Connect
← Return to Scleroderma (Systemic Sclerosis): Anyone else?
Discussion
Scleroderma (Systemic Sclerosis): Anyone else?
Autoimmune Diseases | Last Active: Jun 6 10:18am | Replies (93)Comment receiving replies
Also check out the YouTube informative videos posted by the Scleroderma Foundation. I was diagnosed over 20 years ago. Still learning to manage the array of symptoms.
Yesterday received my order of 60 hand warmers for Reynauds needed all year- cold in the winter and air conditioning the summer/ no housing heat to speak of spring and summer.
Replies to "Also check out the YouTube informative videos posted by the Scleroderma Foundation. I was diagnosed over..."
@jerce
Wow 60. I have maybe 6 and just always charging. I have heated gloves and socks.
I get Raynouds at times of stress as well.
I have Sleraderma and Sjögren's as well.. So not a good thing. Hugs and prayers sent your way...
Connect
@jerce
Hi, I was diagnosed 4 years ago with systemic sclerosis and ever since has been progressing rapidly, even post autologous stem cell transplant plus chemoradiation, which I think only made me worse. I was much slower progressing before the transplant.
You have survived this condition for 20 years! Can you please share your scleroderma journey, your symptoms and treatments at diagnosis, and how your treatments and skin/joints/mobility were progressing from there.
I hope, you are doing well.