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Hashimoto's Thyroiditis and IVIG Treatment?*

Posted by michaelpaul @michaelpaul, May 5, 2017

Has anyone been recommended IVIG treatment for Hashimoto’s thyroiditis? I have found plenty of references for IVIG therapy for Hashimoto’s encephalopathy, but not for thyroiditis alone. Thanks in advance for any comments.

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Mentor
John, Volunteer Mentor | @johnbishop | Mar 15 2:34pm
In reply to @rose47 "I have Thyroid Eye Disease. Does anyone know if IVIG, is used for TED?" + (show)
@rose47

I have Thyroid Eye Disease. Does anyone know if IVIG, is used for TED?

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Hi @rose47, I'm not familiar with the different treatments for Thyroid Eye Disease but there is another discussion on Thyroid Graves Disease which I think is another name for TED that might be helpful.
— Thyroid Graves Disease: Anyone else?: https://connect.mayoclinic.org/discussion/thyroid-graves-disease/.

Also, Mayo Clinic has information on the condition here:
— Thyroid Eye Disease Clinic: https://www.mayoclinic.org/departments-centers/thyroid-eye-disease-clinic/overview/ovc-20503926

REPLY
vero210 | @vero210 | Mar 18 4:26pm
In reply to @kyjeanne "Sorry, but all my doctor does for Hashimoto's is treat for Hypothyroidism with Levothyroxine. Nothing else..." + (show)
@kyjeanne

Sorry, but all my doctor does for Hashimoto’s is treat for Hypothyroidism with Levothyroxine. Nothing else has been offered.

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I’m taking tirosint for hashimotos so my anti- bodies are abnormal but tsh t3-4 free and total are normal and tirosint has helped improve my numbers they are still elevated but getting better

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effie05 | @effie05 | Mar 25 11:14am
In reply to @michaelpaul "@JustinMcClanahan, thanks for the welcome. Regarding the IVIG treatment, I'm just trying to educate myself. Starting..." + (show)
@michaelpaul

@JustinMcClanahan, thanks for the welcome. Regarding the IVIG treatment, I’m just trying to educate myself. Starting late last year, I began experiencing frequent episodes of syncope accompanied by very low blood pressure. The syncope’s under control now, but I still have extreme fatigue and dizziness, accompanied with peripheral pain and numbness.

After a lot of false leads, a cardiologist referred me to a very good autonomic nervous system specialist, and I have finally received a diagnosis of neuropathic postural orthostatic tachycardia syndrome, with multiple markers for Hashimoto’s and mitochondrial disease – high thyroglobulin antibody, antithyroid peroxidase, and TSH, and with low coenzyme Q10. I’ve now been referred to an endocrinologist.

The neurologist talked to me about IVIG treatment, and I’ll wait to see what the endocrinologist recommends, but in the meantime I’d like to hear from peers who have had the same or similar treatment.

Thanks again for reaching out.

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I have Hashimoto’s all my dr gives me is Levothyroxine, I have peripheral neuropathy from b12 deficiency and chronic pain syndrome, and 1 day I was standing by my desk and I just pasted out I never do that and have never again and seen a cardiologist he said my heart was fine, because it happened at work I had a thorough work up and was diagnosed with Syncope I never heard of it till now I thought it was a made up diagnosis! I’m certainly not glad anyone has it but glad it wasn’t made up! I am learning a lot! Amazing how different dr’s treat the same illness

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sussudio75 | @sussudio75 | Mar 28 11:27pm

I have Hashimoto’s but my thyroid is totally gone! I take 75mcg replacement daily.

REPLY
sussudio75 | @sussudio75 | Mar 28 11:29pm
In reply to @kyjeanne "Sorry, but all my doctor does for Hashimoto's is treat for Hypothyroidism with Levothyroxine. Nothing else..." + (show)
@kyjeanne

Sorry, but all my doctor does for Hashimoto’s is treat for Hypothyroidism with Levothyroxine. Nothing else has been offered.

Jump to this post

My thyroid is gone now (Hashimoto’s) and take Levothyroxin 75 mcg daily and my levels are normal.

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