Entire spine hurts - Due to Fibromyalgia?

@iamlisa sounds like you’ve had and are still having lots of pain. I’m not sure what am ACDF is , but I’m wondering if it is a cervical fusion? How disheartening to have a procedure only to come away from that with such intense, life-altering pain. I do know & have been told that ongoing pain can cause depression...I know that when I’m about to start a Fibro flare, I first notice a change in mood. Sounds like you are doing all you can to get relief. I wish you better days ahead.

Wouldn’t it be great if we found out the cause of Fibro? I know there are still people, & some are in the medical field too, who don’t believe it’s a real medical condition

The weather in my area of Florida is beautiful today. I'm thankful for that since it helps the fibro when the temp rises. I've taken my vitamins and supplements, including Fibro Malic. I know Fibro is a complex disorder which effects the entire body. Lately I have had occasional blurry vision. Yesterday it was so bad I could not read anything on the computer but there were things I needed to complete--you know, those pesky bills waiting to be paid, LOL Lucky for me I had a pair of glasses that were like new that I just couldn't get made correctly.(long backstory here) So I put them on and was able to complete my tasks and watch the evening news as well.
How about you? Do you get suddenly get a new symptom that stops you in your tracks?

@sandytoes14 I live in California and when weather changes her ,yes we do have changed I hurt more ,one thing Jen you might want to look into for fibro is Epsom Salt Rub I use it for fast relief as it is magnesium Its by ProCure and has Aloe Vera in it .I have blurry vision some days but I also have M.D. And glaucoma right now all is stabilized my Dr is happy ,me too have a good day just keep fighting

@anniemaggie well I’m happy that you’re able to ignore it, but it must be quite painful and tough to do. I can possibly ignore it when it literally causes me numbness and spasm so extreme my mobility just disappears for a number of days. I wish it weren’t the case.

I live in London, England has been having wet and cold weather, and that affects me aswell.I am recently diagnosed with fibromyalgia but I also have known back issues. Back pain has been going on for years
MRI after 2 falls showed slipped disc bulging discs etc and Radiculopathy, emg showed chronic neurogenic changes in right vastus so in other words there's other stuff that goes along side / adds to the fibromyalgia pain .I recently had a lorry hit the back of my car which caused a flare. Bad back can cause pain independently of fibromyalgia which turns up the pain volume. I totally get it, it's been awful trying to stay mobile with fibromyalgia and a bad back. I think I might have just got my meds right. I take 1 pregabalin tablet in the morning 4 amtripuline tablets and 1 more pregabalin tablet in the evening. I wasn't going to go down the tablet route but I am feeling so much better on these tablets. I am hoping to wean off them later but for now it's really helpful. I almost feel like the old me!. The only downside is over here pregabalin is a class C drug and I have to speak to GP every month to get a new supply.

It sounds like a lot more than Fibro. Get to a rheumatologist and get xrays of your spine

@guineapiglover i’m sorry you are suffering through all of that and not getting the care that you need. There are a lot of pain management things that could be done on your back to help relieve the pain. There could be fluid filled sacks. There could be cysts that are easily removed. There could be RFA injections, which are non-invasive and do a tremendous job at permanently relieving pain when they’re done multiple times. When they stop working then it’s time for back surgery. I loved my major lumbar spine fusion surgery in 2018. It gave me my life back. It allowed me to work and walk and have pleasurable activities again after so many years of suffering and going through the partial treatments that partially helped. It was all a process to work up to the surgery the way the medical industry has to see it being done. I still take low-dose oxycodone because the pain in my tailbone is almost constant, and all the doctors consulted will not do surgery on the tailbone. So I am OK with that and I have surgeries done on my hips and my spine and pain management treatments done on things around my spine to help. Keep it in good shape. Try an MFR therapist. A myofascial release massage. Those therapist also can diagnose some of your problems and eliminate a tremendous amount of pain. They are miracle workers and I’ve been getting treatments for 30 years of one sort or another. I didn’t find the MFR therapist until late in my process and after multiple surgeries. I had to have the surgery, but it would’ve been super nice to have the MFR therapist in the beginning to diagnosed some of the my muscular problems on top of the bone issues. Try everything in the toolbox!

Many thanks for your detailed response. When I was admitted to hospital for 2nd time in July last year after falling over( probably from dizziness from duloxetine I was on at the time) I was told by the neurologist surgery was not required at this moment. They thought I had irritation instead of nerve compression at the time although my right leg is slightly weaker now. My right leg went numb 2 years ago for 3 weeks but NHS didn't do much until I physically fell over. The pain is amplified by the fibromyalgia but neurology didn't know I have this aswell as Radiculopathy. The slipped disc was only mild to moderate and they couldn't understand why I was in so much pain. I think it's not always obvious that several different things are going on at once. I was to be seen in the neurology clinic in due course, that was on my letter dated mid September.Still waiting of course as our wonderful NHS is under alot of pressure. I have just been discharged from pain clinic as according to the pain consultant fibromyalgia is treated within the community. I did ask if they could do some spinal injections but I was told they would need a new MRI .They have ordered one but I am not convinced I will ever get one!, and the discharge is still going ahead so they probably won't even read it and just pass it on to gp or neurology.
, I am presuming they will let neurology deal with my issues eventually. I am at least grateful getting the class C drugs which have relieved some of my pain but I will definitely be on a downer when I am told I can no longer take them as at the mo I am on quite a high!. To be honest I feel I am stuck between departments and falling into the cracks. Any mention of fibromyalgia despite having spinal issues seems to make everyone disappear....The only plus side is at least my GP seems to be happy to dish out the pills and I think they will be my first port of call. I will look at MFR as I never thought of this , thankyou!