← Return to HCM-ers: Introduce yourself or just say hi

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Profile picture for Linda, Volunteer Mentor @walkinggirl

Welcome to Connect, Chris! Yes, I stumbled upon this support group, too, after I had surgery for HCM. Where are you being treated? Please look for a COE (Center of Excellence) for HCM. We are a bit partial to Mayo in this discussion group (you can chuckle), yet we have Connect participants who have gone to many different excellent COEs and share their experiences. I am glad that you are researching HCM, we encourage people to find out all they can. Understanding is vital to generating questions for your doctor. Here is a link for a general overview: https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198. I also recommend the nonprofit Hypertrophic Cardiomyopathy Association website: 4hcm.org. I encourage you to complete an intake interview with them, they can guide you on this journey. There are several Zoom meetings where you can interact with a moderator and others to learn and discuss aspects of HCM. How were you diagnosed with HCM and what steps in treating this disease have you taken so far?

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Replies to "Welcome to Connect, Chris! Yes, I stumbled upon this support group, too, after I had surgery..."

@walkinggirl
Hi Linda, Thank you for the warm welcome and the helpful resource links. In response to your questions, I was diagnosed following a recent hospitalization for Afib. I have since seen a cardiologist, who has referred me to a structural heart specialist who I’ll be seeing next month. Lots of uncertainty at this point, but I am still hopeful. It has helped to read about others’ experiences on this discussion board.