Anyone been prescribed Ohtuvayre (new med)? Your experience?

@jmcasbar Thanks- So glad to hear about another approach that is helping! Sounds like you have had no significant negative effects?

If you have regular medicare, and a medigap plan G, you will pay a yearly $283 deductible for medicare part B.
After that, there will be no charge, not even for Ohtuvayre
If you have or think you might get COPD or any other serious ilness, do not get Medicare Advantage.
Regular Medicare will cover more with a 20% copay. Add a Medigap Plan G and after the $283 deductible, most everything, including hospital is covered, ev en 50k for International travel. That has a 20% copay, and is only good for emergencies. It has a separate $250 deductible. Regular Medicare has the widest choice of doctors, and you can go out of state to places like Mayo and Cleveland Clinic.
It's a myth that Medigap policies can be upgraded without underwriting (higher prices or denial), except for NY, CT, Mass and Wa.
Most states will let you down grade, if you plan to change or upgrade, learn about your state, most have their own rules. It's best to call Medicare, rather than a broker, in my opinion.
Remember that Nebulized meds are paid through Part B medicare, not your Part D prescription plan.
If you are reading this here, just get regular Medicare and Medigap G, and skip the heartbreak of limited access to doctors and medicines that come with Medicare Advantage. Ive had regular Medicare and Plan G medigap for 10 years.
I have stage 4 COPD, and have never gotten a bill of any kind other than the yearly deductible for Plan B. I even went to Cleveland Clinic for second opinions, and was able to change doctors without needing approval.
Just stay away from Medicare Advantage.

That’s awesome very happy for you, it was the same for me but as of September I went back to not breathing great, waiting to get approved for another medication. @jmcasbar

@nana75 that's correct. no real side effects that I've noticed thus far...I've been on it since November 1st, so time will tell....for now, I'm ecstatic by the results.

And I hope everyone listens to @rzemel. they are absolutely right about staying away from Medicare Advantage...I've gone through breast cancer, leukemia, a stem cell transplant, and now dealing with repercussions from COPD, bronchiectasis and MAC. My output has been very small with Regular Medicare. And it's also correct that Ohtuvayre is covered by Medicare Part B. NOT Part D. The system will try to coerce you into Medicare Advantage because it's cheaper for the system, but it's a very problematic system with terrible providers/coverage. I doubt I would be alive today if I hadn't had Regular Medicare.

Jmcasbar from @suzyq61 disregard my last reply i didn’t realize i commented already, sorry sometimes it’s hard to tell

@suzyq61 how long were you on it? and what do you think made the shift? anything you can think of? i'm terrified of humidity and worried that come summer i'll be back at square one again. that's what usually fires up my shortness of breath...what are you trying next?

@jmcasbar honestly I’m not sure exactly how long I’d have to look into that, lately times flying and it’s hard remembering some things lol i haven’t a clue why my breathing changed, doc had me do a catscan this past December and he said he had a hard time reading it maybe mucus is there which i didn’t get but he wants me to get another in June, I told him with all the medications out there there’s gotta be something I can try so finally he said let’s try nucala, that’s a once a month injection, waiting to see what insurance will agree. I’m the same as having issues with humidity, last summer I was in most of it. I don’t cough I don’t have any congestion I just have issues walking and getting out of breath. So for now I sit and wait

@copdinny I have been lucky. Somehow I started off with no fee and I worried it would not last because I read how expensive it is. Then Medicare and ny Blue Cross started paying. I feel very fortunate to get it.

@mikeyo62 Me to!

@rzemel