Dealing with a Spouse with a “Mild Cognitive Impairment”

Posted by tryingtimes10 @tryingtimes10, Dec 31, 2024

My husband was diagnosed with MCI in 2019. He is pretty independent, just forgetful of time, dates, location of places, anything electronic & events from our life together (we’ve been married 52 years). It’s all just getting to me. I find myself wanting to be alone so I’m not continuously reminded of these changes. Because my friends/family are out of state, working, or involved with their own families, I really have no one to talk to so I’m seeing a therapist twice a week to deal with the sadness, anger, grief I have over his condition. I just wonder if other women find themselves in this position & how they are dealing with it.

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Profile picture for dbamos1945 @dbamos1945

@rubyslippers, et al: whew, it is a relief to read your post about how difficult conversation is getting. The 50 questions seem necessary to understand what subject he is discussing and Who!
As the day runs down it is difficult to engage in ANY verbal communication successfully!
I bet you wish you could click those ruby slippers together and appear somewhere calm, comforting and quiet somedays.

However, this is our lot sister- we need to dig deep, stay as positive as humanly possible and “accept this is our reality”!
Each day I emphasize to myself that today I can see the best in actions, appreciate every kind word, manage to keep my mouth shut when frustrated and make today the best day this week! I’m not saying I am successful, but by making this my goal I find I can learn to keep my mouth shut and maybe never understand the story he just told me. I don’t have any solutions to our new roles, I’m just as confused as we can get. We do have eachother to vent to when necessary and share a situation that may help each other. Thanks for being there!

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dbamos1945
My wife suffered a brain bleed one year ago. I have not left her side since.
I am wearing down and in isolation.

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Profile picture for ktl @ktl

dbamos1945
My wife suffered a brain bleed one year ago. I have not left her side since.
I am wearing down and in isolation.

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@ktl Please, find someone to help you so you can preserve your own health. Is your wife at home or in a care facility? Do you have friends or family who can give you a break occasionally?

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Profile picture for Sue, Volunteer Mentor @sueinmn

@ktl Please, find someone to help you so you can preserve your own health. Is your wife at home or in a care facility? Do you have friends or family who can give you a break occasionally?

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@sueinmn
So far all care is in our home. I don't even know what kind of care to seek.

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Profile picture for ktl @ktl

@sueinmn
So far all care is in our home. I don't even know what kind of care to seek.

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@ktl Please call your county Senior Services and ask for an in-home evaluation. Your wife's doctors or the hospital/rehab social worker should have suggested this, but no is a good time to start.
In home services very by location, but at least you may be able to find some respite care so you can go for a walk, get a haircut or take a nap.
If her situation is considered terminal, or no improvement is expected, you can also ask about hospice or palliative care (in your home) which can offer assistance with bathing, gentle exer uses to prevent contractures and sores, and similar.

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Thank you, and I will reach out locally. I appreciate your feedback.

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Profile picture for ktl @ktl

@sueinmn
So far all care is in our home. I don't even know what kind of care to seek.

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@ktl
Start with a local social worker, and the doctor.

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Profile picture for steilacoomcaregiver @steilacoomcaregiver

One of the books I ordered is "Creating Moments of Joy". I found the ideas helpful. Since reading through it we have done our normal " picnic lunch" at our local park and I have tried to look for good times and happy moments together. I started playing his CDs of favorite music and we even danced together in our living room. Sadly, MCI may or may not progress. Enjoy what's still reachable.

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@steilacoomcaregiver I was able to check this book out of our library. Great suggestion!

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Profile picture for lkbous @lkbous

@kmliste It is exhausting all of the time, and so very lonely. I don't think I can ever learn to smile and walk away. H is pretty stable, too. People outside of our family that know his diagnosis (whatever that is) say he doesn't seem like he's any different, boy do I wish that were true. He can be mean, he thinks he's always right and will look up things as soon as I say them to see if I'm right and delights if he has the slightest differentiation. When he gets confused in a conversation we're having or we're talking in circles (again), well you said, well you said, well I thought, blah blah blah, he will take a high and mighty stance and will say something like "ok, let's go back and go over this again!" and proceeds to explain what I said or did wrong and his version of how it played out, which is a confabulation. sometimes even telling me that I "need to learn". So very out of character for the man I married that was so understanding, kind, sweet, etc., etc.
Since he is still super independent, I find my self avoiding him and keeping very busy all day in every room except the one he's in, glued to the tv and his phone. I cry a lot because I hate this life and facing the future.
I'm sorry, I just realized I totally vented on you. I really wasn't replying to you to be all about me, but I'm leaving it so you know there are others grappling and so anyone else coming by will know they are not alone.
Bless you and keep on keeping on.

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@lkbous I am totally the same. We went to the doctors today, shopping etc and then had lunch at home. After lunch he asked if we were going out today. I’m so exhausted and like you wonder what the future holds. I have had three bad days and it hard watching everything you say so as not to upset him. I am mentally drained and so tired. We will no doubt get through this it’s just going to be one day at a time and more tears no doubt knowing I am losing the love of my life who tells me at least 10 times a day how much he loves me. More tears now.

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Profile picture for jeanadair123 @jeanadair123

@lkbous I am totally the same. We went to the doctors today, shopping etc and then had lunch at home. After lunch he asked if we were going out today. I’m so exhausted and like you wonder what the future holds. I have had three bad days and it hard watching everything you say so as not to upset him. I am mentally drained and so tired. We will no doubt get through this it’s just going to be one day at a time and more tears no doubt knowing I am losing the love of my life who tells me at least 10 times a day how much he loves me. More tears now.

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@jeanadair123 I’m sorry. It’s so frustrating, you’ve had him to turn to for whatever time you’ve had together, and you want to have him to turn to now in this sad time, but…well, you know.., it’s really hard to get used to not telling them everything, whether big or nonsensical—they just aren’t there for us any longer. It’s sad and mind boggling. Not only not to be able to share stuff with, but like you said, the exhausting ‘think before you speak’ surmising what can of worms you could open with ANY sentence that comes out of your mouth! I hear you and I’m feeling for you.

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Me too! We seem to loose more every day. Best thoughts for you…

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