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Entire spine hurts - Due to Fibromyalgia?

Fibromyalgia | Last Active: Mar 17 3:32pm | Replies (58)

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Profile picture for guineapiglover @guineapiglover

I live in London, England has been having wet and cold weather, and that affects me aswell.I am recently diagnosed with fibromyalgia but I also have known back issues. Back pain has been going on for years
MRI after 2 falls showed slipped disc bulging discs etc and Radiculopathy, emg showed chronic neurogenic changes in right vastus so in other words there's other stuff that goes along side / adds to the fibromyalgia pain .I recently had a lorry hit the back of my car which caused a flare. Bad back can cause pain independently of fibromyalgia which turns up the pain volume. I totally get it, it's been awful trying to stay mobile with fibromyalgia and a bad back. I think I might have just got my meds right. I take 1 pregabalin tablet in the morning 4 amtripuline tablets and 1 more pregabalin tablet in the evening. I wasn't going to go down the tablet route but I am feeling so much better on these tablets. I am hoping to wean off them later but for now it's really helpful. I almost feel like the old me!. The only downside is over here pregabalin is a class C drug and I have to speak to GP every month to get a new supply.

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Replies to "I live in London, England has been having wet and cold weather, and that affects me..."

@guineapiglover i’m sorry you are suffering through all of that and not getting the care that you need. There are a lot of pain management things that could be done on your back to help relieve the pain. There could be fluid filled sacks. There could be cysts that are easily removed. There could be RFA injections, which are non-invasive and do a tremendous job at permanently relieving pain when they’re done multiple times. When they stop working then it’s time for back surgery. I loved my major lumbar spine fusion surgery in 2018. It gave me my life back. It allowed me to work and walk and have pleasurable activities again after so many years of suffering and going through the partial treatments that partially helped. It was all a process to work up to the surgery the way the medical industry has to see it being done. I still take low-dose oxycodone because the pain in my tailbone is almost constant, and all the doctors consulted will not do surgery on the tailbone. So I am OK with that and I have surgeries done on my hips and my spine and pain management treatments done on things around my spine to help. Keep it in good shape. Try an MFR therapist. A myofascial release massage. Those therapist also can diagnose some of your problems and eliminate a tremendous amount of pain. They are miracle workers and I’ve been getting treatments for 30 years of one sort or another. I didn’t find the MFR therapist until late in my process and after multiple surgeries. I had to have the surgery, but it would’ve been super nice to have the MFR therapist in the beginning to diagnosed some of the my muscular problems on top of the bone issues. Try everything in the toolbox!