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Scleroderma (Systemic Sclerosis): Anyone else?
Autoimmune Diseases | Last Active: Jun 6 10:18am | Replies (93)Comment receiving replies
@jerce
Hi, I was diagnosed 4 years ago with systemic sclerosis and ever since has been progressing rapidly, even post autologous stem cell transplant plus chemoradiation, which I think only made me worse. I was much slower progressing before the transplant.
You have survived this condition for 20 years! Can you please share your scleroderma journey, your symptoms and treatments at diagnosis, and how your treatments and skin/joints/mobility were progressing from there.
I hope, you are doing well.
Replies to "@jerce Hi, I was diagnosed 4 years ago with systemic sclerosis and ever since has been..."
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@altabiznet I decided to check: I was diagnosed with scleroderma 27 years ago. That was the year that Maureen Mayes M.D. published her “Scleroderma Book.”
I think that the other name for this autoimmune illness is: Anything Can Happen.
That is why my journey is only relevant to me. There has been much scientific research since my diagnosis. I have learned how lucky I have been to be spared most of the symptoms plaguing members of support group I attended briefly.