HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon on the group landing page.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Linda, Volunteer Mentor | @walkinggirl | 7 hours ago

Welcome to Connect, Chris! Yes, I stumbled upon this support group, too, after I had surgery for HCM. Where are you being treated? Please look for a COE (Center of Excellence) for HCM. We are a bit partial to Mayo in this discussion group (you can chuckle), yet we have Connect participants who have gone to many different excellent COEs and share their experiences. I am glad that you are researching HCM, we encourage people to find out all they can. Understanding is vital to generating questions for your doctor. Here is a link for a general overview: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198. I also recommend the nonprofit Hypertrophic Cardiomyopathy Association website: 4hcm.org. I encourage you to complete an intake interview with them, they can guide you on this journey. There are several Zoom meetings where you can interact with a moderator and others to learn and discuss aspects of HCM. How were you diagnosed with HCM and what steps in treating this disease have you taken so far?