← Return to Anyone been prescribed Ohtuvayre (new med)? Your experience?

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Profile picture for kdalda75 @kndaustin71

Haven't posted in quite awhile as things appeared to be running a normal course for Stage 4 COPD with chronic bronchitis phenotype. Last year about this time (2025) had a spell of illness that put me on and off of Prednisone/Antibiotics for almost mid-March. New Pulmo Dr placed me on continuous O2 at 2-3l, I rallied but lost alot of conditioning so started at the gym with a fantastic personal trainer training for a repeat 6-minute walk with better result. Hit with an exacerbation in November, been down-hill all the way. I am drowning in secretions despite the Dupixent I've been taking. Doing all the pulmonary "things"" along with Breztri and ventolin.have gotten progressively worse and had to boost my O2 to 4 liters & get short of breath at that. There is nothing more terrifying than feeling that you are not getting enough air. Gotta have a plan,
I am fresh out of ideas so would appreciate anyone well versed by knowledge and/or experience opinion and/or input. I have gone to see an Interventional Pulmo who suggested removal of the three Zephyr valves I had placed in 2023 as they are non-functional....
it seems that the only approach my General Pulmo can come up with is a Prednisone 40mg x 5 days and a 20 mg x 5 day taper.
Any thoughts anyone could share with me, please.

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Replies to "Haven't posted in quite awhile as things appeared to be running a normal course for Stage..."

@kndaustin71 Exacerbating since December with COPD and ABPA; 9 days in hospital; 2 pneumonias; Bronch; specimens still growing; ; increased Pred from 5 >20> 40 daily; Cresemba for lung fungi (++visual side-effects) started Ohtuvayre w/ no change in shortness of breath (+ light-headedness).Questioning toll of side effects vs efficacy of drug cocktails.