Post stem cell transplant for scleroderma, which involved high dose chemo/radiation and steroids, I have very limited ability to walk that so far was not diagnosed as why. As I start walking at a normal pace, my lower abdomen gets tense, dizziness, my blood pressure goes up, shortness of breath, confusion, tingling. I also have some muscle weakness in the arms and legs and muscle wasting. Pins and needles with tingling. My Systemic Sclerosis may be causing this, or possibly a complication post chemo/radiation - autoimmune neuropathy? Does this sound like Chronic Idiopathic Demyelinating Polyneuropathy CIDP?
Hi, I've been battling SSc for 12 years now. I also have sjogren's syndrome, Fibromyalgia, Interstitial lung disease (ILD), Hashimoto's thyroiditis -hypothyroidism (underactive thyroid), Arthritis, Raynaud's phenomenon, Gastroesophageal reflux disease (GERD), IBS- Irritable bowel syndrome, Schatzki ring, Small mouth (microstomia), Sclerodactyly-permanent contractures, Arms permanent contractures, Digital Ulcers, Calcinosis Cutis, Pulmonary Arterial Hypertension (PAH), whole body skin involvement- tightening, discoloration (pigmentation changes), seborrheic dermatitis, telangiectasia, Facial Changes, unable to move certain joints (wrists & most fingers), thyroid nodules, heart block, heart arrhythmia, depression and anemia. That covers most, I believe. Medications I take are CellCept, Sulcrafate, Sulindac,
Gabapentin, Baclofen, Duloxetine, Pantoprazole, Famitodine, Sildenafil, docusate sodium, oxygen 2 liters, Indomethacin, oxycodone, and rituximab infusions. OTC- vitamin b12, Tylenol, ibuprofen, probiotic and prebiotic, aspirin low dose. Waiting on a new pulmonologist for medication. I've tried a lot of treatments in my years; unfortunately my case is a difficult one. Loosing my hair; besides everything else.
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Does this sound like autonomic neuropathy?
Post stem cell transplant for scleroderma, which involved high dose chemo/radiation and steroids, I have very limited ability to walk that so far was not diagnosed as why. As I start walking at a normal pace, my lower abdomen gets tense, dizziness, my blood pressure goes up, shortness of breath, confusion, tingling. I also have some muscle weakness in the arms and legs and muscle wasting. Pins and needles with tingling. My Systemic Sclerosis may be causing this, or possibly a complication post chemo/radiation - autoimmune neuropathy? Does this sound like Chronic Idiopathic Demyelinating Polyneuropathy CIDP?
Any insights will help. Thank you
Hi, I've been battling SSc for 12 years now. I also have sjogren's syndrome, Fibromyalgia, Interstitial lung disease (ILD), Hashimoto's thyroiditis -hypothyroidism (underactive thyroid), Arthritis, Raynaud's phenomenon, Gastroesophageal reflux disease (GERD), IBS- Irritable bowel syndrome, Schatzki ring, Small mouth (microstomia), Sclerodactyly-permanent contractures, Arms permanent contractures, Digital Ulcers, Calcinosis Cutis, Pulmonary Arterial Hypertension (PAH), whole body skin involvement- tightening, discoloration (pigmentation changes), seborrheic dermatitis, telangiectasia, Facial Changes, unable to move certain joints (wrists & most fingers), thyroid nodules, heart block, heart arrhythmia, depression and anemia. That covers most, I believe. Medications I take are CellCept, Sulcrafate, Sulindac,
Gabapentin, Baclofen, Duloxetine, Pantoprazole, Famitodine, Sildenafil, docusate sodium, oxygen 2 liters, Indomethacin, oxycodone, and rituximab infusions. OTC- vitamin b12, Tylenol, ibuprofen, probiotic and prebiotic, aspirin low dose. Waiting on a new pulmonologist for medication. I've tried a lot of treatments in my years; unfortunately my case is a difficult one. Loosing my hair; besides everything else.