Dealing with a Spouse with a “Mild Cognitive Impairment”
My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.
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I'm reading, a book, that someone on this site mentioned. Whoever recommended it thank you. This book is real gem, Loving someone with Dementia by Paula Boss. It talks about ambiguous loss, and someone being there physically but not psychological and the impact that has on the caregiver while we're trying to plow through our 36 hour day. I'm sure it's things we all know, but when we're caught up in the negative, with our own anxiety and fear of the unknown, that creates the added pressure of the love and support we're trying to give someone who's physical here but not psychologically. I appreciate the kind words about how "fortunate my husband is to have me on this journey." I'm trying, and like with every caregiver, we're all trying to do the best we can for our loved ones. Thanks, Karla
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9 ReactionsSomeone on this site recommended book, Loving someone with Dementia, Pauline Boss. Especially if you're going through therapy, I think the book, focuses on the caregiver's when dealing with someone physically but not psychologically there. I've just started it, and I can't believe how good it is - at least in helping and educating me. So I'm not so fearful of the unknown.
Best, Karla
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5 Reactions@ktcosmos Thank you. I"m reading Loving someone with Dementia which you mentioned and it's wonderful. Thank you. Best, Karla
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2 Reactions@oneputt thank you for sharing the name of this book. I have since gotten a copy and it seems like it will be very helpful! (I say seems as I have only read the introduction but what I’ve read so far gives me hope.)
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2 Reactions@blisst You are so welcome. I think the book has helped me to be more accepting and less angry which is huge for my 1/2 Italian temperament. I just had to take the car keys away from my 85 year old husband after multiple fender benders and a claim against our Ins. He is doing okay so far..lapses into thinking he could still drive, etc. Helping him get things done has actually given me a change of heart and has improved MY communication with him even if his side is still a bit confusing. My counselor has helped me to stay strong but kind about this situation with the driving. Good luck and stay strong too. My theme song is "I am not alone" by Kari Jobe. Check it out on you tube.
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6 Reactions@kjc48 Your so welcome! The book has helped me be more accepting rather than angry. Actually, when I woke up this morning - I realized how peaceful I felt and can't fully explain how this last year filled with stress and anger has so quickly changed. (my sister's prayers are powerful but this is really a huge answer to mine to be at peace). I just had to say "no more" driving to my husband which he is still getting use to but me having to be more in charge of his constant in and out of the driveway has taken so much stress out of my life and I think his too, really. I'm learning to acknowledge his feelings but be firm in my "It's just not safe for you or others and I will always be here for you, etc. etc."...just saying that to the person I wanted to run away from just 3 months ago is incredible!! Thanks be to God for sure!! take care Karla and enjoy the book!! This is oneputt by the way - aka Lori
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10 Reactions@oneputt I know who this is. My favorite "handle" - name on this site....oneputt!
@oneputt Your theme is I am not alone. My Mantra is Courage, Clarity, and God's steadfast light every day. Best, Karla
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2 Reactions@IndianaScott
Thank you so very much for your insightful post above. I’m at the beginning of this journey and am having a hard time accepting my husband’s forgetfulness. Your wise words about acceptance are so helpful.
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7 Reactions@donegal26 Glad my post helped a bit. Caregiving is a tough slog and filled with unknowns, changes, and challenges. Let me know if I can ever help with anything specific.
Strength, Courage, & Peace
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5 Reactions