Anyone been prescribed Ohtuvayre (new med)? Your experience?

Yes, I was some prescribed ohtuvare and it’s making my lungs better. My oxygen is going up to 100% and I’m go off Oxygen and I stay at about 95% and I can breathe and I only need to use it one time per day because it causes me to have trouble falling asleep at night it gives me lots of energy and I feel better and I don’t have a history of mental illness and I’m very happy it makes me really happy not sad or depressed, but I have been able to go without Oxygen and go outside and be free again and I stopped smoking a year ago and I’m getting better and I think it’s the owner of there because I was allergic to the Anora and the trilogy was dropping my oxygen down 35 levels cause I’m allergic to milk protein so my insurance company but it’s $4000 for the owner there but my United Healthcare policy pays $2700.13 and then yeah and then there’s a $300 deductible. OK go ahead.

Yes, I was some prescribed ohtuvare and it’s making my lungs better. My oxygen is going up to 100% and I’m go off Oxygen and I stay at about 95% and I can breathe and I only need to use it one time per day because it causes me to have trouble falling asleep at night it gives me lots of energy and I feel better and I don’t have a history of mental illness and I’m very happy it makes me really happy not sad or depressed, but I have been able to go without Oxygen and go outside and be free again and I stopped smoking a year ago and I’m getting better and I think it’s the owner of there because I was allergic to the Anora and the trilogy was dropping my oxygen down 35 levels cause I’m allergic to milk protein so my insurance company but it’s $4000 for the owner there but my United Healthcare policy pays $2700.13 and then yeah and then there’s a $300 deductible. OK go ahead.

Ktf! What a great find.......Ohtu=02! Very subtle! I will search to see if I can find a site that will explain the different methods of pulmonary toileting. Being a 45 year veteran nurse helps a lot too! The congestion is the worse ever that is why some of the methods in conjunction with inhalers and nebulizers help and coughing continually is exhausting. The Ohtuvayre, jfsherley, is delivered via jet nebulizer twice a day. It is specifically intended to reduce secretions in a different manner (system) than Dupixent . The studies showed favorable results and was approved in June of July by the FDA. Marketing and availability through specialty pharmacies since September.

@lisa4trump I’m glad the ohtuvayre is helping you, I’m on it maybe little over a year, I had a lot of issues breathing and after I was using it it definitely helped me big time, I told my doctor it was a miracle drug, you mentioned only once a day because it gave you energy in the night, I’m wondering maybe that’s why I’m up so late because I can’t sleep lucky if I get 4 hours, I may change when I take it just to see, good luck stay strong

@suzyq61
How long did it take for you to notice it works?

@lisa4trump may I ask what stage your lungs are in? I used it for 2 wks & ended up with an exacerbation bc of all the Oak allergies that have come through here in South Texas,..So I will try again once off all the Prednisone..

@tjphillipp honestly I can’t remember how fast but I can say it wasn’t a long time before I definitely felt the difference. I’m
On it about year and a half, Time now has passed and last September I started to become out of breath walking around my house so now I’m on nucala also, I got my first injection 3 weeks ago and I’m starting to feel better and moving around better then I was .

@suzyq61 what is Nucala

@tjphillipp it’s a once a month injection , I’m going to copy an paste some information,
Nucala is a biologic medication, specifically a monoclonal antibody, used to treat conditions like severe eosinophilic asthma, chronic obstructive pulmonary disease (COPD) with an eosinophilic phenotype, and hypereosinophilic syndrome. It works by reducing the number of eosinophils, a type of white blood cell that can cause inflammation in the lungs.
They did blood work on me and I had plenty,
Now before the infection I was out of breath a lot, now I’m 3 weeks in and I’m walking around my house not being out of breath. It took probably two weeks to feel a difference. Everyone’s body is different some medication may work for one but not for another but it is helping me, only thing I noticed in the beginning I was very tired but not no more, after the 4 week I go for my second injection. Hope I was helpful on this

@suzyq61 okay I don’t have the eosinophils issue so no asthma. Thanks