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Amnestic Mild Cognitive Impairment (aMCI) Diagnosis

Posted by holycow21 @holycow21, May 14 11:52pm

My wife began exhibiting symptoms of short term memory loss about three years ago. To date, after numerous doctor visits and tests, no definitive diagnosis has been provided. I am at a loss as to what to do next. I am living with a person that is able to fully execute normal daily tasks, but struggles to remember conversations/events that occurred recently, creates “false memories “ and becomes very defensive/combative at times - especially when I share my observations with her.

I have been told that she likely has aMCI. Who can I contact to obtain this or a more appropriate diagnosis? I live in the Phoenix area. Thanks in advance for your help.

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labrown | @labrown | May 26 8:35am
In reply to @kjc48 "@labrown I'd like to say that everything is better. But I'm not sure. There are days,..." + (show)
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@labrown I'd like to say that everything is better. But I'm not sure. There are days, that are obviously better than others. What I do notice is that he doesn't seem to lose his phone or keys, or black knapsack as much, since he is putting that in the same place, and he remembers that place. But on the PC the other night, he was really confused, so it goes up and down. He still has trouble sequencing thoughts, or working through detail on things, with delayed thinking. Some days are better than others. He's on his 18th infusion next week, I'm wondering when the doctor sees him again, but now they are telling me with Lequembe it's 18 months of infusions (36 lequembe infusions) so I'm going to write his doctor a note in the portal, to see if there is a midway, meeting with the doctor. Best, Karla

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@kjc48 The fact that he is keeping up with his personal things has to be encouraging! 😊

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kjc48 | @kjc48 | May 26 9:09am

We were told those infusions would be beneficial since he's in the early stages of mild cognitive impairment. My husband wanted to do it, so we are doing it. Someone on this site did post they got good results where their treatment has been reduced down to a year vs. the 18 months. But that might be the Kinsula treatments, not the lequembe. Lequembe.com has some aspiring stories from lequembe users. I'm going to go onto that site and hear their story. I will tell you. According to my husband, the infusion clinic is packed with people - all ages from 65 on up - taking lequembe. Best, Karla
Best, Karla

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kjc48 | @kjc48 | May 26 9:15am
In reply to @labrown "@kjc48 The fact that he is keeping up with his personal things has to be encouraging!..." + (show)
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@kjc48 The fact that he is keeping up with his personal things has to be encouraging! 😊

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@labrown He has a very good attitude about this whole thing. Yes, I think that's it good that he's keeping up with his personal things, too. That was a fiasco before the diagnosis. I remember his napsack, out in the hotel driveway in the dark, where he had left it on the ground. I'm surprised it wasn't missing the next day. The TV changer gives him trouble, directions, to and from, even with me navigating, the PC trips him up, and various things on the phone, he keeps asking me to help with, but we're managing. He tells me I'm his care partner.
Best, Karla

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frickfrye | @frickfrye | 18 hours ago

Hello and sorry about your wife. If you are close to Mayo Clinic or other hospitals who are known to have excellent mental help professionals, they could help you and her to proceed with the proper oral and written testing and other resources to give you a accurate diagnoses and information. Many blessings for you and your family.

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birdiesville | @birdiesville | 11 hours ago
In reply to @kjc48 "I started with my husband's primary care doctor who gave him a basic question and answer..." + (show)
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I started with my husband's primary care doctor who gave him a basic question and answer memory test. From the results, she suggested he see a neurologist. Once in with the neurologist, he gave him a series of questions, and "do a certain set of things" test, which resulted in an MRI and Pet Scan. Then the diagnosis of MCI. From that point, because my husband was in the mild stages, and could still do things on his own on home - although he was forgetful, had sequencing issues, and couldn't remember things, and/or would lose, things - the neurologist put him on lequembe infusions to slow the Amyloid plaque growth down. He's on his 17th infusion this coming Monday, with one more to go before he goes on Maintenance. I would suggest you see a neurologist in the Phoenix area, and/or see if you can get into Mayo Clinic, with your primary care's referral. As for her getting combative, that's the disease. It's not worth fighting over. Keep the peace, take her to Mayo Clinic or some specialized medical care for "memory loss" where they can help diagnosis what she has, and more importantly. if in the early stages, what you can do. Best, Karla

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@kjc48 how were the leqeumbe infusions?

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Becky, Volunteer Mentor | @becsbuddy | 6 hours ago
In reply to @frickfrye "Hello and sorry about your wife. If you are close to Mayo Clinic or other hospitals..." + (show)
Profile picture for frickfrye @frickfrye

Hello and sorry about your wife. If you are close to Mayo Clinic or other hospitals who are known to have excellent mental help professionals, they could help you and her to proceed with the proper oral and written testing and other resources to give you a accurate diagnoses and information. Many blessings for you and your family.

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@frickfrye Welcome to Mayo Clinic Connect! Glad to have you aboard! MCC is a place to share personal experiences. We’re not doctors so no sharing of medicines, except to say they worked or didn’t work. Personal experiences are the most helpful!
@frickfrye What autoimmune disease might you have questions about?

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Becky, Volunteer Mentor | @becsbuddy | 6 hours ago
In reply to @birdiesville "@kjc48 how were the leqeumbe infusions?" + (show)
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@kjc48 how were the leqeumbe infusions?

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@birdiesville Welcome to Mayo Clinic Connect, a safe place where everyone shares their experiences with autoimmune diseases, medications to treat the disease, and problems concerning AD. We’re not doctors so we don’t diagnose or treat, just saying what works for us or doesn’t .

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kjc48 | @kjc48 | 4 hours ago
In reply to @birdiesville "@kjc48 how were the leqeumbe infusions?" + (show)
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@kjc48 how were the leqeumbe infusions?

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@birdiesville I answered in the thread above that my husband is now on his 19th lequembe infusion. You ask "how were the lequembe infusions.", they seem to be going well, he hasn't had any side effects. He goes every two weeks, and then a nurse follows up in the GUIDE program to check on him or to see if he needs any level of care. This program is tied to the infusion center my husband goes to in South Florida. I was reluctant initially over these infusions, but for my husband, as I stated in one of the other Connect threads, he has a good attitude and feels in the early mild stages of his MCI, he needed to do something, than sitting back and doing nothing at all. He also takes a supplement called Cerefolin for Brain health, from a company in Tampa (can also get the product now on Amazon), recommended by the same neurologist who is having his office give him the infusions. Hope this helps. Karla

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