Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

I'm reading, a book, that someone on this site mentioned. Whoever recommended it thank you. This book is real gem, Loving someone with Dementia by Paula Boss. It talks about ambiguous loss, and someone being there physically but not psychological and the impact that has on the caregiver while we're trying to plow through our 36 hour day. I'm sure it's things we all know, but when we're caught up in the negative, with our own anxiety and fear of the unknown, that creates the added pressure of the love and support we're trying to give someone who's physical here but not psychologically. I appreciate the kind words about how "fortunate my husband is to have me on this journey." I'm trying, and like with every caregiver, we're all trying to do the best we can for our loved ones. Thanks, Karla

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Someone on this site recommended book, Loving someone with Dementia, Pauline Boss. Especially if you're going through therapy, I think the book, focuses on the caregiver's when dealing with someone physically but not psychologically there. I've just started it, and I can't believe how good it is - at least in helping and educating me. So I'm not so fearful of the unknown.
Best, Karla

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Profile picture for ktcosmos @ktcosmos

@oneputt There’s a class (zoom based and free) that you can take based on the Pauline Boss book.
I’m almost finished with it and have found it very helpful.
It’s called Finding Meaning and Hope. I found it via the GUIDE program we are in here where I live and our particular instructor is in Flagstaff.

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@ktcosmos Thank you. I"m reading Loving someone with Dementia which you mentioned and it's wonderful. Thank you. Best, Karla

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Profile picture for oneputt @oneputt

Okay, so I attended a support group for people (care givers) that live with spouses, mothers, sisters who are at all levels of cognitive impairment. It was an eye opener for me and made me realize I'm pretty lucky. I get upset and irritated with my spouse due to all the issues that come along with this piece of crap disease but in this circle of 15 people baring their souls, I felt incredibly fortunate so far. The facilitator had a free book that I'd like to share with others because it is spot on about taking care of yourself as you take on more and more of the responsibilities. The book is by Pauline Boss, PhD and is called "Loving Someone Who Has Dementia" - how to find hope while coping with stress and grief. I can hardly put it down and feel it has already helped me in coping with my "new" everchanging adventure. Peace and love to all

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@oneputt thank you for sharing the name of this book. I have since gotten a copy and it seems like it will be very helpful! (I say seems as I have only read the introduction but what I’ve read so far gives me hope.)

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Profile picture for blisst @blisst

@oneputt thank you for sharing the name of this book. I have since gotten a copy and it seems like it will be very helpful! (I say seems as I have only read the introduction but what I’ve read so far gives me hope.)

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@blisst You are so welcome. I think the book has helped me to be more accepting and less angry which is huge for my 1/2 Italian temperament. I just had to take the car keys away from my 85 year old husband after multiple fender benders and a claim against our Ins. He is doing okay so far..lapses into thinking he could still drive, etc. Helping him get things done has actually given me a change of heart and has improved MY communication with him even if his side is still a bit confusing. My counselor has helped me to stay strong but kind about this situation with the driving. Good luck and stay strong too. My theme song is "I am not alone" by Kari Jobe. Check it out on you tube.

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Profile picture for kjc48 @kjc48

@ktcosmos Thank you. I"m reading Loving someone with Dementia which you mentioned and it's wonderful. Thank you. Best, Karla

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@kjc48 Your so welcome! The book has helped me be more accepting rather than angry. Actually, when I woke up this morning - I realized how peaceful I felt and can't fully explain how this last year filled with stress and anger has so quickly changed. (my sister's prayers are powerful but this is really a huge answer to mine to be at peace). I just had to say "no more" driving to my husband which he is still getting use to but me having to be more in charge of his constant in and out of the driveway has taken so much stress out of my life and I think his too, really. I'm learning to acknowledge his feelings but be firm in my "It's just not safe for you or others and I will always be here for you, etc. etc."...just saying that to the person I wanted to run away from just 3 months ago is incredible!! Thanks be to God for sure!! take care Karla and enjoy the book!! This is oneputt by the way - aka Lori

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Profile picture for oneputt @oneputt

@kjc48 Your so welcome! The book has helped me be more accepting rather than angry. Actually, when I woke up this morning - I realized how peaceful I felt and can't fully explain how this last year filled with stress and anger has so quickly changed. (my sister's prayers are powerful but this is really a huge answer to mine to be at peace). I just had to say "no more" driving to my husband which he is still getting use to but me having to be more in charge of his constant in and out of the driveway has taken so much stress out of my life and I think his too, really. I'm learning to acknowledge his feelings but be firm in my "It's just not safe for you or others and I will always be here for you, etc. etc."...just saying that to the person I wanted to run away from just 3 months ago is incredible!! Thanks be to God for sure!! take care Karla and enjoy the book!! This is oneputt by the way - aka Lori

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@oneputt I know who this is. My favorite "handle" - name on this site....oneputt!

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Profile picture for oneputt @oneputt

@blisst You are so welcome. I think the book has helped me to be more accepting and less angry which is huge for my 1/2 Italian temperament. I just had to take the car keys away from my 85 year old husband after multiple fender benders and a claim against our Ins. He is doing okay so far..lapses into thinking he could still drive, etc. Helping him get things done has actually given me a change of heart and has improved MY communication with him even if his side is still a bit confusing. My counselor has helped me to stay strong but kind about this situation with the driving. Good luck and stay strong too. My theme song is "I am not alone" by Kari Jobe. Check it out on you tube.

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@oneputt Your theme is I am not alone. My Mantra is Courage, Clarity, and God's steadfast light every day. Best, Karla

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Profile picture for Scott, Volunteer Mentor @IndianaScott

Good morning nod Happy New Year @tryingtimes10 I know you only asked for women's perspective, but my wife suffered from brain cancer and severe dementia-like symptoms, so I wanted to chime in. We were married for 41 years and she was diagnosed when she was 46.

I was my wife's sole caregiver for over 14 years. I think the most important things that helped me were these:

Her broken brain (disease) made her a different person. I had to accept that and learn to love this new person each day as things, and she changed over and over.

While we wish there were guarantees in life, there are none when it comes to our future. Also, life often feels unfair when it comes to how our lives change as we become caregivers.

My dad was an alcoholic, and I learned to live the mantra of "one day at a time" as a caregiver and to loving my spouse for how she was that day.

I had to learn to give up wishing this wasn't happening and wanting to go back to how things, and she, were in our past. Our clocks can never go backward.

I hope my insights might be of help.

Strength, Courage, & Peace

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@IndianaScott
Thank you so very much for your insightful post above. I’m at the beginning of this journey and am having a hard time accepting my husband’s forgetfulness. Your wise words about acceptance are so helpful.

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Profile picture for donegal26 @donegal26

@IndianaScott
Thank you so very much for your insightful post above. I’m at the beginning of this journey and am having a hard time accepting my husband’s forgetfulness. Your wise words about acceptance are so helpful.

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@donegal26 Glad my post helped a bit. Caregiving is a tough slog and filled with unknowns, changes, and challenges. Let me know if I can ever help with anything specific.

Strength, Courage, & Peace

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