Thanks for so many responses. I wasn’t expecting :). It’s not all in my head, you should see the lab diagnostics of my gut, liver, blood, pancreas….its scary!
I’m was already on some pre and probiotics and eliminating previous medications that helped for a time, then lost efficacy. I’m now on a slow build up of low dose naltrexone (LDN) given the neuro-inflammation component is probably the most serious in my case. I believe this is the first step to getting better and not being disabled. I miss being able to drive a car, or even going for a walk in the park without fear of falling. Or read a book or watch television and not forgot part way through what I was doing! The brain fog and short-term memory deficits are the worst part. Sometime i feel like the leaky gut that my labs showed is also a leaky brain!
Not sure I’d continued fighting for answers and finding better medical care if I thought I couldn’t find a cure long-term. I’m also trying to stay on top of all the clinical trials and other PACS related medical research for my specific issues. For instance, I always thought my dizziness was related to the migraines. But my new doctors have explained the impact of high variations in blood pressure and heart rate. I now realize those sudden changes are at least partially responsible for the constant dizziness and falls. Plus the neuro-inflammation makes it hard to recovered from injuries related to the falls!
Right now I have two objectives. The first is to get reasonably well. The second is to use my technology (think AI) and healthcare background to build a large non-profit to help others with Long-COVID and Post Covid Vaccine injuries. The latter keeps me going. I lost a year because doctors missed biomarkers in my tests and could have diagnose me much earlier. The medical community needs to be better informed and armed to help us. That is what gets me out of bed in the morning.
Re: balance issues, acupuncture a huge help. I first went to ENT, confirmed that it was not inner ear. After a long interview he said that balance issues are often caused by light sensitivity and related headaches. Made sense: my light sensitivity has gone through the roof since covid. The only thing that has helped is an acupuncturist, who had long covid. Balance improved 75% immediately. I am also doing PT for balance, prescribed by the ENT, it might be helping. Try acupuncture! Good luck and be well!
Re: balance issues, acupuncture a huge help. I first went to ENT, confirmed that it was not inner ear. After a long interview he said that balance issues are often caused by light sensitivity and related headaches. Made sense: my light sensitivity has gone through the roof since covid. The only thing that has helped is an acupuncturist, who had long covid. Balance improved 75% immediately. I am also doing PT for balance, prescribed by the ENT, it might be helping. Try acupuncture! Good luck and be well!
@greg1234 I have been dealing with these symptoms for over 5 years. I am always so dizzy that I have to use a walker (rollator) when standing. It is odd that I can sit, sleep or drive with no dizziness however. I have been to 6 physical therapy places, used all kinds of medications recommended by doctors, used nicotine patches and acupuncture with no improvement. But, I am very interested in trying acupuncture again with some specialist. How did you find someone that could understand and help you?
@greg1234 I have been dealing with these symptoms for over 5 years. I am always so dizzy that I have to use a walker (rollator) when standing. It is odd that I can sit, sleep or drive with no dizziness however. I have been to 6 physical therapy places, used all kinds of medications recommended by doctors, used nicotine patches and acupuncture with no improvement. But, I am very interested in trying acupuncture again with some specialist. How did you find someone that could understand and help you?
@kentkemmerling1949 so sorry that you have been suffering with this. it was just luck that I found this acupuncturist. I am guessing that one of the docs you saw was an ENT, in case you have an inner ear problem?
@greg1234 I have been dealing with these symptoms for over 5 years. I am always so dizzy that I have to use a walker (rollator) when standing. It is odd that I can sit, sleep or drive with no dizziness however. I have been to 6 physical therapy places, used all kinds of medications recommended by doctors, used nicotine patches and acupuncture with no improvement. But, I am very interested in trying acupuncture again with some specialist. How did you find someone that could understand and help you?
I’m sorry to hear about your struggles. If you can find a therapist that specialized in Vestibular therapy (usually an Occupational, not Physical therapist). I waited months for an appointment, but the Vestibular therapist has been helpful in identifying triggers that make my condition worse. The therapy exercises help if I do regularly, but I’m not able to do on bad ‘crash’ days. Living with a constant dizziness is a debilitating Long Covid symptom for me. I hope you find relief,
In my case ENTs were not help at all since my Long Covid subtype is Myalgic Encephalomyelitis (ME)/ Chronic Fatigue Syndrome (CFS). In my case doctors believe it’s neuro-inflammation in brainstem that causes issues. I had one less than competent ENT tell me my ears were fine without any suggestions what to do! It took countless appointments with neurologists, pain specialists, two migrine centers and eventually a Covid clinic before one explained how neuro-inflammation could be causing my issues. That took several years!
Thanks for so many responses. I wasn’t expecting :). It’s not all in my head, you should see the lab diagnostics of my gut, liver, blood, pancreas….its scary!
I’m was already on some pre and probiotics and eliminating previous medications that helped for a time, then lost efficacy. I’m now on a slow build up of low dose naltrexone (LDN) given the neuro-inflammation component is probably the most serious in my case. I believe this is the first step to getting better and not being disabled. I miss being able to drive a car, or even going for a walk in the park without fear of falling. Or read a book or watch television and not forgot part way through what I was doing! The brain fog and short-term memory deficits are the worst part. Sometime i feel like the leaky gut that my labs showed is also a leaky brain!
Not sure I’d continued fighting for answers and finding better medical care if I thought I couldn’t find a cure long-term. I’m also trying to stay on top of all the clinical trials and other PACS related medical research for my specific issues. For instance, I always thought my dizziness was related to the migraines. But my new doctors have explained the impact of high variations in blood pressure and heart rate. I now realize those sudden changes are at least partially responsible for the constant dizziness and falls. Plus the neuro-inflammation makes it hard to recovered from injuries related to the falls!
Right now I have two objectives. The first is to get reasonably well. The second is to use my technology (think AI) and healthcare background to build a large non-profit to help others with Long-COVID and Post Covid Vaccine injuries. The latter keeps me going. I lost a year because doctors missed biomarkers in my tests and could have diagnose me much earlier. The medical community needs to be better informed and armed to help us. That is what gets me out of bed in the morning.
@onpainsufferer sounds like you are on the right track by recognizing you have at least 2 underlying issues that can cause dizziness & memory problems: the autoimmune inflammation & blood pressure/palpitations. Add to that, leaky gut results in malnutrition, another possible source of your symptoms. Maybe focus on the more manageable blood pressure/palpitations & see if that helps with any symptoms. Meanwhile, there are lifestyle changes that may help calm down your COVID-triggered immune system. Hang in there!
I first contracted Covid in 2022. Then contracted again in 2023 & 2024 ( i had 4 vaccines). Then, after getting over the covid virus in March of 2024 LONG COVID came for a visit.
I've been dealing with LONG COVID now since at 2024, maybe longer.
This is March 2026, I've been isolating ( whenever possible) since October 2025.
This is March 27th, I am happy (with reservations) to say I feel as though my Long Covid saga may be in remission.
I know this is a large statement to make, but I feel, I wanted to make this statement, maybe it could give others hope.
I've been monitoring this and many other forums for about 3 years now, looking for "GOOD INFORMATION" from fellow struggler's.
So, during this last episode ( which started in July2025)
and was the worst episode I've had.
I had a least 20 symptoms, at various times, including: night sweats; FATIGUE; GASTROINTESTINAL; brain fog; leg numbness;tinnitus; cold sores; personality changes,( which felt like dementia, schizophrenia, Alzheimer's, depression ).VASCULAR, inflammation, sleep problems, etc ,etc.
I became disillusioned with doctors, Covid specialists etc, with what I have felt to be limited treatments. At no fault of their own, The learning process showed me that doctors deal with symptoms in isolation. Meaning, they have treatments for individual symptoms, but not multiple symptoms together.
By October 2025 I felt that my body was deteriorating, and thinking any of my symptoms would possibly end with my demise.
Because of this, I decided to use various protocols that I had researched and found on various forums and research sites.
My remission began in November, as my symptoms began to subside.
I wasn't sure, because I felt I had it beat before, only to have it return again and again. I still find myself living with the thought, would it return?
Things progressed, by December my symptoms had diminished enough that I tried to increase my endurance. As a test, I attempted a 4-mile strenuous hike. I didn't even make it half way!
I tried again in December, only making half way.
My endurance, I knew was a pivotal test, as fatigue wiped me out. I couldn't exercise without fatigue wiping me out after.
I've been gradually building endurance since December.
I had lapses, which told me to slow down and not push it too much. (swimming hiking biking).
My last attempt at the hike was Wednesday 25th 2026.
I made it! With the help of my new rescue dog "Spud"
The hike ended up being 5 miles, with an ascent of 3300ft. To me, AT 70, NO MEAN FEAT ! . It took us 6 hours.
This is Friday 27th March 2026. I rested yesterday, I feel some minor twinges, ( to be expected), but generally good!
I have not had the covid 19 virus since March 2024 because I'm isolating, with protocols.
Hopefully, my progress continues.
I know that myself, and others may loose hope from time to time with this illness, ( disease).
Hopefully this will rekindle hope for others .
I'll post again, to let people know how, (or if) the progress continues.
The process has been long, but I'm staying the course. It's a long story....
Connect
Connect
Like
Helpful
Hug
Thanks for so many responses. I wasn’t expecting :). It’s not all in my head, you should see the lab diagnostics of my gut, liver, blood, pancreas….its scary!
I’m was already on some pre and probiotics and eliminating previous medications that helped for a time, then lost efficacy. I’m now on a slow build up of low dose naltrexone (LDN) given the neuro-inflammation component is probably the most serious in my case. I believe this is the first step to getting better and not being disabled. I miss being able to drive a car, or even going for a walk in the park without fear of falling. Or read a book or watch television and not forgot part way through what I was doing! The brain fog and short-term memory deficits are the worst part. Sometime i feel like the leaky gut that my labs showed is also a leaky brain!
Not sure I’d continued fighting for answers and finding better medical care if I thought I couldn’t find a cure long-term. I’m also trying to stay on top of all the clinical trials and other PACS related medical research for my specific issues. For instance, I always thought my dizziness was related to the migraines. But my new doctors have explained the impact of high variations in blood pressure and heart rate. I now realize those sudden changes are at least partially responsible for the constant dizziness and falls. Plus the neuro-inflammation makes it hard to recovered from injuries related to the falls!
Right now I have two objectives. The first is to get reasonably well. The second is to use my technology (think AI) and healthcare background to build a large non-profit to help others with Long-COVID and Post Covid Vaccine injuries. The latter keeps me going. I lost a year because doctors missed biomarkers in my tests and could have diagnose me much earlier. The medical community needs to be better informed and armed to help us. That is what gets me out of bed in the morning.
-
Like -
Helpful -
Hug
2 ReactionsI have same symptoms, brain fog, dizzy, tinnitus and etc. Dr's unable to help me, but notvsure if covid caused this??
-
Like -
Helpful -
Hug
1 ReactionRe: balance issues, acupuncture a huge help. I first went to ENT, confirmed that it was not inner ear. After a long interview he said that balance issues are often caused by light sensitivity and related headaches. Made sense: my light sensitivity has gone through the roof since covid. The only thing that has helped is an acupuncturist, who had long covid. Balance improved 75% immediately. I am also doing PT for balance, prescribed by the ENT, it might be helping. Try acupuncture! Good luck and be well!
-
Like -
Helpful -
Hug
2 Reactions@greg1234 I have been dealing with these symptoms for over 5 years. I am always so dizzy that I have to use a walker (rollator) when standing. It is odd that I can sit, sleep or drive with no dizziness however. I have been to 6 physical therapy places, used all kinds of medications recommended by doctors, used nicotine patches and acupuncture with no improvement. But, I am very interested in trying acupuncture again with some specialist. How did you find someone that could understand and help you?
@kentkemmerling1949 so sorry that you have been suffering with this. it was just luck that I found this acupuncturist. I am guessing that one of the docs you saw was an ENT, in case you have an inner ear problem?
I have done the inner ear test 3 times and no problem. I am looking for anyone that has had success on what might be non-traditional medicine.
@kentkemmerling1949
I’m sorry to hear about your struggles. If you can find a therapist that specialized in Vestibular therapy (usually an Occupational, not Physical therapist). I waited months for an appointment, but the Vestibular therapist has been helpful in identifying triggers that make my condition worse. The therapy exercises help if I do regularly, but I’m not able to do on bad ‘crash’ days. Living with a constant dizziness is a debilitating Long Covid symptom for me. I hope you find relief,
-
Like -
Helpful -
Hug
2 Reactions@kentkemmerling1949
In my case ENTs were not help at all since my Long Covid subtype is Myalgic Encephalomyelitis (ME)/ Chronic Fatigue Syndrome (CFS). In my case doctors believe it’s neuro-inflammation in brainstem that causes issues. I had one less than competent ENT tell me my ears were fine without any suggestions what to do! It took countless appointments with neurologists, pain specialists, two migrine centers and eventually a Covid clinic before one explained how neuro-inflammation could be causing my issues. That took several years!
@onpainsufferer sounds like you are on the right track by recognizing you have at least 2 underlying issues that can cause dizziness & memory problems: the autoimmune inflammation & blood pressure/palpitations. Add to that, leaky gut results in malnutrition, another possible source of your symptoms. Maybe focus on the more manageable blood pressure/palpitations & see if that helps with any symptoms. Meanwhile, there are lifestyle changes that may help calm down your COVID-triggered immune system. Hang in there!
I first contracted Covid in 2022. Then contracted again in 2023 & 2024 ( i had 4 vaccines). Then, after getting over the covid virus in March of 2024 LONG COVID came for a visit.
I've been dealing with LONG COVID now since at 2024, maybe longer.
This is March 2026, I've been isolating ( whenever possible) since October 2025.
This is March 27th, I am happy (with reservations) to say I feel as though my Long Covid saga may be in remission.
I know this is a large statement to make, but I feel, I wanted to make this statement, maybe it could give others hope.
I've been monitoring this and many other forums for about 3 years now, looking for "GOOD INFORMATION" from fellow struggler's.
So, during this last episode ( which started in July2025)
and was the worst episode I've had.
I had a least 20 symptoms, at various times, including: night sweats; FATIGUE; GASTROINTESTINAL; brain fog; leg numbness;tinnitus; cold sores; personality changes,( which felt like dementia, schizophrenia, Alzheimer's, depression ).VASCULAR, inflammation, sleep problems, etc ,etc.
I became disillusioned with doctors, Covid specialists etc, with what I have felt to be limited treatments. At no fault of their own, The learning process showed me that doctors deal with symptoms in isolation. Meaning, they have treatments for individual symptoms, but not multiple symptoms together.
By October 2025 I felt that my body was deteriorating, and thinking any of my symptoms would possibly end with my demise.
Because of this, I decided to use various protocols that I had researched and found on various forums and research sites.
My remission began in November, as my symptoms began to subside.
I wasn't sure, because I felt I had it beat before, only to have it return again and again. I still find myself living with the thought, would it return?
Things progressed, by December my symptoms had diminished enough that I tried to increase my endurance. As a test, I attempted a 4-mile strenuous hike. I didn't even make it half way!
I tried again in December, only making half way.
My endurance, I knew was a pivotal test, as fatigue wiped me out. I couldn't exercise without fatigue wiping me out after.
I've been gradually building endurance since December.
I had lapses, which told me to slow down and not push it too much. (swimming hiking biking).
My last attempt at the hike was Wednesday 25th 2026.
I made it! With the help of my new rescue dog "Spud"
The hike ended up being 5 miles, with an ascent of 3300ft. To me, AT 70, NO MEAN FEAT ! . It took us 6 hours.
This is Friday 27th March 2026. I rested yesterday, I feel some minor twinges, ( to be expected), but generally good!
I have not had the covid 19 virus since March 2024 because I'm isolating, with protocols.
Hopefully, my progress continues.
I know that myself, and others may loose hope from time to time with this illness, ( disease).
Hopefully this will rekindle hope for others .
I'll post again, to let people know how, (or if) the progress continues.
The process has been long, but I'm staying the course. It's a long story....
-
Like -
Helpful -
Hug
2 Reactions