Anyone been prescribed Ohtuvayre (new med)? Your experience?

@eastwestnorthsouth

I have stage 4 copd and I'm on oxygen 24//7 also. I take this medicine two a day as prescribe by my doctor, it seems to open my lungs, you just have to keep using it, for it to work. I feel a lot better now. I use the Ipratropium Bromide and Albuterol Sulfate 3 times a day, and I use the Ohtuvayre twice a day once in the morning and a night before I go to bed, at first I was having trouble with it but I called the company that I get it from and the told me have to use.
You just have to give it a little while before you feel the difference.

@pattymc Interesting you mentioned oak allergies. I have found that I too sometimes have exacerbations when I am around oak leaves and dirt when weeding...I try to watch when I am working around the flowerbeds, but sometimes it gets me. As i previously wrote, the ohtuvayre was a negative for me, made my breathing a LOT worse, improved after I was off it a couple weeks.

I have been on it Ohtuvayre for about 2 months it does open my airways to help me breathe better for a few hrs & still feeling like a guinea pig testing the Script I noticed recently I have been coughing up more phlegm,but it’s been cooler here in Florida & been walking my dog more….

Yes, on 6 weeks. Crashed. Four days in hospital. More or less on old meds, back to normal. Not really definite was O2, but off. And never saw an effect of any kind.

@rick33763
I just received mine to start. Problem one, have several of the side effect already. My question is, did you have phlegm before you started it? Because I never cough or have phlegm. My problem is I have too much co2 and it’s getting trapped. I was on oxygen 24/7 for 4 years and complaining my breathing was getting worse. Questioned why I seemed to do better without while sitting. No test was done to confirm my questions until I had to get an updated walk. Just came right in and said, I no longer needed oxygen! Scared to death but my family dr sent me for another test walking and they said I did while walking. 2 yrs now and still no further walks or breathing test. My breathing has been much better, now that I only use it while being active, but don’t need it sitting. So a little scared to try something that hasn’t been out that long or could make me worse. I read if breathing gets worse, stop or go to ER.

Ohtuvayre drug class is : phosphodiesterase inhibitor, specifically 3 & 4. So not exactly in the category of theophilline. Personally, having started on Ohtuvayre as an add-on .......the first week I remain unimpressed. I am also on Dupixent, however, it seems to have lost its oomph after 7 months. Perhaps I developed antibodies to it, no one can give me an answer. I think its wise to start Dupixent and am hoping that it does you a world of good and relief! Let us know!

Gm kfalda. My pulmonologist and I discussed the pros & cons of the ohtovayre & we decided to hold off on using it yet. Maybe down the road.

Btw I noticed that “ohtu” corresponded to O2 - coincidence- perhaps.

@tschoch
So scared to try it now. I have too much trapped c02. Doing much better after stopping oxygen 24/7 for over 4 years. Afraid it made me worse. But do need it when doing anything reaching or simple activities being up moving around. Glad your ok.