← Return to HCM-ers: Introduce yourself or just say hi

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Profile picture for Debra, Volunteer Mentor @karukgirl

Hello @thnsspls, and welcome to Mayo Clinic Connect.
I'm glad you found us!
Have you had a chance to read the numerous posts here on Connect?
Here is a handy link to Mayo Clinic and information on HCM/HOCM:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
The Mayo Clinic is the world's leading experts in treatment of HCM. It's super important that your treating cardiologist is up-to-date on hypertrophic cardiomyopathy and the various treatments available to you.
It must have come as quite a surprise when you first learned you had this, how are you doing now processing all the information?
Are you healthy otherwise? Active?

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Replies to "Hello @thnsspls, and welcome to Mayo Clinic Connect. I'm glad you found us! Have you had..."

Hi @karukgirl, Thank you for the welcome message! As you said, this diagnosis has come as a great surprise, but at the same time, it helps to put a name to the distressing symptoms (back and chest pain, shortness of breath, palpitations) I’ve been feeling. Other than this issue, I am fairly healthy and active; I exercise 3-4 times/week (either cycling or hiking). I am under a cardiologist’s care, but will try to get an appointment at Northwestern Medicine’s COE for HCM, which is fortunately located only an hour away.