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Profile picture for susiewordsmith @susiewordsmith

Hello, fellow HCM-ers. I have the triple "gift" of 3 different heart conditions, managed by my wonderful cardiology team at University Hospitals (Cleveland), a Center of Excellence for HCM. After 3 MI's and 1 CRAO (Central Retinal Artery Occlusion - stroke in eye), I'm still here at 80..., still able to work on projects from time to time, and surprised/grateful to be here to witness grandchildren's accomplishments, etc. My father (loving thoughts on this Father's Day), died at 62 from MI, and I not only look like him, but inherited his lousy cardiac genes. High lip (a) (genetic) in addition to other issues, but between Praluent (for CAD), Rosuvastatin (for CAD), Pacemaker (for bradycardia) and Camzyos (for HCM), I'm hoping to finish the two books I am working on. Fortunately, I have a successor appointed to finish more important of two books. For now, UH is keeping me going. Interested to hear your stories, and compare notes. I found Camzyos a miracle drug!

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Replies to "Hello, fellow HCM-ers. I have the triple "gift" of 3 different heart conditions, managed by my..."

Hi @susiewordsmith, thank you for sharing your words of wisdom and hope on your HCM + journey! As if that weren't enough, you were given extra heart stuff.
You sound like you have a great attitude considering the cards you were dealt. That helps tremendously when life doesn't go smoothy...you face each challenge and carry on.

How wonderful that Camzyos is working so well for you! It sounds like it has given you a second chance to complete some important life goals you have. And a back up plan to boot!

You must have a lot of energy or stamina to be working on not just one, but two books at the same time. That takes some good concentration!
Can you share what your books are about?