@maurie56 My new medication is Low Dose Naltrexone (LDN) starting at very lose dosage and it’s being slowly increased over the initial months. In the past my doctors use standard migraine and occipital neuralgia medications since it was originally believed that the daily vestibular issues were caused by those. But all of those meds at best helped only temporarily, and then all lost any effectiveness over time. My vestibular issues can be so debilitating. I can just move my eye quickly or turn my head and the dizziness, nausea, and migraine pain all spike up. I’ve had too many falls to count. Now that I’ve been diagnosed with long covid at a large PACS Clinic, the treatment has shifted to treating the neuro-inflammation with LDN.
Yes. I have PPPD and the vestibular issues that come with that and Long Covid.
Dizziness. Brain Fog. Hearing loss. Exhaustion. I went through the Wellness Program at Mayo for Long Covid. I understand more now but am still experiencing life change due to ongoing issues related.
I have balance issues. And neuropathy in my left leg. No pain, just numbness. I first contracted Long Covid in April, 2020. When my doctor just laughed and suggested Pepto Bismol. Two nose swabs at the local hospital and nothing. Eevn that was not done properly and I question the efficacy of the tests. Finally, on my own, I went for a blood test and sure enough, I had the COVID any-bodies. I participated in several Long COVID studies, hoping that the researchers would learn more about this aggravating condition, to help others in the future. It is a challenge still to deal with the ongoing effects.
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What did you do to get better. Go into remission??
@maurie56 My new medication is Low Dose Naltrexone (LDN) starting at very lose dosage and it’s being slowly increased over the initial months. In the past my doctors use standard migraine and occipital neuralgia medications since it was originally believed that the daily vestibular issues were caused by those. But all of those meds at best helped only temporarily, and then all lost any effectiveness over time. My vestibular issues can be so debilitating. I can just move my eye quickly or turn my head and the dizziness, nausea, and migraine pain all spike up. I’ve had too many falls to count. Now that I’ve been diagnosed with long covid at a large PACS Clinic, the treatment has shifted to treating the neuro-inflammation with LDN.
Yes. I have PPPD and the vestibular issues that come with that and Long Covid.
Dizziness. Brain Fog. Hearing loss. Exhaustion. I went through the Wellness Program at Mayo for Long Covid. I understand more now but am still experiencing life change due to ongoing issues related.
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2 ReactionsI have balance issues. And neuropathy in my left leg. No pain, just numbness. I first contracted Long Covid in April, 2020. When my doctor just laughed and suggested Pepto Bismol. Two nose swabs at the local hospital and nothing. Eevn that was not done properly and I question the efficacy of the tests. Finally, on my own, I went for a blood test and sure enough, I had the COVID any-bodies. I participated in several Long COVID studies, hoping that the researchers would learn more about this aggravating condition, to help others in the future. It is a challenge still to deal with the ongoing effects.