← Return to Scleroderma (Systemic Sclerosis): Anyone else?

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Profile picture for sclerobarbiie3 @sclerobarbiie3

Hi, I've been battling SSc for 12 years now. I also have sjogren's syndrome, Fibromyalgia, Interstitial lung disease (ILD), Hashimoto's thyroiditis -hypothyroidism (underactive thyroid), Arthritis, Raynaud's phenomenon, Gastroesophageal reflux disease (GERD), IBS- Irritable bowel syndrome, Schatzki ring, Small mouth (microstomia), Sclerodactyly-permanent contractures, Arms permanent contractures, Digital Ulcers, Calcinosis Cutis, Pulmonary Arterial Hypertension (PAH), whole body skin involvement- tightening, discoloration (pigmentation changes), seborrheic dermatitis, telangiectasia, Facial Changes, unable to move certain joints (wrists & most fingers), thyroid nodules, heart block, heart arrhythmia, depression and anemia. That covers most, I believe. Medications I take are CellCept, Sulcrafate, Sulindac,
Gabapentin, Baclofen, Duloxetine, Pantoprazole, Famitodine, Sildenafil, docusate sodium, oxygen 2 liters, Indomethacin, oxycodone, and rituximab infusions. OTC- vitamin b12, Tylenol, ibuprofen, probiotic and prebiotic, aspirin low dose. Waiting on a new pulmonologist for medication. I've tried a lot of treatments in my years; unfortunately my case is a difficult one. Loosing my hair; besides everything else.

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Replies to "Hi, I've been battling SSc for 12 years now. I also have sjogren's syndrome, Fibromyalgia, Interstitial..."

@sclerobarbiie3 I want you to know that I am so sorry that you have so many health problems in addition to systemic scleroderma.

My scleroderma is like a milk fed puppy compared to so many of us.

@sclerobarbiie3

Hi, thank you for sharing.
What is your dose and schedule for Rituximab?
Is it prescribed for RA or for SSc?
What kind of side effects post Rituximab infusions?

@sclerobarbiie3
So so sorry! I have alot, but you have more to handle. Prayers!!!