Anyone been prescribed Ohtuvayre (new med)? Your experience?

Posted by kdalda75 @kndaustin71, Oct 18, 2024

Has anyone been prescribed the new COPD medication by their treatment team....Ohtuvayre? Just wondering if it now active, how it is effecting patients and how well it does/doesn't work

Interested in more discussions like this? Go to the COPD: Chronic obstructive pulmonary disease Support Group.

Profile picture for suzyq61 @suzyq61

@jmcasbar honestly I’m not sure exactly how long I’d have to look into that, lately times flying and it’s hard remembering some things lol i haven’t a clue why my breathing changed, doc had me do a catscan this past December and he said he had a hard time reading it maybe mucus is there which i didn’t get but he wants me to get another in June, I told him with all the medications out there there’s gotta be something I can try so finally he said let’s try nucala, that’s a once a month injection, waiting to see what insurance will agree. I’m the same as having issues with humidity, last summer I was in most of it. I don’t cough I don’t have any congestion I just have issues walking and getting out of breath. So for now I sit and wait

Jump to this post

@suzyq61
I also have breathing issues.
I am taking NAC with
Liposomal
Glutathione and breathing better..really helps alleviating Mucus!

REPLY

For those who need help with their copay for Ohtuvare: Verona Pathway Plus; phone # 833-372-8492. When you call, they will take your information and can email you a form to fill out. It is your basic information, type of insurance, yearly income, # people in house, and if your copay is more than $125. That’s it. Just finished2/23/26, will update when I get approved or not.

REPLY

I was prescribed about 2 months ago. So far so good. I have noticed less need for the inhalers in course of the day. Saw my pulmonologist last week, he said my pulmonary function has improved? I feel much better in the am, by evening I get drained. As of now I am taking am and pm. I have become very gassy!! But seems to have improved my breathing!!

REPLY

Haven't posted in quite awhile as things appeared to be running a normal course for Stage 4 COPD with chronic bronchitis phenotype. Last year about this time (2025) had a spell of illness that put me on and off of Prednisone/Antibiotics for almost mid-March. New Pulmo Dr placed me on continuous O2 at 2-3l, I rallied but lost alot of conditioning so started at the gym with a fantastic personal trainer training for a repeat 6-minute walk with better result. Hit with an exacerbation in November, been down-hill all the way. I am drowning in secretions despite the Dupixent I've been taking. Doing all the pulmonary "things"" along with Breztri and ventolin.have gotten progressively worse and had to boost my O2 to 4 liters & get short of breath at that. There is nothing more terrifying than feeling that you are not getting enough air. Gotta have a plan,
I am fresh out of ideas so would appreciate anyone well versed by knowledge and/or experience opinion and/or input. I have gone to see an Interventional Pulmo who suggested removal of the three Zephyr valves I had placed in 2023 as they are non-functional....
it seems that the only approach my General Pulmo can come up with is a Prednisone 40mg x 5 days and a 20 mg x 5 day taper.
Any thoughts anyone could share with me, please.

REPLY

Those of you posting comments who have had good/satisfactory results with Ohtuvayre do you have a chronic bronchitis with your COPD/Emphysema? And if so have the secretions and congestion gotten better by taking Ohtuvayre

REPLY
Profile picture for tschoch @tschoch

I have been on it for two weeks and am very disappointed. No effect at all. Doc says keep trying. I am at the point of barely making it and was really looking forward to it.

Jump to this post

@tschoch I have been on Ohtuv.,,and see no difference; get very light-headed after use; shortness of breath the same after 3 weeks; used my albuterol neb today 3 hours after ohtuv and got better relief. Some comments about ohtuv efficacy are made by those PAID by the pharma company who has greatly restricted its availability and distribution. I am skeptical; disappointed; and most importantly question why my hospital specialty pharmacy is prohibited from dispensing it forcing me to deal with a for-profit.

REPLY
Profile picture for kdalda75 @kndaustin71

Haven't posted in quite awhile as things appeared to be running a normal course for Stage 4 COPD with chronic bronchitis phenotype. Last year about this time (2025) had a spell of illness that put me on and off of Prednisone/Antibiotics for almost mid-March. New Pulmo Dr placed me on continuous O2 at 2-3l, I rallied but lost alot of conditioning so started at the gym with a fantastic personal trainer training for a repeat 6-minute walk with better result. Hit with an exacerbation in November, been down-hill all the way. I am drowning in secretions despite the Dupixent I've been taking. Doing all the pulmonary "things"" along with Breztri and ventolin.have gotten progressively worse and had to boost my O2 to 4 liters & get short of breath at that. There is nothing more terrifying than feeling that you are not getting enough air. Gotta have a plan,
I am fresh out of ideas so would appreciate anyone well versed by knowledge and/or experience opinion and/or input. I have gone to see an Interventional Pulmo who suggested removal of the three Zephyr valves I had placed in 2023 as they are non-functional....
it seems that the only approach my General Pulmo can come up with is a Prednisone 40mg x 5 days and a 20 mg x 5 day taper.
Any thoughts anyone could share with me, please.

Jump to this post

@kndaustin71 Exacerbating since December with COPD and ABPA; 9 days in hospital; 2 pneumonias; Bronch; specimens still growing; ; increased Pred from 5 >20> 40 daily; Cresemba for lung fungi (++visual side-effects) started Ohtuvayre w/ no change in shortness of breath (+ light-headedness).Questioning toll of side effects vs efficacy of drug cocktails.

REPLY
Please sign in or register to post a reply.