I hope, too, that you will let go and know you are doing your best each day, and be proud of who you are and the good that you’re doing for your loved one. Lots of love…

Jump to this post

@dlssell it’s hard to let go, isn’t it? I will try to take up your method of “at the end of the day”, tell myself something positive.
As another last said, it often feels like it’s not enough. Because we can’t fix it.

REPLY
Profile picture for judimahoney @judimahoney

@sunnygardens
My husband has a hernia too, and isn't supposed to do any heavy lifting. Sigh...

Jump to this post

@judimahoney oh my gosh……
My occasional reaction is “What a pain in the arse!”
Is your husband waiting for surgery? My friends is. Now he’s considering going to a semi-private clinic in another province. Which will still cost thousands. Because the wait time here is 7-18 months.
Meanwhile the hernia enlarges, he’s in extreme pain or drugged with Tylenol, bored, irritable. He’s always had a low tolerance for pain. It’s a terrible situation for him.
I want the surgery to end all this, before his cognitive ability slides downhill even more.
Now I worry about the effect of the anesthetic on his brain…….
I wish we were neighbors, Judi. We could moan to each other in real life. 😁

REPLY
Profile picture for akela09 @akela09

@sunnygardens : I feel like you are describing my husband, however he can swing from one mood to another in minutes, so I’m constantly on eggshells I find myself avoiding any room he’s in. I feel angry, sad and frustrated most days, which I think most of us do also. However we are all in this together so on here we try to help each other with either helpful advice or relating to a situation. For me it’s very helpful, I can come on here in tears and leave calmer. that’s why we’re here.

Jump to this post

@akela09 what a terrific forum this is!
The similarities between some of us create such an understanding and erase some of the isolation and loneliness.
It’s a godsend for me.
Sending peace your way……🐝

REPLY
Profile picture for sunnygardens @sunnygardens

@judimahoney oh my gosh……
My occasional reaction is “What a pain in the arse!”
Is your husband waiting for surgery? My friends is. Now he’s considering going to a semi-private clinic in another province. Which will still cost thousands. Because the wait time here is 7-18 months.
Meanwhile the hernia enlarges, he’s in extreme pain or drugged with Tylenol, bored, irritable. He’s always had a low tolerance for pain. It’s a terrible situation for him.
I want the surgery to end all this, before his cognitive ability slides downhill even more.
Now I worry about the effect of the anesthetic on his brain…….
I wish we were neighbors, Judi. We could moan to each other in real life. 😁

Jump to this post

@sunnygardens
Virtual moaning will have to do.
My husband's Doc said his hernia did not warrant surgery because it was small. That's a win in my book.

REPLY
Profile picture for judimahoney @judimahoney

@sunnygardens
Virtual moaning will have to do.
My husband's Doc said his hernia did not warrant surgery because it was small. That's a win in my book.

Jump to this post

@judimahoney definitely!
But if it’s small he is actually capable of still doing lots of things. If he wants to safely lift a free pounds, he can wear a belt. Hopefully he has no discomfort from this small hernia.

REPLY
Profile picture for sunnygardens @sunnygardens

@ocdogmom i’m really sorry you’re losing someone you dearly love.
For you it feels like your not doing enough because you hope what you do will save him. You’re loving him through it all.
May God bless you with peace and joy.

Jump to this post

@sunnygardens Thank you for your understanding and kind thoughts. They mean a lot

REPLY
Please sign in or register to post a reply.