1. < Autoimmune Diseases

Hashimoto's Thyroiditis and IVIG Treatment?*

Posted by michaelpaul @michaelpaul, May 5, 2017

Has anyone been recommended IVIG treatment for Hashimoto's thyroiditis? I have found plenty of references for IVIG therapy for Hashimoto's encephalopathy, but not for thyroiditis alone. Thanks in advance for any comments.

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TERESA LOGAN | @quiteachiver75 | Feb 2, 2020
In reply to @darlia "Hi everyone, I also have Hashimoto's thyroiditis and use Synthroid 50 mg daily. I went from..." + (show)
@darlia

Hi everyone,
I also have Hashimoto's thyroiditis and use Synthroid 50 mg daily. I went from Graves disease to remission to Hashimoto's with the under active thyroid happening for about the last 6 months but Graves having been most of my life. I am 58.
I also have the FGFR3 ANTIBODY which is the CAUSE Of Many autoimmune disorders. It affects the nerves and for the member who said they have a leg with numbness. Get the ENT test done by a neurologist, this is the way my peripheral neuropathy started! In my left leg. It just felt numb in a small area. Now progressed to my feet and starting to have tingling a lot in my hands. I also have on and off lower BP.
I have many autoimmune disorders/chronic and my neurologist is going to test me for other markers.
I am looking for something NATURAL to use vs the IV Solumedrol steroids that I'm betting told by my Neurologist is the only treatment for even a remote bit of relief. I am looking to for any trial studies using medical Cannibus so if anyone knows of any for Neuropathy, please share. I also have Gastroparesis which is slow emptying stomach due to neuropathy.
Darlia
.

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HOW DO YOU GET MORE TESTS? DOES THE DR SUGGEST OR DO YOU ASK? ITS HARD TO KNOW HOW TO FIND OUT WHATS WRONG WITH MYSELF

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2 replies
asquires | @asquires | Feb 2, 2020
In reply to @quiteachiver75 "HOW DO YOU GET MORE TESTS? DOES THE DR SUGGEST OR DO YOU ASK? ITS HARD..." + (show)
@quiteachiver75

HOW DO YOU GET MORE TESTS? DOES THE DR SUGGEST OR DO YOU ASK? ITS HARD TO KNOW HOW TO FIND OUT WHATS WRONG WITH MYSELF

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I have these same issue. I’m 57 and I remember when the pcp took care and manage healthcare . I don’t know how things work.

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tommiann | @tommiann | Feb 23, 2020
In reply to @johnbishop "Hi @sherrirnovicki1, @normaw, @blueberre -- welcome to Connect. I'm glad you found this discussion. I'm tagging..." + (show)
@johnbishop

Hi @sherrirnovicki1, @normaw, @blueberre -- welcome to Connect. I'm glad you found this discussion. I'm tagging @JustinMcClanahan @darlia and @taterjoy to see if they may be able to offer some suggestions for you. I also thought you might be interested in the following articles I found:

Recent Advances in Autoimmune Thyroid Diseases (Sept 2016)
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5053048/

Immunoglobulin (IgG) Replacement Therapy Defined | AAAAI
-- https://www.aaaai.org/conditions-and-treatments/conditions-dictionary/immunoglobulin-(IgG)-replacement-therapy

John

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Hello my name is TommiAnn I have cirrhosis of the liver and underactive thyroid,acute kidney injury my immungolobin is very low I'm going to get a transfusion of immungolobins is there any risks to be a where of.

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 23, 2020
In reply to @tommiann "Hello my name is TommiAnn I have cirrhosis of the liver and underactive thyroid,acute kidney injury..." + (show)
@tommiann

Hello my name is TommiAnn I have cirrhosis of the liver and underactive thyroid,acute kidney injury my immungolobin is very low I'm going to get a transfusion of immungolobins is there any risks to be a where of.

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Hi @tommiann, Welcome to Connect. Normally your doctor will go over any risks involved with a procedure. Have you asked your doctor? There is some information available online but I would definitely discuss with your doctor since there may be other aspects of your health that could affect the risk.

Adverse Effects of Immunoglobulin Therapy
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6008653/

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kathystl | @kathystl | Mar 23, 2020

Has anyone here taking Synthroid for Hashimotos been taking their dosage before bed rather than in the morning? It seems like so many things affect the absorption, perhaps bedtime dosing would be more effective. Any advice is welcome.

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fighter | @fighter | Mar 24, 2020

I take my synthroid along with liothyronine (Cytomel) in the am.

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kjo1 | @kjo1 | Apr 3, 2020
In reply to @quiteachiver75 "HOW DO YOU GET MORE TESTS? DOES THE DR SUGGEST OR DO YOU ASK? ITS HARD..." + (show)
@quiteachiver75

HOW DO YOU GET MORE TESTS? DOES THE DR SUGGEST OR DO YOU ASK? ITS HARD TO KNOW HOW TO FIND OUT WHATS WRONG WITH MYSELF

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Teresa, in my experience most MDs and endocrinologist of Western medicine won't do the test. In my experience I went to four doctors and one endocrinologist. I did my own reading there are doctors out there that have switch to functional/integrative medicine. Please find one. They will run blood work that empties won't because they involve vitamins and minerals and things that will help you things that your body is deficient on. Desiccated thyroid medicine has been a lifesaver for me. My regular doctors just kept raising my levothyroxine. I kept feeling worse the endocrinologist gave me cytomel (sorry about spelling) and I literally felt like I was dying. You have to listen to your body you have to be your own advocate and try things. I found a functional integrative nurse practitioner overseen by two doctors who ran the micronutrients tests on me and all of the thyroid test your t3 t4 TSH your free t3 free t4 and antibodies and instead of hypo I was hashimoto's. She started me on nature throid desiccated thyroid medicine along with my levothyroxine. I'm now off of my levothyroxine and totally on the desiccated thyroid medicine. I take a regime of supplements and feel better for it. My vitamin d has gone from an 11 to a 63 and I also do vitamin IVs once a month and Glutathione IVs and both have been a lifesaver for me. The glutathione has helped lower my antibodies and my thyroid is better I feel overall better. Keep searching keep reading there are doctors out there I have great tools and books for us to learn about our thyroid.

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